• Phantom nipple sensations - common with bilateral mastectomy!

    Asked by leepenn on Wednesday, February 29, 2012

    Phantom nipple sensations - common with bilateral mastectomy!

    Who knew!?!?!?!? I sure as heck did NOT. I posted something here... got no responses... felt a little embarrassed... Deleted it... But now I'm back with the phantom nipple sensation topic. I did some research and discovered that around 1/3 of post-mastectomy patients have phantom nipple sensations. Since these data come from surveys, I kind of wonder if the number is actually higher.

    So, what do you do about your phantom nipple sensations, if you've got them?

    I've discovered that wearing something that DOES NOT MOVE against my surgical scars, which are very fresh, helps loads. But still, I could swear to you right now that I have nipples (she says right before looking down her shirt - thus confirming the absence of said nipples).

    12 Answers from the Community

    12 answers
    • Sunnydays' Avatar
      Sunnydays

      I got chilled the other day and also had the sensation that my nipples were reacting and also had to look to see if they had "regrown". One can only hope! When I get "fills" I feel the needle go in alternating from one week on one side, then the next week, I feel the needle on the other side. This is strange. But I'm hoping that some feeling is coming back.

      over 9 years ago
    • DaveWaz's Avatar
      DaveWaz

      leepenn,
      As always, thank you for sharing your experience! I hope all is well.

      Thank you for your question. I hope all is well.

      Your comments reminded me of some content we have on the site about mastectomy and double mastectomy.

      http://www.whatnext.com/experiences/procedure/mastectomy
      http://www.whatnext.com/experiences/procedure/double-mastectomy

      One more thing, I wanted to let other WhatNexters know about our Beginner's Guide to Cancer, which includes a guide on how women chose between a lumpectomy and mastectomy.

      https://www.whatnext.com/cc/how_we_chose_between_a_lumpectomy_and_mastectomy

      Best of luck to all,
      David

      almost 8 years ago
    • Cbenavidez's Avatar
      Cbenavidez

      I am 8 months out from a double mastectomy. I will have nipple reconstruction in a couple of weeks. I too experience these sensations and am glad it can be normal if not comman. I don't have any of the pain that others have described, but I do have the tightness and discomfort of these new implants. I hope that improves over time. I think I will be able to feel the tattooing and that frightens me. I feel my skin and the touching. I'm only numb under my arm where the lymph node was removed. This has been a journey. Praying for the strength in all who face this difficult road.

      almost 2 years ago

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