• Pallitative Care - When can you get on it, what will change, what do they do for you?

    Asked by HotRodTodd on Thursday, September 13, 2018

    Pallitative Care - When can you get on it, what will change, what do they do for you?

    Is this just for the terminally ill? Can a regular cancer patient that is in a lot of pain get on it? What would change, what would they do to help, do I still see my own doctor. Too many questions!

    7 Answers from the Community

    7 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      There is sooooooooooooo much misunderstanding about palliative care and it is a shame. It is for every patient. The sooner the better in many cases. Palliative care services benefit the whole person ... and the whole family. They deal with psychological, medical, pain, spiritual ... the gamut. They'll help you navigate the whole confusing system. And, yes, you'll still see your doctor.

      2 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      https://www.cancer.gov/about-cancer/advanced-cancer/care-choices/palliative-care-fact-sheet

      I've seen online presentations as well as live presentations about palliative care. I went in search for the online presentations but didn't find them.

      2 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      sorry for blowing up your responses, but here is a link to a Webinar I listened to last month: https://getpalliativecare.org/managing-lung-cancer-symptoms-and-improving-quality-of-life-2/

      2 months ago
    • GregP_WN's Avatar
      GregP_WN

      Our family recently had to use palliative care for our Mother who passed away. They are a great service. Don't be afraid to reach out to them and ask questions, and find out what your local service can do for you.

      2 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Timing is everything! A blog i wrote on this subject was published today :)

      https://lungcancer.net/living/palliative-care-should-you-care/

      2 months ago
    • po18guy's Avatar
      po18guy

      Palliative care IS NOT hospice. As well, palliative care can be the wisest choice. Its aim is to maintain the highest possible quality of life. We all want "the cure." We all chase "the cure" - but at what cost? Chasing "the cure" can actually shorten our lives, and drastically lower life's quality as compared to the compassionate aims of palliative care.

      Today, there seems to be a blending of carefully measured treatment with traditional palliation. That is to make the patient as comfortable as possible, while applying therapy designed to contain or slow the disease process so as to lengthen that life even more - and in a tolerable manner.

      Say that you are 80+ years old and have a cancer which is potentially curable via aggressive therapy. The risk is that receiving aggressive therapy can do so much damage to your organs that you may die prematurely - but without cancer. Does that sound reasonable? Rather, palliation seeks to treat the patient so as to provide as much comfort as possible, knowing the patient's limitations and the cancer's potential. It is a balancing act.

      Life on this earth ends. We know that. Today? Tomorrow? In 20 years? A mystery. Rather, if the cancer can be slowed down while the patient is able to experience and enjoy life, it is a win-win.

      2 months ago
    • Lauraandmary's Avatar
      Lauraandmary

      Palliative care is not just for the terminally ill; it is for anyone that is suffering from a disease that causes distress, whether it be physical, spiritual, emotional, etc.
      The focus of palliative care is quality of life. I believe every patient with a cancer diagnosis should receive a palliative care consult.
      You do not have to give up your other doctors (such as oncologists); ideally, palliative care should work hand-in-hand with your doctor.

      about 1 month ago

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