The fact that your bone scan and organ scans showed nothing is a very good sign. Being winded can be a sign of your cancer or bronchitis - speak with your team about these symptoms. Sending you hugs, healing vibes and prayers. Good luck and keep us posted.
Non-Small Cell, Lung Cancer Questions
Non small cell lung cancer
Asked by lonestarfwg on Saturday, May 18, 2013
Non small cell lung cancer
I was hospitalized for bronchitis, CT scan and Xrays found tumor 5 days ago,biopsy showed cancer, Full bone scan and organ scan followed and showed nothing,waiting for PET scan very soon. All though my chest hurts and still cough a little blood once in awhile.My legs are very sore though. and I get winded very fast, I have always been very healthy and very active. I do not know the stage but this sure seems to be coming on FAST.... Does this all seem about right or ??? Thank you kindly
7 Answers from the Community
My dad had a stage 2b non small cell lung cancer-- squamous cell-- experience in[phone number redacted]. He started having additional breathing difficulty just like you. Then he went to the doctor. The doctor ordered a chest-xray that showed a spot on the right lung. He was referred to a pulmonologist who continued from there to order the scans and biopsies. After a while he ended up with pneumonia, and a hospitalization before his surgery. The lung issues did seem to come on very fast after he started with symptoms. Here, they are very good about trying to get people into surgery as quickly as possible. He had a very good thoracic surgeon, and they were able to get 100% of that cancer, followed up by adjuvant chemotherapy with taxol and carboplatin. He thought he was cancer-free for two years when he was hit with a different cancer altogether, that was discovered on a follow-up scan for the other cancer. He did extremely well in those two years, and was back to the way he was before the cancer, with the exception of a heart rhythm problem acquired during surgery. This is easily managed with medication.
Sorry to hear of why you are here. Yes. LC comes on very fast that's why its the #1 killer. However great progress has been made in the last 10 years and even more to follow. So don't get nuts. I can tell you when I was DX'd 3/12 I didn't think I would be here now and cancer free. I was running a several miles a week prior to dx.
Here are some suggestions:
Make sure you have lung cancer experts at a big name cancer hospital
Get mutation tested..read "Lets test now" website
Don't bother with the stats on the web..They are all wrong and old. Progress is happening too fast to keep up on the data.
Go to cancer grace for reliable information on Lung cancer as there is a lot of unreliable stuff out there even on sites like about.com But about.com has a great outline on what to consider when getting started with a cancer treatment plan.
Chemo/Radiation/Surgery then adjuvant chemo offer the best survival stats. at around 50/50 at 5 years.
Eat well, rest and be prepared for a treatment plan that will take time and effort. Get your team who will help you in place and put your fighting cap on to get started. You can do this and come out the other side.
All that sounds about right. If you're getting winded easy you may want to tell your doc, you may need to be on oxygen. The PET scan will give some definitive answers. Hang in there, I know your life is like a whirlwind right now but try to stay focused and do as much research and ask as many questions as you can. Good luck and God bless :)
My PET scan results ....nothing but the right lung and the tumor mass is about 2.5 inches.. All the other pain is coming from what is called hypertrophic osteoarthropathy. Will meet with the whole team this coming week at the cancer center at which time a plan will be put together for me.