• Osteoradionecrosis

    Asked by mr114750 on Thursday, August 16, 2018

    Osteoradionecrosis

    Has anyone experienced this side effect of radiation treatment ? 3 years after radiation treatment I have been diagnosed with osteoradionecrosis of the cervical spine. It took almost 10 months, 5 doctors and plenty of pain meds for this diagnosis. My C1 and C2 vertabra are extremely damaged, the bone is dying and have micro fractures. Treatment to at least slow or stop will last up to 2 years.

    5 Answers from the Community

    5 answers
    • GregP_WN's Avatar
      GregP_WN

      I was warned about having my teeth pulled after my radiation. I was told flat out that I couldn't have them pulled because I would likely get ORN. But the alternative to having them pulled was going to be a 75K solution and that wasn't going to happen. I told my oncologist that we would just have to pull them because I had no other choice. They cut mine out in oral surgery to be as careful as possible, I had all of my teeth removed over a period of about 6 months. Taking two at a time and letting those heal before moving to more. That was about 4 years ago and as of today, I'm still doing good with no ORN. They didn't even warn me about the spine, only my jawbone. Have you had HBO treatments to encourage healing and growth?

      about 1 month ago
    • SandiA's Avatar
      SandiA

      I am curious what your symptoms were? I had radiation to my neck on the left side and my neck and jaw have been giving me fits. The doctor thought I was grinding my teeth but I don’t think so. I have had exercises to do but not sure they are making much of a difference. My neck is super stiff, the left side is tight and tender especially in the back of my neck and my jaw locks into place now and then. I am also having some shooting pain on the right side of my head they are thinking is from my jaw. Which may be but my neck is definitely involved in all this. Some days are more painful than others. But earlier in the week I got my hair cut and I could barely stand for her to touch my neck. That’s the first time I noticed that.

      about 1 month ago
    • geekling's Avatar
      geekling

      What do your doctors propose to do about this?

      Have you tried hyperbaric oxygen chamber sessions? Have you tried calcium rich foods (not milk) and silica enrichment? Calcium makes the rigid structure and silica allows flex. Your body needs both.

      Dying may be reversed. It is possible. You have an amazing immune system which exists only for the purpose of repairing you.

      Best wishes.

      about 1 month ago
    • Dkatsmeow's Avatar
      Dkatsmeow

      I may be. I was told I had osteonioa before cancer. Since I have developed full blown osteoporosis. I did drop to 68 lbs after surgery & am now getting that waight back. But it kiils me to have to squat down for anything. My knees hurt so bad that standing back up I actuall see stars. I did have HBO treatments earlier this year to have 'A" tooth removed. I have since had 3-4 more teeth just crumble down to the gum. Fortunately they are not hurting so I am letting them be for now. I also noticed on the last CT scan of my neck, they noted some osteoporosis of my spine in my neck. I will have to keep an eye out. Right now my joints ache & my muscles also. I figured it was from where I had lost so much weight. But we will see. I thought you only got that in the jaw area where you were irradiated. Thanks for making me aware!

      about 1 month ago
    • Songwriter's Avatar
      Songwriter

      Radiation in the Jaw area can be tough. I had it to kill lymphoma impinging on my Sciatic nerve over three years ago and was successful with no side effects of all. I too Green Tea Extract and Curcumin while doing the Rads as maybe that helped. I only had a slight burn on my back as the machine shot me through the front.

      about 1 month ago

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