• One year out

    Asked by VickiB on Friday, April 18, 2014

    One year out

    My stomach is so large, I lost both of my breasts but gain a huge gut help

    17 Answers from the Community

    17 answers
    • ChildOfGod4570's Avatar
      ChildOfGod4570

      I know how you feel; after active treatment, I gained around 10 to 15 pounds and can't seem to shake the extra tummy despite eating healthy and exercising 6 hours a week. I too will be following this question to see if anyone has advice.

      over 6 years ago
    • cartertd's Avatar
      cartertd

      Well, I'm along with ya'll. I lost both my breast and have notices that my tummy is huge like pregnant huge and everyone has been noticing it to. Plus have been gaining weight which I'm not really like that to gain. I thought maybe it's the hormone pill tamoxifen or that the radiation made me have hypothyroidism. I'm not sure, hopefully someone has an answer for us.

      over 6 years ago
    • sme's Avatar
      sme

      Not a bad idea to talk to you doc about doing blood work to check your thyroid level. That can definitely affect weight. I had my doc check that first, when I started putting on weight. If you are on an estrogen blocker, that can also cause weight gain. I gained weight and am having to work very hard to take off every little ounce of weight gain. I am losing but have to be content with a very slow weight loss. I attribute my belly to the tamoxifen. For me, I'll take the belly & tamoxifen over not taking the tamoxifen. I joined a local weight loss support group, the big one, and that has helped me come up with better ways to cook more healthy weight loss meals.

      over 6 years ago
    • joyuss59's Avatar
      joyuss59

      I also lost both breast and am taking Tamoxifen and it doesn't seem to matter what I eat and how much I exercise I cant get rid of this huge tummy ! so I also will be following this maybe someone somewhere can help !

      over 6 years ago
    • Kathi's Avatar
      Kathi

      I am with all of you, but my doctor tells me that Tamoxifen does not effect weight gain. I am doing nothing different than before but I am gaining weight. I eat right and exercise, just like before. I do not believe my doctor. Something is wrong. Are we all on Tamoxifen?

      over 6 years ago
    • ChildOfGod4570's Avatar
      ChildOfGod4570

      Yes, I am on Tamoxifen; however, my oncologist never told me to expect weight gain. HUGS and God bless!

      over 6 years ago
    • Pinny's Avatar
      Pinny

      I'm on Letrozole and since my mastectomy my tummy is also pronounced. It definitely is attributed to the fact that my breasts are gone and nothing there to proportion me out and also that I was told to increase my protein intake with Boost which has lots of calories. Coupled with the fact I cannot exercise yet, I am packing on the pounds!

      over 6 years ago
    • Jodienyc's Avatar
      Jodienyc

      I lost both of my breasts and had reconstruction. I too am on Tamoxifin and even though I am eating better and exercising more, I am gaining weight. I am thinking of starting back at Weight Watchers but just not sure it will help. I did get a fitbit and now try to walk at least 5 miles a day which at least will keep me a bit healthier even if I don't lose weight. I am seeing a counselor at CancerCares and my weight is a common topic of discussion with us. I am going to give it 6 more months and then just come comfortable with the new me….

      over 6 years ago
    • Roadrunner's Avatar
      Roadrunner

      Yuppers, I am on Arimidex and also had a double mastectomy. I was in great shape before surgery and now I agree no matter how few calories I eat, exercise, my tummy is beginning to look like I am pregnant. In my support group the others laugh about this saying the first time I looked like this it was Debbie the second time it was Suzie and this time it is Arimidex. Ask for a pharmacy information sheet the next time you have your script filled. Mine stated most patients gain an average of 25 pounds and I would love to prove that wrong. Every doctor denies the gain to the drug and yes if anyone has an answer I am waiting to hear about it :)

      over 6 years ago
    • smishik's Avatar
      smishik

      I am on Anastozole (generic Arimidex) and I am gaining too. I am 5'2" and weigh 185 pounds. I am considered obese. I hate it. I don't exercise too much because I have lymphedema and every time I try to exercise for more that 20 minutes my arm swells and it hurts. I go to the Y and do the tread mill for 10 minutes or maybe 15 then the other 5 or 10 minutes I do the elliptical. My arm is killing me by the time I am done. I can't afford to gain any more. I also found out I have fatty liver. I was told to watch what I eat. I have been doing that for over a year now and nothing has changed. I am right with all you guys. I need so help with weight problem.

      over 6 years ago
    • sme's Avatar
      sme

      For those of us on Tamoxifen or any of the Aromatese Inhibitors, the purpose of those medications is to block or reduce production of estrogen. Since we don’t have estrogen running though our bodies now, all those effects that come around during menopause, hits us harder since it dries up all those other sources too. I still weigh the same as I did prior to the breast cancer but it has shifted now to my midsection, an area where I usually did not have too much fat. I found a good explaination of what happens when estrogen levels drop, from the WebMD website ....”As estrogen levels drop, woman are more likely to gain excess belly weight, especially deep inside the belly. That's because as estrogen levels drop, body fat is redistributed from the hips, thighs, and buttocks (where it used to be stored as a fuel reserve for breastfeeding), to the abdomen. “ My goal is to try and lose some more weight, no matter how slow it goes, but I probably will have to embrace my thicker midsection.

      over 6 years ago
    • jojo2's Avatar
      jojo2

      I purchased the WHEAT BELLY book by Dr. Davis. I was interested because of my belly but reading all the Amazon reviews noticed multiple people with improvement in their arthritis. Davis suggested trying the wheat free diet for 3 weeks to see if there was improvement in your health. Within 3 days my swollen erosive arthritic hands were about 50% improved, with my needing to be replaced knees less painful. I wasn't very good about eating low carb but did loose 9 pounds over 8 weeks. I have stayed off wheat since that day because over these 9 months my inflammation has improved slowly and I refuse to deal with debilitating joint stiffness again. I still need my arthritis meds and joint injections but have much better range of motion. I have gained some of my tummy back but when I cut the carbs again, down it goes. I was on a low carb diet years ago and my stomach was actually flat at that time. Good luck. jojo2

      over 6 years ago
    • joyuss59's Avatar
      joyuss59

      I was on Arimidex then switched Exterdame now on Tamoxifen and I have gained about 30 lbs all in my tummy that I can get rid of ! The DR.s say it doesn't cause weight gain but they need to read the pamphlet that comes with the drug ! it says Tamoxifen causes 3 % more weight gain that Arimidex !

      over 6 years ago
    • VickiB's Avatar
      VickiB

      I am sorry to hear that so many others have the same problem that I have. But, at least now I don't think that it is all in my head. I have been taking Arimidex which I call Anthrax.I know that is saving my life but it is not doing much in helping me enjoy it. I suffer from extreme hot flashes and sweats day or night in forty degree weather. I did not have the reconstructive surgery because in 2011
      I had a spinal fusion for L4 and L5 and the doctors said that the surgery would be hard on my back. So I am flat from my neck to the top of my breast bone and then I have a stomach that looks like I am 8 months pregnant. I had a mastectomy in April 2012 and was diagnosed with stage 3 breast in which I had both types lobular and ductular cancer. I had 14 lymph nodes removed under my left arm and 9 of those tested positive. I under went chemo from May 2012 to Oct. 2012 and 36 treatments of radiation. I am very thankful to be alive and trust my oncologist but as you know chemo is not a walk in the park. I also have neuropathy bad in my hands and feet,I lost four of my front teeth and I have had cellulitis three times. I am a positive person and I have a wonderful church and I know that God has been by my side so I really don't want to be across as a feel sorry for me person.I have met many others have suffered more than I have. I am 54 years old and a retired elementary physical education teacher with a huge potbelly that I can not get rid of. I hope that by sharing we can find some answers and help each other to beat this belly that really should be listed as a side effect with some answers how to get rid of it.

      over 6 years ago
    • grandmajean5's Avatar
      grandmajean5

      I'm sorry so many of you are going through this but at least I know it's not just me. I, too, weigh pretty much the same as before my two lumpectomies and radiation but after a few months on the Anastrozole, it was harder to button my slacks and I couldn't figure out why. My onc did tell me when I saw him that it is a known side effect of the drug. The wheat free diet jojo2 mentioned sounds promising and I will definitely check it out.

      over 6 years ago
    • smishik's Avatar
      smishik

      Let us know how it works. I would really like to try something that works.

      over 6 years ago
    • dmholt1957's Avatar
      dmholt1957

      I am in the same boat as all of you are, both breasts gone and a huge gut. I walk and try to watch what I eat and nothing helps take it off! If any of you figure it out please let us know. Thanks and God bless.

      over 6 years ago

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