• Placebos in clinical trials for cancer treatment?

    Asked by MarciaLynn on Tuesday, October 16, 2018

    Placebos in clinical trials for cancer treatment?

    Not really a "question" and not limited to NHL, but I have read and heard conflicting information on whether they use placebos in clinical trials for cancer treatment. So, having an "inquiring mind," I googled the question and came across several informative articles from reputable sources. I've listed a few of them here if anyone is interested. AND, as with most topics, the information from reliable sources also seems contradictive.

    https://www.cancer.net/research-and-advocacy/clinical-trials/placebos-cancer-clinical-trials

    https://www.oncnursingnews.com/publications/oncology-nurse/2018/august-2018/exploring-the-use-of-placebo-in-cancer-clinical-trials

    https://www.pancan.org/facing-pancreatic-cancer/treatment/treatment-types/clinical-trials/common-concerns-about-clinical-trials/

    10/16/18

    5 Answers from the Community

    5 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I was in a clinical trial for four years and would join another in a heartbeat if I could. I loved being in the trial.

      I probably do know someone who didn't enjoy being in a trial, but I can't think of who that is. Everyone that comes to mind that has been in a trial has thoroughly enjoyed it.

      Naturally, everyone has to make their own decision. I think the most important thing of all to know about reputable clinical trials is that you can get out of one for any reason at any time. You're not stuck in one even if you sign up to participate.

      The trial I was in tested a drug (I didn't know it at the time, but it turned out to be Opdivo) against docetaxel. Mine wasn't a blind trial so I would know which arm I got selected for. I didn't tell the researchers, but I had already made up my mind that if I got chosen for the docetaxel group, I was dropping out and waiting on another trial. Thankfully, I got chosen for the trial drug.

      11 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      The Bonnie J Addario Lung Cancer Foundation is doing a video on clinical trials and why they are important tonight!

      Clinical Trials & Why They Are Important
      Speaker: Dr. Jacob Sands, Dana-Farber Cancer Institute

      It is going to be on Facebook Live at 5:30 PDT. https://www.facebook.com/BJALCF

      11 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Generally, with cancer and other life-threatening diseases, the clinical trial is the new drug vs usual protocol treatment for the specific condition. So maybe new drug vs standard chemo or what have you. With less serious conditions, they may use placebos, but not when it's detrimental to a person's life.

      11 months ago
    • po18guy's Avatar
      po18guy

      Much of this is an old myth, right up there with "If you have cancer you are going to die." Just ask! It is generally considered irresponsible to not treat active cancer - even with the patient's knowledge. Would that not subject the sponsoring company to $$$ in lawsuits?

      If there is any doubt whatsoever, just ask! Clinical trials are the only way - the only way - in which medical science is advanced. I am alive today solely because of the first trial I participated in. I very highly recommend them, especially to those with relapsed or otherwise difficult cancers.

      Want a placebo? Try "alternative" treatment.

      11 months ago
    • SandiA's Avatar
      SandiA

      I did a clinical trial and it was a positive experience. I had to withdraw before I completed it due to side effects but if I had to do it all over again I would. Great experience!

      11 months ago

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