• On Folfox chemo. How many of you lost your hair, mine is simply thinning at this point, only 2 chemo treatments in? ?

    Asked by Tammy72 on Sunday, October 30, 2016

    On Folfox chemo. How many of you lost your hair, mine is simply thinning at this point, only 2 chemo treatments in? ?

    My scalp hurts and is itchy. Hurts too wash, dry sleep on, brush, you name it. No matter what I do it won't get better So I'm seriously considering just shaving it off this Tuesday after my Dr appt for bloodwork in between chemo weeks!

    13 Answers from the Community

    13 answers
    • IKickedIt's Avatar
      IKickedIt

      My hair only thinned. And for the most part, it thinned to a certain degree and then stopped. Have you thought about perhaps cutting it short? Perhaps taking some of the weight off your scalp might help. If you do shave, you'll have no protection between your scalp and the pillow when you lay down. If you choose to wear a hat, the fabric might irritate your scalp. Just things to consider. Good luck, maybe someone here may have experienced this discomfort and will be able to give you some suggestions.

      over 3 years ago
    • IndigoBlue's Avatar
      IndigoBlue

      Hi Tammy. I cut my hair very short in January 2016 as I had a triple by-pass in February 2016. I then had surgery for stage 4 colon cancer in July 2016. Because of all the stress in my life this year, my hair has hardly grown at all and it has been coming out in handfuls in the last month. A week ago I got my hair cut very, very short. I just started Folfiri two weeks ago and am having my second treatment tomorrow. I don't know if I will lose my hair or not, but I can live with it this short. I am supposed to be on chemo for the rest of my lift, so if I do lose it, I will decide later if I am going to wear a wig, scarf, hat, etc.

      over 3 years ago
    • CariJoStrong's Avatar
      CariJoStrong

      My daughter 28 (yesterday ) continues hair thinning and her last treatment was ago 29th. She is currently in the hospital with complications from the bowel resection surgery and having a drain placed this morning. It been awful..she developed a cyst that formed a fistula and the poo is coming out of her vagina. It been absolutely horid. I hope you get well very soon.

      over 3 years ago
    • Popper's Avatar
      Popper

      I to was on Folfox, 12 treatments, one eve y two weeks. At treatment 4 my hair which is very long began to get thin and come out when I brushed it. The texture also changed and it would tangle very easily. To reduce the stress on me and my hair, I washed it only once per week and wore it in a loose bun 24/7. My scalp also hurt and burned a lot. My hairdresser suggested a wait and see attitude. By my last chemo July 22, 2016 I still had my hair, different but still there! 3 months later it has gone back to its original thickness but very, very gray! Can't wait until I can color it again lol or maybe I will just leave it be......

      over 3 years ago
    • lh25's Avatar
      lh25

      One thing I did was get a satin pillow case when my scalp felt tender. I think it helped.

      over 3 years ago
    • TishaF's Avatar
      TishaF

      Satin pillow case does work. I also was my hair once a week. I still have hair, very thin, so I wear a hair topper, makes me feel better.

      over 3 years ago
    • Boomgirl's Avatar
      Boomgirl

      I had 12 sessions of Folfox ending 1Sep. My hair thinned a bit - but I had thin hair to start with - and my hairline moved back, like "male pattern baldness", on the top at the front. No tenderness or itching really. I got my hair cut really short before I started since people said you don't notice so much that way. There is always more hair on the drain than before, for sure. I had more trouble with my fingertips and toes, still do, including fingernails and toenails.

      over 3 years ago
    • schweetieangel's Avatar
      schweetieangel

      Mine came out in clumps.. more than just thinning,.. i just went for it and shaved it made me feel 100% better. Take control of it don't let it control you, Mine has grown back curly and black and silver.lol..

      over 3 years ago
    • Tammy72's Avatar
      Tammy72

      Well i couldn't stand the pain and itchiness any longer when i realized i had scratched the blood out of the top of my head so i shaved it all off. That night.slept the best I've slept since this all started and every night since. It gets a lil cold sometimes but i usually keep a scarf or hat on it so it doesn't bother me as bad

      over 3 years ago
    • schweetieangel's Avatar
      schweetieangel

      Yay glad you have been sleeping better I was the same when I shaved mine .I bought a sleep hat. They wrebrhinner than normal hats to sleep in. But ended not really wearing it. Glad you took control of it . big hugs xx

      over 3 years ago
    • spdsgrl's Avatar
      spdsgrl

      Mine fell out in blotches. I shaved it all. I know just what you mean about itching amd pain. All the irritation went away with my hair. :-) I've managed to lose mine on every chemo even though you aren't supposed to.

      over 3 years ago
    • Boomgirl's Avatar
      Boomgirl

      This is too late for Tammy72, but for others reading this, I went to a "Look Good, Feel Better" meeting at the cancer center, for women getting chemo, and the leader said it is better not to shave your head, that the hair grows back better and there is less itching and stubble if you pull it out. Several women had been to a wig specialist who gently pulled it all out for them. I have no direct experience of this, just reporting what was said.

      over 3 years ago
    • Amygt's Avatar
      Amygt

      My hair thinned but did not completely fall out. Really pleased altho I am still waiting to see what happens. On new chemo regime. So unsure about the outcome

      over 3 years ago

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