• PET Scan for Leiomyosarcoma in uterus and vagina

    Asked by Braids on Thursday, July 11, 2013

    PET Scan for Leiomyosarcoma in uterus and vagina

    Aetna denied coverage for the scan. Paying for it myself but wonder why refusal? Is PET not any better than CT scan for sarcomas. Had hysterectomy in January and removal of vaginal tumor in June. Scan needed to plan radiation treatment. Doctors even had peer-to-peer but they said they do not cover PET for any sarcomas.

    5 Answers from the Community

    5 answers
    • GypsyJule's Avatar
      GypsyJule

      I agree completely with Shelby and Greg. File an appeal with the insurance company. My dx was Uterine Carcinosarcoma - a combination of a carcinoma and a sarcoma. I have had a PET scan that was paid by my insurance, United Healthcare. Since treatment, I've only had CT scans, but there didn't appear to be a problem with the PET. You may even want to check with the hospital/doctors office to help you with the appeal. My insurance originally denied a hospital stay while I was in treatment and had a 102 degree fever. The oncology department wrote the appeal, and it was paid. (They want the insurance money, so they may help you get it!) Good luck!

      almost 8 years ago
    • Deidre's Avatar
      Deidre

      I agree also, file an appeal with insurance. I have done that successfully before. I just had a PET scan and my insurance was billed thousands of dollars, so it is expensive. But one of my doctors said he didn't think a PET was any better than a CT scan anyway.

      almost 8 years ago
    • Joachima's Avatar
      Joachima

      My uterine cancer was also a sarcoma and I have Aetna insurance. My gyn oncologist wanted a PET Scan following a suspicious area found on a CAT Scan. Aetna refused, and my doctor appealed & persisted through phone calls until finally it was approved, also to plan radiation treatment. I was told that PET Scans are not an approved source of detecting sarcoma. I was further told that Aetna would consider paying only as follow up after the CAT Scan showed something suspicious, as it was in my case.

      almost 8 years ago

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