• Post Bone Marrow Transplant status

    Asked by Charlieb on Saturday, August 18, 2012

    Post Bone Marrow Transplant status

    70 days post transplant had proteins checked. Levels still are not good and doc may put me back on Revlimid. I thought transplant was suppose to give me 5 to 7 years. How are other people doing after bone marrow transplant?

    9 Answers from the Community

    9 answers
    • TheEvilyn8's Avatar
      TheEvilyn8 (Best Answer!)

      Charlieb....keep us posted. Although I have not had any transplants, I can tell you that each person is different and what happens to me or you...many not count in someone else's case. I hope you fight fight fight...and never give up hope. Good luck. Fight's On!

      almost 6 years ago
    • MyelomaTeacher's Avatar

      I had a SCT in February 2009. I was disappointed to learn that after 100 days I only achieved a minimal response. I started taking Thalomid which worked great but I began to develop PN so I was switched to RVD. I have learned I am slow to respond to treatment. I just began Cycle 27 of RVD and I am still rsponding, I am now in a VGPR and feel great,

      almost 6 years ago
    • Charlieb's Avatar

      Whoops tried to respond to The Evilyn8 and hit best answer. know everyone responds differently to treatment. What I am interested in is other peoples experience with transplant. Thanks.

      almost 6 years ago
    • lansford_cub's Avatar

      Same results for me. Had SCT over three years ago. Went back on Rev/Dex after 4 months. M-Spike didn't increase but use it as a maintenance regime - I guess. Numbers have remained rock solid for the last 3+ years. I figure it would be a maintenance program much like diabetes or high blood pressure (though we know its not).

      I don't think this is unusual to start back up with Rev - article from New England Journal of Medicine http://www.nejm.org/doi/full/10.1056/NEJMoa1114083.

      By not good do you actually mean not great? In my case post-transplant levels were greatly improved vs pre-transplant - to me that is good even hough they are not at zero.

      almost 6 years ago
    • Gma's Avatar

      I am 6 years out and doing well. My m protein started showing in my blood in May after being absent for almost 6 years. It has remained at 0.1 so we are watching for now. Best of luck to you. hang in there.

      almost 6 years ago
    • Constable's Avatar

      Hi, Charlie: My team has me taking a Revlimid capsule every night. And I get an infusion of Zometa thru my PowerPort once a month. I look at these as just a part of life, just like the BP med I take. Sure, I'd rather not have to take them, but at my age and stage of life (I'm 69, retired college faculty and a reserve police officer) I'm delighted to be doing what I want to do just about every day! As a part of my walking program with my wife i'VE BEGUN RUNNING AGAIN - NOT FAR (YET!) AND NOT FAST (YET!), but running. I had my SCT on 2 NOV 11, came home from the hospital on the 15th and was told 3 mos later I was in remission, and to "Go live your life." As TheEvilyn8 said, each person is different, and my story may be different from yours. (Although we DO have the same barber!)

      almost 6 years ago
    • mrsdoc2's Avatar

      my husband is almost 4 months post transplant and he still has a trace of protein in his blood..he is on revlimid as a maintenance therapy.

      over 5 years ago
    • Gma's Avatar

      Unfortunately, it doesn't work for everyone. Many people have to go on maintenance Revlimid post transplant. My friend achieved remission months after transplant while on Revlimid.

      over 4 years ago
    • LadyLib's Avatar

      From some of the most recent studies, post transplant protocol is now a maintenance therapy drug of some type. To go "drug free" is no longer recommended.

      over 4 years ago

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