• Pains after first chemo

    Asked by AlexisJ on Wednesday, May 31, 2017

    Pains after first chemo

    I had my port put in on Wednesday (6 days ago) and started TC chemo on Thursday (5 days ago). I had the neulasta shot on Friday (4 days ago). For the most part I was okay. Today I woke up with terrible bone pain, a very sore throat, and started my period. This is so bizarre. Please help.

    17 Answers from the Community

    17 answers
    • GregP_WN's Avatar

      Did your doctor suggest that you take Claritin to help with the bone pain? Many have said that is a routine thing and it helps.

      almost 3 years ago
    • AlexisJ's Avatar

      Yes, I have been taking Claritin and steroid pills, but stopped yesterday. Perhaps that is why.... thank you for the response!

      almost 3 years ago
    • BarbarainBham's Avatar

      AlexisJ, let your doctor know. This is his job.

      almost 3 years ago
    • Anniekell's Avatar

      That's a lot of procedures on your body - maybe slow down the assault?

      almost 3 years ago
    • suz55's Avatar

      My oncology team said to take claritin and Aleve for the neulasta bone pain, but I also stopped taking it too soon after my first shot. On day 5 after the shot the pain was excruciating! After that I took both for several days just to be sure, starting the morning of the shot. Best of luck to you!

      almost 3 years ago
    • msesq's Avatar

      Chemo usually gives you flu like symptoms and the Neulasta gives terrible bone pain but lasts only about a day to a day and a half. I tried the Claritin and it didn't do much good for me. I resorted to pain pills my oncologist gave me to get through the day. Talk to your oncologist about something for the bone pain.

      almost 3 years ago
    • ChildOfGod4570's Avatar

      I too had TC chemo, steroids, and neulasta shots. I had bone pain but decided to just take it easy and let it pass on its own, which it did each time. As for your cycle, I wonder if it just happened to show up at an inopportune time? I got mine the day I was released from the hospital after getting my port in and still had a good flow going when I had my first chemo infusion. I never had a cycle again after that. My chemo nurse told me some people stop their cycles only while on chemo and get them back again while others lose their cycle permanently. You might want to ask your oncologist and/or chemo nurse about this. They're used to such calls and know what might help you. As for the bone pain, I took it easy and moved around from bed to chair through the day and actually felt the pain slowly flowing off my back like shower water in slow motion. As the pain lessened starting from my upper back and continued the process down my body, I knew it was passing and I would be OK from then on. It took a few hours, sometimes most of the day, but it cleared up on its own. Being very sensitive to drugs, I didn't want to pop any more pills than necessary. I hope you find something to get rid of the pain for you soon. HUGS and God bless.

      almost 3 years ago
    • Jouska's Avatar

      I was very fortunate in that my oncologist did not administer Neulasta as a matter of course because he felt it was too painful and not always helpful. He did monitor my bloodwork closely and although towards the end of my chemo treatments did have neutropenia, I still worked and even traveled. So you might ask about not getting the shots. But certainly call your doctor or nurse and review your symptoms with them. They need to know and can usually help. My mouth would get sore during the second week of my 3 week cycles and I would have to switch to sensitive toothpaste. Even that was tough. If you are post menopause and bleeding that needs to be checked out as well. It is probably not a result of the chemo but something else. If not, it could just be your normal cycle, but again, if unusual, mention to your doctor/nurse.

      almost 3 years ago
    • barbaraanne's Avatar

      After I did chemo, the next day I also got the Neulasta shot. Days 4-6 were the worst for pain. I took the Clairtin and a few pain pills, I took Vicoden , only for a few days as it causes constipation...ugh. I found ( if u can find the strength) take a warm bath with Espom salt and or I used a heating pad ( I'd move it all around) helped. Another thing that helped is I'd get up and walk around the house, sounds crazy but I believe it helped,so I wouldn't stiffen up so much. My problem is I waited with the pain meds, the chemo Nurse told me " don't wait for the pain to start, take the meds when u get home". So I learned after the 1st time on how to better manage my pain. Always talk to your Dr if it's unbearable. I found that the chemo nurses ( God bless them) had more helpful tips.

      almost 3 years ago
    • BuckeyeShelby's Avatar

      You might be getting a double whammy, depending on your chemo drugs. I know Neulasta can play havoc on bones. However, I didn't do Neulasta and had severe foot, ankle & lower leg pains. It's not a common side effect, but it can happen with Taxol/Carboplatin. I'm sure it would on other drugs in the same families. I hope it gets better. I had to knock myself out w/Norco one day every three weeks.

      almost 3 years ago
    • charnell's Avatar

      Yep, big hugs. That pretty much describes it. Hang in there.

      almost 3 years ago
    • AlexisJ's Avatar

      I see my oncologist tomorrow. She wants me on Norco, a "magic mouthwash", and antibiotics. Looks like I picked up an infection somewhere. Sucks.

      almost 3 years ago
    • tracyt's Avatar

      Sorry to hear you're going through this. I hate that pain and I dont wish it on my worst enemy. Everyone's neulasta pain is different. I've spoken to some people that had very little or no pain from it but I felt like someone had put my bones in a blender, added acid and pushed the blend button. It was horrible every month for 3-5 days i couldnt even walk. I took claritan, Oxycontin60, Tylenol and that only calmed the pain a little. I would lay in the bed and cry until it was over. I Pray that you will get some relief soon. God bless you.

      almost 3 years ago
    • Nanzee's Avatar

      My very worst day on chemo was the fourth day after my first infusion. I had felt good the previous days and pushed myself, gardening, cooking, seeing friends. The fourth day I woke up with the biggest, ugliest cold sore I've ever seen. I was totally fatigued, mouth too sore to eat, aching all over, depressed and miserable. I honestly didn't think I could continue on chemo. I think the steroids had given me a false feeling of well-being that ended when they did. Every day after that one was a little better. I never felt that bad again, rested after each infusion, and used all the mouth rinses and comfort measures I was given. My team really wanted me to let them know what I was going through. They can't anticipate everything, but they can help when you tell them about it. I hope you get through this and never have this particularly miserable spell again.

      almost 3 years ago
    • barbaraanne's Avatar

      I agree with you Nanzee. I took the steroids for 3 days before treatment, I was bouncing off the walls, but at least I got all my chores done. then boom...But i know the steroids did bloat me. we all learn what works for us. I was lucky my mouth was only sore after the first treatment, a real "weird" feeling. I made sure to drink a lot of water and I really liked the Vitamin water zero Lemonade. I also sucked on sugar free lemon drops. For some reason it worked for me. And I rinsed with Act mouthwash (no alcohol in it).

      almost 3 years ago
    • triciab's Avatar

      By far the bone pain from Neulasta was my worst side effect during chemo. (I had 8 chemo rounds and 8 Neulasta shots). The pain started the evening after injection and lasted for full 2 days. Even the bones in my face hurt. I tried the Claritin and Tylenol but was still pretty miserable. Finally asked the doctor for something stronger and took Tramadol right after getting Neulasta and for the next 2 days which made it tolerable. Be sure to ask your doctor and let him/her know the side effects you are experiencing.
      I had one period after my first chemo and haven't had one since. (Don't miss that.)
      I do believe that Neulasta kept me from getting really sick during chemo. I had 1 cold and 1 ear infection during chemo and I worked nearly full-time through it all. Good luck to you. I'm almost 2 years out from my last chemo and feel mostly back to "normal". Take care.

      almost 3 years ago
    • Pinklady521's Avatar

      Neulasta is highly likely the culprit for the bone pain esp. radiating from your spine as our marrow is the start of life. It helped me to elevate my legs a bit to lessen the pain and Tylenol.

      I remember even walking on the carpet hurt !! BTW, my last period decided to come the night before my mastectomy. I was period-free for about four months prior so it XXX me off that it decided to make it's appearance then.

      The sore throat is chemo-induced. I didn't know about Claritin like other writers have written about but a chemo nurse told me to take Benadryl just before chemo which would enable to feel a bit more relaxed and the histamines would help.

      If the port hurts when it's accessed, call your surgeon ASAP. Mine got twisted but that was close to the beginning of Herceptin which really surprised the surgeon as he never had that happen to a patient.

      You seem very aware of your body which will enable you to figure it if something is awry so you can talk to your doctor about it.

      Peace be with you on your journey.

      almost 3 years ago

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