• port placement this morning... nervous!

    Asked by HearMeRoar on Friday, March 1, 2013

    port placement this morning... nervous!

    Can't sleep! What's it like having a port? My twin hated hers and got blood clots around it. Tell me about yours.

    27 Answers from the Community

    27 answers
    • Debbie's Avatar

      HMR- I was scared too but it wasn't bad at all. Some swelling for a few days and a bit of soreness but not painful. It find't affect my daily living at all. No complications during the 5 months it was in place. Think of it as just one more skirmish in your war against the [email redacted] cancer. Sending good thoughts your way.

      over 5 years ago
    • SueRae1's Avatar

      Ports are wonderful. I love mine. The procedure takes about 45 min - and they use a local anesthetic and what I like to call "super strength" Valium to keep you calm. The only problem I had is that my head was turned to the left during the whole procedure (my port in on my right side) and I had a crick in my neck for about a week. I have not had any issues with it since it was put in at the beginning of August. In fact it may my infusions less painful, as my veins were become fragile and unusable.

      over 5 years ago
    • SueRae1's Avatar

      BTW good luck.

      over 5 years ago
    • karen1956's Avatar

      My port was in my upper left arm....and it was great!! It was well used....for 6 chemos, them for IV hydration for 3 days after each chemo....it did get infected but it didn't go into the blood and IV antibiotics for 3 days and oral antibiotics cleared it up....I had my port put in the morning before my first chemo...done with only valium....other than being a long day, it wasn't too bad....I would get a port again if G-d forbid I ever have to go down this journey again.....

      over 5 years ago
    • GregP_WN's Avatar

      Like the others have said, the port is wonderful, I would sacrifice what I had to for the procedure to get one again. Even at that, the procedure to put in is nothing.

      over 5 years ago
    • cris' Avatar

      I was nervous too, but it only took about 45 minutes and when I woke up I felt fine, just alittle sore. I love mine, it so much easier everytime I went and have chemo & they had to take my blood, it didn't hurt at all., Also Monday they are going to use my port with my surgery, makes it that much better, I have had mine in since september & at times I forget it's there, best of luck to you.....

      over 5 years ago
    • BuckeyeShelby's Avatar

      Didn't get a port. Just popping in to wish you all the best w/the procedure. Sounds like it should be relatively quick & painless.

      over 5 years ago
    • HeidiJo's Avatar

      It was fine, I didn't have any pain or issues, I was protective of it because if someone bumped it, it would hurt a little. But it was my lifeline and I ended up growing a strange attachment to it!

      over 5 years ago
    • ticklingcancer's Avatar

      This is a piece of cake!!! Nothing to be nervous about. It’s a simple quick procedure. Not too much discomfort afterwards and makes your infusions much easier. They will probably give you numbing cream to put on it before you receive your chemo but I didn't like the cream. There is a spray you can get. It's really cold and freezes the first couple of layers of skin. You won't ever feel the needle going in the port. I'll get the name of the spray for you. It's a prescription spray so you will have to ask you Oncologist for it.

      over 5 years ago
    • janets' Avatar

      I have a port and have had no problems with it. I have had it for 7 months. if you will need chemo, it will be very beneficial for you

      over 5 years ago
    • Ydnar2xer's Avatar

      I loved my 2 ports, but they didn't love me! I fell down, landing on the first one, which broke it into two (non-working) pieces. It was removed then and a new one put in. The second one got infected, causing a lot of fluid buildup which needed continuous aspiration--(and those constant "drainings" gave me continuous perspiration!) So the second one was removed, too. I was going to get a third to make my Herceptin infusions easier, but when I realized I only have 10 more treatments, I figured I'd skip the third port. My surgeon says that a few people (like me) tend to reject ports--that they have problems with them. But most people do just fine with them. Good luck. Either putting the port in or taking it out, neither really hurt. I understand how any surgery can be nerve-wracking, though!

      over 5 years ago
    • HearMeRoar's Avatar

      Hi! I had the worst experience ever. I was told I would have strong drugs and be unaware.of what was happening. I was wide awake and nervous, not calm. I was expecting the versed feeling I had during my biopsy and my mastectomy. I was anxious and stressed and nobody tried to calm me down or be kind. I was and still am angry. Thanks for listening. Love you guys!!

      over 5 years ago
    • Giraffe's Avatar

      My port is in my left chest. Best thing I ever did. No issues.

      over 5 years ago
    • Deidre's Avatar

      Very sorry to hear about your experience this morning. I was completely out during the procedure, at least I don't remember it! It will save your veins during the chemo though. Plus it is over with now, so that is something to be thankful for. One more hurdle you have passed - yeah!

      over 5 years ago
    • kickinit's Avatar

      I was scared also. Have mine now for about 3 months and I love it. Makes getting chemo so much easier.

      over 5 years ago
    • szbc's Avatar

      Sorry to hear your bad experience.
      my first one was put in 3 weeks ago under general surgery, left side, hurt to the armpit from the time I woke up. 10 days later it was removed, caused clots in left arm, still on blood thinners and left arm swelled 3x.
      second port put in right side 4 days ago, this one is working, only slight pain.

      over 5 years ago
    • JennyMiller's Avatar

      My port placement was done in a "mini operating room" of the office complex. I was given something to relax me but I was awake. The Doctor and Nurses were compassionate and caring. It went well -- afterwards, I went wig shopping. I had it removed at the same facility -- and the only thing that hurt (and it really did) was the needle they used to freeze the area. The male nurse sat next to me and told me to squeeze his hand and I did -- 5 minutes later, he asked if he could have his hand back -- LOL! Having the Port for chemo was a blessing as I do not have the veins that I would have needed. It did not cause me any discomfort or problems but I was very aware of its presence and felt a sense of freedom when it was removed. Good Luck!

      over 5 years ago
    • myb's Avatar

      I had my port put in on Friday and started chemo on Tue. I had some soreness with the site that Wed afterwards when I was walking which my Onc and home nurse thought was due to the port being so new. It went away by the next day after taking some tylenol. Otherwise no issues and in fact still have my port since I finished chemo in Sept. I have to get the port flushed every 4 to 6 weeks to keep it active. When I get the All Clear with my next 3 month appointment, I can then schedule surgery to remove the port.

      The port was so easily accessed every time where finding a vein in my arms or hands proves difficult at times and has led to much bruising.

      I was put under for the surgery and am debating the same for removal of the port.

      over 5 years ago
    • GregA0406's Avatar

      Nothing to worry about. I've had my port for over a year. It makes access so much easier. I had a bit of soreness when they put it in but hardly used anything for pain afterwards. Best of Luck!

      over 5 years ago
    • EllasDaddy's Avatar

      I got mine after the first round of chemo. I have an allergy to needles, no not really I just hate getting stuck. Our oldest son didn't have one 12 years ago and the chemo ruined his veins. I like having mine. They use a much smaller needle and with a little shot a freeze spray just before they insert the needle I don't feel a thing.
      I will say I am very guarded about it getting hit and I have a hard time touching it. But that is just my silly mind. I am apprehensive about having it removed too soon and want to be knocked out like they did when they put it in. Again just the way my mind is.

      over 5 years ago
    • Marc's Avatar

      The person I know who had a chest port said she was very glad she did because it made infusions much better to deal with than a fresh injection every time she went in for chemo. She says she did feel a vibrating sensation from time to time if it brushed against the vessel wall, but once she'd been told that it was not a health threat or a sign that something had "gone wrong," she was able to cope with those occurrences just fine. Hope this is useful. Best wishes!

      over 5 years ago
    • mkjetset's Avatar

      Good morning, HearMeRoar. I hope you are waking up comfortable today and that your surgery went well. I have had my port since Oct 2012. I have had an easy time, so far, with my port. It made receiving chemo pretty simple. I was continuously infused by pump for 5 days, two times during my six weeks of radiation (weeks 1 and 5). So ten days total. Now, I have it flushed once a month and continue to have blood drawn through it. My only complaint is that the area around it itches sometimes and gets sore if I sleep on my right side. I do admit that I was initially apprehensive about having a catheter thread into my vena cava via my jugular. I got used to it after about a week or so. You have found a remarkable community of people here who are all cheering you on. We are here for you!

      over 5 years ago
    • bigpittstop's Avatar

      The port made all the difference. I took my first treatment without it and immediately scheduled the placement surgery. Just talk to your doc. I got clots, but he told me to take an aspirin and it went away. That was during the year after treatment when we left it in just in case. That was the only surgery I've ever had and it was super easy. I also got some numbing cream that I would put on it in my way to treatment and that wa helpful. I just put it on there and covered it with glad press and seal wrap. It was great. Just think of your port as a life line to healing! You'll be glAd you did it

      over 5 years ago
    • jantenaj's Avatar

      I know by now you have already had your port put in. I had no problems having mine put in. I have had it almost 6 years now, and have only had a couple of times in those 6 years that they had a little issue and had to flush it a couple of times. I go every 3 weeks for treatments so it has been extremely helpful since I have always had horrible veins. Good luck.

      over 5 years ago
    • barbaraanne's Avatar

      I see this post was from March 2013, so let me ask you "how did it go"? I have to get a port sometime within the next 2 weeks. When I did chemo the 1st time around I didn't get a port. Unfortunately, I have to get chemo again, and the Onc said I need a port , cause this medicine (Red Devil) is stronger, & my veins are thinner now from all the IV's and blood work. Thanks. and I hope you are doing well..

      about 5 years ago
    • DaveWaz's Avatar


      It seems like each WhatNexter's port experience varies. For those of you that are still seeking advice on getting a port for chemo, here are two articles you might want to take a look at.

      The first is a beginner's guide on getting a port for chemo:


      The second is a blog article on "To port or not to port?" where WhatNexters weigh in on chemo ports:


      I hope you find this information useful! As always thank you for your input.

      almost 5 years ago
    • cancerfighter's Avatar

      I had my first port for 17 years. It didn't give me any problems. Had chemo and my veins disappeared. Have had cancer return to have a new one 5 years ago. I use it still for blood test, just go get it flushed every 6 weeks. Better than being stuck over and over trying to find a vein. I sleep well with it and no blood clots at all.

      almost 5 years ago

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