• Opinion or Experience with Clinical Trial

    Asked by Teachdqs on Tuesday, April 23, 2019

    Opinion or Experience with Clinical Trial

    Having a hard time making my decidion to enter Trial or not.

    6 Answers from the Community

    6 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I wrote on your journey about my experience with a clinical trial. Good luck!!

      3 months ago
    • po18guy's Avatar
      po18guy

      I have been in 4 clinical trials now. Two were anti-cancer drugs - biological rather than chemotherapy. And, two drugs to control the Graft-versus-Host-Disease from an allogeneic transplant. The first trial placed me in full response (Peripheral T-Cell Lymphoma, NOS) for 4 1/2 years, literally saving my life.

      I strongly encourage others to participate in clinical trials - especially if you have metastatic disease, relapsed, refractory, or one of the difficult cancers. Trials are the only way that medical science is advanced. If you are in cancer treatment, you are NEVER given a placebo. If the trial drug is not effective (y7oiu are very closely monitored), then you always have the option of standard therapy.

      Additionally, all drug and study-related costs are normally paid for by the sponsoring drug company. The patient or their insurance is billed only for the "standard of care" which would be routine blood work, office visits and other things that would occur anyway.

      If the trial looks promising, you have virtually nothing to lose, and you stand to gain the benefit of cutting edge drugs that are almost assuredly less toxic as well as more effective than standard therapy.

      3 months ago
    • lo15's Avatar
      lo15

      That's good to read about as we are about to start a clinical trial today! After over a year of chemo with mainly good results, they have offered my husband a trial. As you mentioned, we have nothing to lose as its closely monitored for results and side effects, the drugs, scans etc are free and they said while we are able physically, now is a good time to give it a shot. Fingers crossed

      3 months ago
    • carm's Avatar
      carm

      Hello, I am an oncology nurse and I agree with the above. I have done studies as a nurse clinical coordinator and as a patient. If you don't like the participation or the study once you begin, you can quit at any time and return to traditional therapy. Many of the studies out today are with therapies that have already gained approval from the FDA. Best of luck to you.

      3 months ago
    • Terri's Avatar
      Terri

      I have been in 4 clinical trials. Overall a good experience, however I had a couple of bad experiences, notably at the National Cancer Institute in Bethesda, Maryland. I knew I was a guinea pig there. I would do it again. I think I am alive almost 10 years after do with Stage 4 melanoma because of TIL trial. It was the one in Bethesda. It didn’t cure me but sure slowed it down. I have a genetic mutation that makes my cancer more virulent.

      3 months ago
    • Woodburn9's Avatar
      Woodburn9

      I am stage 4 NSCLC. At my time of diagnosis only 6% of us lived for 5 years. My first line of therapy failed before my 6 month mark so I was facing a true death sentence. A clinical trial was offered and that drug has kept me alive for 5 1/2 years now. While on the clinical trial I was scared every 8 weeks instead of 12 weeks and my labs were checked more frequently. I saw a doctor, then an NP and then a research nurse every visit so that nothing was missed. Wonderful care and would definately do it again when the need arises

      3 months ago

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