It might take trying a vatiety of appliances and brands. I use Coloplast for most of my products. Do you have a wound nurse to help you?
Adenocarcinoma, Colorectal Cancer Questions
Asked by CrazyHarry on Sunday, May 5, 2013
After my very successful rectal cancer surgery with a loop ileostomy my life has been quite exciting. I'm using a 2 piece Hollister with one of them Hollister wafers. Day 1, the 2 pieces came unattached twice. Day 2 inner seal gave way and had to replace the whole thing. Day 4 and day 6 same problem. And one more time the 2 pieces just separated.
This seems like an excessive amount of trouble in one week.
Anybody else face a mighty struggle at the beginning?
7 Answers from the Community
I will tell you, I am small boned, and loved the size of the Hollister appliances, but I had a lot of problems with the stickum & the seal, and ultimately switched to Coloplast. I would call Coloplast & ask them to send you some samples, if you can't get them from your wound/ostomy/home health nurse. Three things that might help....you are probably still a bit swollen from the surgery...after another week or so, things should settle down & your body won't be shrinking away from the seal any longer. If you are using the powder, apply it, then BLOW the excess off - too much of that, and your seal won't hold. And you should be able to hear the bag portion CLICK on, and then run your thumb or finger around the seal to make sure it is COMPLETELY closed. That doesn't sound all that hard, but it was a problem for me, cause your instinct is to NOT press on your abdomen too hard, but you do need to put some pressure to make sure it is completely attached. And never go anywhere without your emergency kit. I don't know what guys do, but I had extra bags, wipes, panties, squirt bottle, etc, stashed in my giant purse, Good luck! Very glad to hear about your successful surgery!
Its a process...
I had a tough time with my ileostomy at first. I used Convatec products and found them very good. I learned to make sure I got every bit of the old adhesive off before I applied a new wafer, otherwise I had leaks under that seal. When you attach the bag, make sure it clicks into place. I found it was easiest if I used two hands and ran both index fingers around the seal in opposite directions to make sure the bag clicked into place on the seal.
I'm glad to hear your surgery was a success. The ostomy is no fun at all but you will find you get better at managing it with time. Good luck with it.
Update from the dungeon..
My ostomy nurse stopped by today and was quite concerned about the skin breakdown. As the masochsitic nurse was ripping off the old pouch and inflicting great pain upon me. She tells me in her Polish accent, "No Mercy when there are skin problems"
I have also been given orders that there are to be no more solo attempts for the time being.
The pain is finally beginning to subside
I had a very good ostomy nurse come to my home and he wouldn't let me go solo for almost a month. the other nurses from Home Health were both very good also and I learned alot from them. I've had a couple of accidents but nothing like you described. I also use Hollister products. If anything the adhesive is too sticky sometimes. Hang in there , XXX happens... ;0)
I've been using Coloplast and have had no problems at all. I use the click ostomy pouch for extra security. Coloplast will send you whatever samples you'd like to check out! I also use brava tape around the wafer. It gives me peace of mind to have that added security as well. Good luck with everything!