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    Ovarian cancer, what online resources did you find the most helpful?

    Asked by WhatNextEmails on Tuesday, March 26, 2013

    Ovarian cancer, what online resources did you find the most helpful?

    We need your help again. We're working to improve our resources page and want to know, What online resources did you find the most helpful? For example, did you google your diagnoses? What cancer sites did you find? Did you look for financial resources, help with prescriptions, help with treatment expenses? Travel expenses, or a treatment center? Give us the run down of the first 48 hrs after you were diagnosed that you spent online. What did you want to know? And did you find it?

    With this information we can develop more resources for our fellow WhatNexters to help them find the help they are looking for, as quickly as possible. Give your tips and resources you found helpful and we may use your information in our articles to help others in the future.

    4 Answers from the Community

    4 answers
    • Carol-Charlie's Avatar

      I Googled and "Binged" my way through questions, but generally called and talked with Anne. The beautifrul nurse to my Gynicologic Oncologist Surgeon. Between Jackie (the doctors PA) and Anne It was great. This clinic always responded rapidly. I went often enough for treatment that I did have contact with other patients. My oncologist put me in contact with another patient with much the same condition and outlook as I had. Donna and I have talked on the phone, but both prefer to e-mail, as we're both busy with our lives but have easy time responding to e-mail. I think we'll remain friends forever as God is the strength on which we lean. That's why I was overjoyed to literally trip over WhatNext. I wanted to help others.

      over 5 years ago
    • KimmieJo's Avatar

      The American Cancer Society website was very helpful for me. I was able to get in touch with their organization to get help with the travel expenses for my treatment since I live an hour and a half away from my treatment center. They hooked me up with free hotel rooms and even gas cards to pay for my trip. The Ovarian Cancer National Alliance website was very helpful also - good information from survivors!

      over 5 years ago
    • derbygirl's Avatar

      I stayed away from the internet to google ovarian cancer because I know it gives general information and not personalized and every case is different. Plus, at the time I was working as a clinical assistant in a doctors office and I know how it makes doctors cringe when a patient says they checked their symptoms on the internet. I have however gone on the NOCC website and have received wonderful support from CancerDancer and here at WhatNext. I also got great information and support from my medical team. As far as financial information and assistance, I went to the hospital my doctors are affiliated with, Lancaster General Hospital, and spoke with a financial counselor. Most hospitals should have someone that helps patients with financial assistance. The American Cancer Society website is also a plus for me. The thing that did surprise me was that at the time I was diagnosed and undergoing surgery, my insurance company, Capital Blue Cross, had a nurse from their office call me prior to and after my surgeries to talk with me and offer support. They also sent me a huge packet of information. These are the places that I turned to for help and support in my journey with ovarian cancer.

      over 5 years ago
    • Cindy's Avatar

      I did Internet searches using "Bing.com" (I rarely use Google.) to find out about my probable diagnosis which my doctor said wasn't for sure until after the surgery to remove my tumor, ovaries, fallopian tubes, and hysterectomy and the lab reports were done. I researched as much as I could about ovarian cancer prior to my surgery to see if my symptoms matched the typical symptoms of ovarian cancer because I wasn't totally convinced I had it. I also wanted to know how it was treated and the prognosis and side affects of the chemotherapy. I also did an Internet search on the doctor that my gynecologist recommended for my surgery to see his reputation as a doctor and the hospital where it took place which was in a city several hours away. I did find what I was looking for.

      Some of the cancer websites I looked at were: www.MedicineNet.com/ovarian_cancer/article.htm , www.WebMD.com/ovarian-cancer , www.mayoclinic.com/health/ovarian-cancer/DS00293 , ovarian.org , www.cancer.gov/cancertopics/types/ovarian, en.wikipedia.org/wiki/ovarian_cancer , www.ovariancancer.org , www.cancer.org/cancer/ovariancancer , www.cdc.gov/cancer/ovarian , www.tirgan.com/chemolst.htm (chemotherapy and anti-cancer drugs) chemocare.com/chemotherapy/drug-info (chemotherapy drugs)

      I did not look for help with financial resources or help with treatment expenses because I felt that I had good insurance. In retrospect, I should have researched what my insurance would pay and printed those pages off the Internet prior to my first chemotherapy session because I had problems with the doctor office wanting payment up front and wanting to overcharge me due to them not understanding my medical coverage.

      over 5 years ago

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