• Not really a question.

    Asked by JeanB on Thursday, April 25, 2013

    Not really a question.

    I was supposed to meet with my docs and discuss starting chemo this morning. But there was a mix up and I only met with the the radiologist who will give me radiation later, after I've had chemo. I didn't get my chemo consult. Everyone was nice, and a pleasure to meet, but I am disappointed that I didn't get to speak with the chemo doc. I go back next week to see the chemo doc.

    7 Answers from the Community

    7 answers
    • AlizaMLS's Avatar

      Dear JeanB.

      Hi. I'm Aliza, a BC patient and the site's resident unofficial Medical Librarian. I answer questions-usually non medical ones, offer referrals - to doctors, hospitals, institutions, agencies, websites, books, media, etc. I also offer research when required or requested.

      I can tell you from experience (I used to be married to a physician) that there are many mistakes that both doctors and hospitals make. I'm sorry you had to fall victim to one of them. It's hard during this time when you're in the midst of being ill to advocate for yourself, but sometimes, that is what you must do. If the chemo doc or the oncologist didn't contact you, then you should get in touch with her or him as soon as possible. It's good that you're seeing them next week.

      During this time of diagnosis, treatment, coming to terms with having Cancer, we have many adjustments and changes to make. I understand. I was in the midst of planning my Wedding when I was diagnosed. I was supposed to have my Wedding in December and had a mastectomy instead. I still have my fiancé whom I love and who's stuck with me!...;)

      Sometimes one of the best things to do is to talk to someone who specializes in dealing with the highly specialized need of Cancer patients and that would be the folks at CancerCare. Their Social Workers deal only with Cancer patients and their caregivers-they're fantastic!! It's not like "regular therapy" talking to them. They really understand and "get it" no matter what you're going through. You can see them in person or speak to them by phone, whichever's more convenient (I recommend in-person if you can), but I cannot say enough good things about them!

      This site is great for support and many people here have experienced similar things to what you've gone through, but sometimes that professional touch is just what's called for.

      If you have any questions or other things I can help you with, feel free to contact me here or email me offsite. I'm happy to help you.

      Warm wishes,

      over 5 years ago
    • GregP_WN's Avatar

      I have had that happen before. I have shown up for treatment and been sent back home because either equipment was down, the doctor wasn't there, or maybe my blood count wasn't good enough today. Frustrating, but part of the whole, hurry up and wait process we go through.

      You'll be on with it before you know it though. We wish you luck.

      over 5 years ago
    • Clyde's Avatar

      My center tried to cancel an appointment on me as I walked in the door. I raised h e l l at the desk until they got me in (I drive an hour and a half to get to the center). I could understand equipment down, the doctor is sick or many other excuses, but not that they messed up their schedule.

      over 5 years ago
    • BuckeyeShelby's Avatar

      I'm sorry you had a bad experience. I hope the medical oncologist is worth the wait -- good chemistry w/the members of your medical team is always a good thing. And this place is always good for venting -- not just asking questions. I vent from time to time, too. : )

      over 5 years ago
    • BoiseB's Avatar

      JeanB since we are in the same system, I regret to inform you that this is standard operating proceedure. I have been dealing with this system for three years now. You can expect appointments to be canceled just as you walk out the door. One of my doctors here is consistantly running as much as 45 minutes late. It is just the system.

      over 5 years ago
    • Judit's Avatar

      I've heard of delayed and mixed up appointments lately. It's a shame that we have to bear with these stops & starts, but I suspect that's the nature of the beast (pun intended). Patience is the name of the game. sorry you have to deal with this.

      over 5 years ago
    • JeanB's Avatar

      Thanks for all the support! It was greatly needed and appreciated. This experience wa actually a blessing in disguise. (I wish it wasn't SO disguised.) It woke up the fighter in me. When the radiologit said he wouldn't promise treatment would cure me, I was like....wanna bet? You will cure me whether you like it or not......I'm going to fight and WIN!!! I am now proactive. I don't want to be snarky about it though, so thank you all again for your support. I can vent here and face the world with a better attitude.

      over 5 years ago

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