• Now they are saying Non Small Cell Lung Cancer

    Asked by seesun87 on Thursday, January 17, 2013

    Now they are saying Non Small Cell Lung Cancer

    Now I am really scared and confused. At first they were saying Cancer of unknown primary most likely started in colon. I have undergone two chemo treatments for colon cancer. I had visit at Moffit Cancer Center in Tampa Florida yesterday and from the final path report they are now saying what my Oncologist had at first thought. They are starting me on chemo on Monday for Lung Cancer. The last treatments for specific to colon. The diagnosis lung cancer has me really scared. Has anyone been treated for Non Small Cell in been in remission for any period of time or is this an automatic death sentence?

    5 Answers from the Community

    5 answers
    • GregP_WN's Avatar

      No cancer is an automatic death sentence. There are lots of people on this site that have had lung cancer, beat it down and are living mostly normal lives now. Be patient, try not to be scared, someone will be along to answer more for you in a little while.

      There are people here that were stage 4 many years ago and told maybe 6 months to a year to live, and they are right here with us laughing at those dr's.

      Never, never, never give up!

      almost 5 years ago
    • GregA0406's Avatar

      Hang in there. My original primary was bladder. I was treated and given a clean bill of health. It returned 3 months later. They treated it again and once again I was clean. My primary (bladder) has now been clean for over a year. Unfortunately, when they last screened my bladder they noticed spots on the lower ends of my lungs. The bladder cancer had metastisized to the lungs. After the biopsy, the docs gave me "maybe months, maybe years" to live. I have been through numerous different chemo treatments that have kept me "medically stable". I also tried a Clinical Trial drug. Right now I'm back on a conventional chemo cocktail and I'm still "medically stable". Except for when I get my treatments, I feel great. I'm gaining weight, my appetitie has returned, the hemopthesis (spitting blood) ceased nearly a month ago, and the cough is rare. It has been over 13 months since my lung tumors appeared and I am definately doing better. I had a CT scan last week. I'm waiting for the radiology report. Due to all the good signs, the doc expects to see shrinkage of the tumors. There is hope!


      almost 5 years ago
    • SueRae1's Avatar

      I'm with the Gregs, no cancer is a an automatic death sentence. The whole ordeal is frightening as heck and turns our lives upside down. I have advanced kidney cancer which has been stable for 3 1/2 years and is being treated as a chronic illness right now. I was also diagnosed with Metastasized breast cancer in early May - I am receiving infusion treatment and the the breast lesion (I have 2 very very small Kidney lesions and one breast cancer lesion on my liver) has shrunk by more then 50%. So never say never.

      almost 5 years ago
    • seesun87's Avatar

      Greg, thank you for your response. I guess I'm confused because the only symptom I have is swollen lymphnodes in the right side of my neck. My visit yesterday was for a second opinion. At first I was told possible non hodkins lymphoma, after a biopsy of the swollen lymphnode they said Cancer of unknown primary, poorly differentiated carcinoma.The biospy suggested gastrointestinal area most likely colon. The Cancer Center (Moffitt) is waiting on sample of tissue so that they can do their own pathology on it. They feel I should be being treated for lung not colon. I will start the new treatment on Monday. It will consist of treatment once a week with Carboplatin and Avastin. I'm just feeling very confused. I need to really sit down and talk in detail with my oncologist. I'm thinking what if they are wrong again. According to my PET scan in early December when this all started the only place that showed any cancer was the right lung. My blood count WBC has never gone above 11. Any information that anyone has will be appreciated.

      almost 5 years ago
    • seesun87's Avatar

      Greg & Sue have either of you been to the point where you have not had to be receiving treatment? I really appreciate you both responding to my question.

      almost 5 years ago

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