• Now I have a blind eye

    Asked by BeckyTice on Friday, May 14, 2021

    Now I have a blind eye

    Detached retina turned sour..... they changed the positioning protocol and a bubble appeared that pushed the lens out.... requiring more surgery.... oh brother... now I'm blind in one eye.... poop

    21 Answers from the Community

    21 answers
    • alivenwell's Avatar
      alivenwell

      Glaucoma did me in.

      about 1 month ago
    • Jayne's Avatar
      Jayne

      Oh no - that's awful! So sorry to hear that, can they reattach it?

      about 1 month ago
    • BeckyTice's Avatar
      BeckyTice

      Thank you for responding. I'm embarrassed that I haven't been on this forum for a long time. I was trying to ignore being "fragile". I was going on 2 miles hikes every morning.... that's how healthy I got.... and then I tripped.... and then I started really seeing the "light".... it's actually flashes.... and my eyes stopped seeing so clearly. It was really quite slow... but when it went... I knew I was in trouble.

      They put a buckle on it... to hold the retina in place.... and added some air to hold it there..... but that didn't work completely... so they cleaned it up again and put some oil in there.... and that held it in place so it healed.... then they had to take the oil out and put air back in.... my body would replace the air with the fluid we all make for our eyes..... but they made a mistake in the post op instructions..... and the air pushed my lens loose. I had to have another surgery.... they took the lens out and filled my eye with silicone gel. I was on steroid drops for so long... I've developed a thick cataract that the doctors can't see through. And the doctor says he doesn't want to bother my eye any more because it's stable now. It's stable but I can't see. It doesn't "look" bad but it doesn't work.

      So... now I am learning how being blind in one eye can change my life. I can't see most of anything to my right. I can't drive. I run into walls and tree branches. Geeze.... oh and another pleasant side affect.... I can't see to clean my house... it's driving me crazy....

      It's not as bad a cancer.... but living blind is not going to be cheap.... I have to get this figured out before my "good eye" goes bad.

      about 1 month ago
    • Carool's Avatar
      Carool

      BeckyTice, I’m glad you’re back, but sorry, of course, about the reason.

      Maybe it’s a stupid question, but I’ll ask it anyway: Have you had a second (third, etc.) opinion? Given the advances made in opthalmology, isn’t there something that can be done to restore at least some of your sight?

      I know you’ve probably had many opinions by ophthalmologists, so I apologize in advance by presuming I’m adding anything of help. I guess I just don’t want to think there’s no way that you can regain your sight in the afflicted eye.

      about 1 month ago
    • alivenwell's Avatar
      alivenwell

      Can they zap the detached retina with laser surgery?

      about 1 month ago
    • BeckyTice's Avatar
      BeckyTice

      I found another doctor who did a lens replacement on the "good" eye and it works great. I'm supposed to see him this Thursday for a follow up. I'm going to ask him again if there is any way to save my "bad" eye.

      I got a second opinion.... or I tried to at least.... but the second opinion doc couldn't see past the hard cataract that has formed because of the steroid drops I had to use for nearly a year.

      So.... I'm having a conversation with the new doc to see if he and his trusty laser can remove that cataract and replace my lens. Baited breath.... Baited breath....

      I wonder if the chemo made my eyes weaker..... something to think about on the other side.... are their precautions concerning certain chemo drugs that we should be aware of? Not meaning to bring up more terror for anyone.... just wondering if there is another step oncology can take in the future.... getting wiser... not angry.

      Thank you for responding.... a third opinion will be requested Thursday the 20th.

      about 1 month ago
    • legaljen1969's Avatar
      legaljen1969

      It sounds like you are really having a rough time of it lately. I am sorry to see this news. I hope they are able to come up with something to restore some, if not all, of your vision or at least make things a little easier for you in some way.

      I think we all try to ignore being "fragile" because we hate being "fragile" and don't like to have people treat us that way. That said, do as much as you can do safely.

      Keep us posted.

      about 1 month ago
    • Carool's Avatar
      Carool

      I’m glad you’ll be getting another opinion. I hope that doctor will be able to remove the cataract and replace your lens. Please let us know.

      about 1 month ago
    • alivenwell's Avatar
      alivenwell

      Regarding your concern, chemo destroys both healthy and unhealthy tissue. I had extremely high intraocular pressures. But someone in my family without chemo had the exact same eye pressure issue. I imagine chemo does not help it much. They are working on creating vision restoration.
      Our bodies are just machines.

      about 1 month ago
    • alivenwell's Avatar
      alivenwell

      I am still going on a healthy walk in spite of your story. I think I need a dog.

      about 1 month ago
    • BeckyTice's Avatar
      BeckyTice

      I want to thank you all for helping me out so much. If the doctor told me.... going the chemo route might... just might... not probably.... cause problems with your eyes.... I would have still gone with the chemo... because blind people can go on with at least part of their lives... while dead people are just dead.... I would have opted for chemo. I got to remission... I moved out west... I hiked up the side of a mountain.... and on a morning hike around the neighborhood... I took a fall... that scared hubby..... and I'll have to deal with that as well. He's been through all of this with me... and my fall scared him..... and now he goes walking alone.... around the neighborhood.... and he's waiting for me to get my sight back..... alivenwell..... humans do better tricks than dogs.... ;)

      about 1 month ago
    • Carool's Avatar
      Carool

      But cats do better tricks than humans OR dogs.

      about 1 month ago
    • alivenwell's Avatar
      alivenwell

      I miss my dog. Ironically, while I was having chemotherapy, she had cancer that was undetectable in her heart and arteries. She was a mix of border collie with a few grey spots of springer spaniel.
      I really wish they come up with a cure for this insidious disease and horrendous treatments.
      On the positive side, I do play piano and thought it was just me, but I have seen other pianist on YouTube play incredibly excellent music. They must have the whole piece memorized.

      about 1 month ago
    • alivenwell's Avatar
      alivenwell

      Carool, have you seen cat agility? It is humorous.

      about 1 month ago
    • Jayne's Avatar
      Jayne

      I have a young female kitten and a very old male mini-schnauzer (18!!!). She is gorgeous, but aloof.... he is the one who greets me with the most enthusiasm every time I come near him! Unfortunately he had a rough night and we are waiting on the mobile vet. Lots of vomiting and kind of woozy and unsteady this morning-I'm sure he is dehydrated. The cat is watching over him closely since they are good buddies. My poor husband - the dog decided to do the bulk of his illness in our master closet on my husband's shoes - at 1:30 am - not a good evening. :-(

      about 1 month ago
    • alivenwell's Avatar
      alivenwell

      He might need an IV.

      about 1 month ago
    • Carool's Avatar
      Carool

      alivenwell, I didn’t get a WN notice of these comments (I hope WN isn’t once again not sending the notices). I just happened to check in here.

      No, I haven’t seen the cat agility video, but I’ll find it now. Thanks!

      I’m sorry about your dog. It’s so hard when they die.

      about 1 month ago
    • Carool's Avatar
      Carool

      Jayne, I hope your dog is doing much better. I just saw your comment.

      about 1 month ago
    • legaljen1969's Avatar
      legaljen1969

      @Becky, I wanted to comment on a few of your responses throughout this thread.

      It seems that the surgeries they have done on your eye are quite complex and delicate. You have been through a lot.

      I agree with your assessment that, even if you had known it could cause problems with your eyes, you probably would have gone ahead with chemo. I am lucky I did not have to go the chemo route with my cancer. For that matter, not even the radiation route. BUT when I first got my diagnosis, I would have probably done anything they recommended so I wouldn't have the cancer in my body. All of my treatment team is quite conservative in their treatment approaches, so I was basically given the options that would be the least intrusive to my life. They all let me know that I could elect to pursue more aggressive options. My medical oncologist said "There is nothing I can do to stop you from pursuing chemotherapy and finding someone who is willing to give you the magic pill in the corner of the parking lot, but that's not where I think we are right now." If someone had told me that my cancer was bad enough to need the scorched earth treatment that chemo CAN be, I probably would have given it a go. If I were given a list of "maybe" side effects, a list of "probably" side effects, and a list of "this is going to happen" side effects- I would definitely need to take time to weigh them all out- but I think it would take more "probable" and "definitely" things to make me decide it wasn't worth it.

      You have a very positive attitude. I hope you will stay active on the site. I think you have a lot to offer in terms of making this an inviting and encouraging forum.

      about 1 month ago
    • meyati's Avatar
      meyati

      Gee, that's scary---we feel good then somebody trips or chokes on a pill or something-and we realize that we are fragile. I'm the one that choked on a calcium pill on New Years Day 4 or 5 years ago. I was swallowing the pill and turned my head. My son did the Heimlich twice--but I kept choking as it dissolved. My face was sort of blue- and if it got bad-what would my family do? We trotted over to the ER-and I had calcium and blood around my mouth. We sat and watched the Rose Bowl until my oxygen level came up and the pill got small enough to finally swallow.

      Warning- if somebody says something or you hear your dog, while taking pills DON'T TURN YOUR HEAD-

      about 1 month ago
    • legaljen1969's Avatar
      legaljen1969

      Meyati, it's crazy how little "freak accidents" can be so difficult. Just a small "trip" or a little choking that can't get stopped.
      So glad you made it through that choking thing. That must have been super scary.

      about 1 month ago

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