• Pelvic Fibrosarcoma Incurable Any Suggestions?

    Asked by Cariad on Wednesday, April 8, 2015

    Pelvic Fibrosarcoma Incurable Any Suggestions?

    I had an 11 pound tumour removed from my pelvis and abdomen. It was diagnosed as a fibrosarcoma. It had spread to my ovary, peritoneum and near to my colon. It has been graded as Stage 4 incurable. Radiotherapy and Chemotherapy are not suitable due to the cancer being deep in my lower pelvis. Has anyone else had a fibrosarcoma in this area? I would be very grateful for advice and information regarding treatments of any kind to stop/delay my cancer growing. Thank you Cariad

    3 Answers from the Community

    • barryboomer's Avatar
      barryboomer

      Have you got a second opinion yet.
      IF you want any Nutritional Advice and some things to check out let me know.
      You have nothing to lose and a LOT to gain.

      about 5 years ago
    • geekling's Avatar
      geekling

      Incurable only means that the doctors who say so do not know how to help you.

      First off is to find different doctors who might have an idea or two.

      A lady with the nickname nicki1920 (i think) found herself in that position so got herself an appointment to see doctors at the Mayo Clinic and then proceeded to find volunteer pilots who took her to her new doctors without charging her a fee. She is currently cancer free although not in such great shape as she might like but entirely breathing far from her last breath.

      There was a man with incurable brain cancer. He found a different doctor and 16 years later opened a web site called www.bestdoctors.com which helps folks to find their own miracle workers by presenting the best in any field. I heard about him through a TV magazine called 60 Minutes.

      There are specific foods which shrink tumors. No one has done any human trials on most of them (nor will they because food isn't patent-able at this time so no profit is to be made from any food cure) but they are foods and can do a body no harm even if they prove not to help. Better nutrition can have a profoundly excellent effect on your immune system. Most foods can be combined with each other to no ill effect. That means if you want to try black seed oil and guanabana protocols at the same time, you won't be hurt and they won't act against each other contraindicating good effects. Adding Chaga extract won't set you back or do harm at all. I mention these because I know people who blame each of these foods for what a doctor would call spontaneous remission. I also love sprouts.

      Don't give up until you can't give any more. Even then, learn to take instead.

      I truly believe that a 2 month climb into raw & living food has a profound effect on the body. People are so bound up within themselves that they sometimes think they know it all and do not get help from those who know more or have more experience. They learn how to make exotic sweets and remember to eat a salad and think that is all which is needed. It isn't. Although not rocket science, nutrition is a delicate dance to find a teetering balance which will allow you to continue.

      In San Diego & Austin check the Optimum Wellness Center. Atlanta, the Living Light Institute and West Palm Beach, Hippocrates Health Institute. There is an unconnected one with that same name in Puerto Rico.

      Best wishes.

      about 5 years ago
    • KiscoKid's Avatar
      KiscoKid (Best Answer!)

      Hi, the KiscoKid here, hang in there. I was diagnosed with a Fibrosarcoma called Sclerosing Epithilioid Fibrosarcoma (SEF) and I got a 2nd, 3rd, and 4th opinion. I found from two of my expert opinions that "Yondelis" AKA Trebactin may help unique Fibrosarcomas but there are no trials that I know of but it may be a good idea to ask your 2nd opinion person. Also I read online about a young man with SEF being treated at MD Andersen, his tumor is in his abdomen and his team was treating him with Crizotinib to shrink it, ask your 2nd opinion about this too, Also I see the other comments above contain good advice about seeking more opinions and good nutrition. When I first found out I had cancer I felt very alone, that was one of the worst parts, now I know I am not, we are all in this fight together. If I find anything else I will re-post ASAP! Take Care.

      about 5 years ago

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