• Port removal after 6 months of remission

    Asked by LeeWalker on Sunday, August 13, 2017

    Port removal after 6 months of remission

    I hear that infection and blood clots are possible leaving the port in, if I don't need it anymore for now.

    14 Answers from the Community

    14 answers
    • GregP_WN's Avatar

      I left mine in for 15 years before having it taken out, never had any problems at all. I finally let them take it out, then was diagnosed for my 3rd time 3 years later.

      over 3 years ago
    • LiveWithCancer's Avatar

      Greg, was there any problem with getting a new Port when you got your 3rd diagnosis?

      over 3 years ago
    • GregP_WN's Avatar

      Lucky for me that I didn't have to have chemo in the third Dx, but there was not supposed to be a problem with getting another put in.

      over 3 years ago
    • lh25's Avatar

      I had mine out about a week before the one year anniversary of my last chemo. It wasn't causing problems, but I didn't want to get if flushed, and they said if I ever needed another one it would be fine.

      It's a nice emotional lift to not have it anymore, much as I loved it to make treatments easier.

      over 3 years ago
    • cards7up's Avatar

      You just have to continue to have it flushed and checked. It's rare to have it removed in under a year. I know people like Greg that have had theirs for years with no issue. The one I know had an issue was when she was in treatment,she had a blood clot.They removed that one and put another one in.

      over 3 years ago
    • Lynne-I-Am's Avatar

      I have had mine now for four years I ended treatment 31/2 years ago. I get it flushed every six months. Have had no problems with it. It was a personal decision that my doctor agreed with. I certainly understand those who want it removed immediately after treatment. I heard that if it is removed and then has to be reinserted, they usually place the new port on the opposite side of the chest from where the first port was placed.

      over 3 years ago
    • Lynne-I-Am's Avatar

      I get it flushed every six weeks, not months. Lol

      over 3 years ago
    • Ejourneys' Avatar

      I miss my port. It made blood work SO much easier for me.
      My port was removed 15 months after I finished chemo because it gave me a blood clot. I was told that blood clots occur in only about 3 percent of people with ports. Guess I'm special. ;-p

      over 3 years ago
    • Skyemberr's Avatar

      @Ejourneys we all know you're special!! :)

      I had planned to leave mine in for a year after NED, but my first scan revealed something new so I get to keep my port for a few years. I don't mind. It saved my veins from terrible chemicals!!

      I understand wanting it out though. I was just in Alaska and the backpack strap was grinding it into my shoulder. It is what it is I guess. I'm happy you can get yours out!

      over 3 years ago
    • Jalemans' Avatar

      My onc said it was up to me. Having to go in to get it flushed was inconvenient & then I had an issue with the line & had to have it out. They offered to replace it but told me no issue having a new one put in if it became necessary. So, I just had it removed.

      over 3 years ago
    • Ashera's Avatar

      My port was very painful - from the beginning - Was told it was 'resting' on a nerve. I had it in for 15 months - as I had to have one year of Herceptin even after the 6 rounds of big chemo was completed. I could not wait...to get that out of my chest - and told my surgeon if he didn't do it soon - I would take a butter knife and do it myself! He listened. Other people I know didn't even know they had a port. But mine stayed painful...

      over 3 years ago
    • kalindria's Avatar

      I was about to have my port removed after 2.5 years when I had a recurrence. Now I think I'll just keep it unless there's a reason to remove it.

      over 3 years ago
    • still_fighting's Avatar

      I'm on my 4th port since 2008. It depends on the cancer and if you are on treatments. I have CLL with 17p deletion which is the hard to treat kind. I asked if I could have mine removed and my chemo team said I will have mine forever. So far I've had this one for 2 years. The chemo drugs are so toxic they erode after awhile. I've had them punctured (a freak accident), split, bubble and clog because I waited too long to have it flushed...learned my lesson there! The first 2 didn't hurt at all the 3rd one was very sore because of all the scar buildup but this one didn't hurt at all and I had treatment 3 days later. So it really just depends...good luck and keep fighting!

      over 3 years ago
    • GailB's Avatar

      I have heard that they take them out because of infections and problems, but I have had mine in for 4 yrs. I kept it because my thought was if I keep it I won't need it, if I take it out I will need it basically if I keep it the CLL won't come back if it take it out it will. Crazy I know but that is what it was. I actually have used it a lot and not for treating the CLL but for other illnesses and infections. It is now not working has a sheath over the end, had a study done of it and what they said was because it has a turn at the end that is more than likely why the sheath has developed that they were not able to get it off and over time it has just gotten bigger and thicker until it got to the point that it takes too much pressure to push anything thru it and it is more than the pumps can/will push and they shut off. I am having it replaced with multiple line but that will only be in temporarily. How they put them in makes a difference in if they are temporary or long term. The temporary ones are placed just under the skin and the long term ones are place deeper under the muscle I believe. I have liked having mine because my veins will give blood but they don't not take things very well and they tend blow out. The only reason I agreed to get it was because on the first day it took 7 veins to get the infusions and I had to give in and get it. I spoke to a surgeon that puts them in locally and he said it doesn't make any difference if I have this one taken out and another one immediately put back in or if it is take out and then later on another one put in. MD Anderson does not put them in to leave them, they only put them in temporarily and remove them that is their policy. Since I am entering a Trial at MD Anderson got to follow their policy.

      about 3 years ago

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