• Price of Temodar

    Asked by sherryhalpert on Tuesday, November 12, 2013

    Price of Temodar

    Is anyone comfortable sharing how much they pay for Temodar? Is this full price or copay? How about generic temodar? We are having trouble getting my husbands Temodar because the insurance company says it's a pill and the prescription coverage company says it's chemotherapy. If it's chemotherapy it is covered by insurance and no out of pocket expense. If it is a pill we have to pay either a copay or full price. The doctor WILL prescribe generic. Just waiting to hear what the two companies decide between themselves. UGH!

    12 Answers from the Community

    12 answers
    • Fusionera's Avatar

      Hi Sherry,

      There is no generic for Temodar available that I am aware of as it is too new (approved by the FDA in 2000). Temozolomide is marketed as Temodar. I always paid a copay of $10.00. I hope you don't have to pay some horrible out of pocket amount.


      over 7 years ago
    • stillerfan's Avatar

      Temodar is a good form of chemo. I had a reoccurance of a tumor in my brain at the same site as the oringinal. We used a group called Cancer Cares to cover the coopay of $1200. My wife found it. I am not sure what the original cost was.

      over 7 years ago
    • LuckyDogs' Avatar

      I only ever paid for the co-pay, it is considered a chemotherapy drug. My prescription plan covered this as part of my treatment. Temozolomide (brand names Temodar and Temodal and Temcad) is an oral chemotherapy drug. It is an alkylating agent used for the treatment of Grade IV astrocytoma — an aggressive brain tumor, also known as glioblastoma multiforme — as well as for treating melanoma, a form of skin cancer.

      over 7 years ago
    • retired1's Avatar

      I just stopped taking Temodar Oct 7th after 4 years and 11 months. Yes, ever since December 15, 2008 I have been taking 250 mg for 5 days and off 3 weeks. I was paying about $542.00 per pill. Out of this price I was paying a $60.00 copay. As far as generic I have never heard of a generic brand. FYI after 5 years of treatments and surgery I continue to do very well. And I thank GOD and my team of doctors for my success


      over 7 years ago
    • marlo1130's Avatar

      You can contact the company that makes it...Merck...and they can help you[phone number redacted]

      over 7 years ago
    • creed0608's Avatar

      We had to do the mail order route or it would have cost a lot...but with the mail order, we only paid a minimal co pay. Good luck,

      over 7 years ago
    • cancercoach's Avatar

      The first time I went to fill the RX for Temodar, I checked all over, and the only pharmacy that had it was the Walgreens at the hospital. That should have been my clue that there is a specialty pharmacy option. (Not sure why no one thinks to help the patient navigate this unfamiliar territory.) Anyway, that first order was nearly $700! I was ready to give up at that point, because there was no way I could afford that every month! However, I contacted the insurance company (Aetna) and they have a specialty pharmacy that covers those kinds of drugs. Their price and the insurance coverage made the co-pay affordable, and it was sent to me FedEx every month following the order I called in. It IS chemotherapy, just in pill form rather than injectable/intravenous. It may help if your oncologist sent the order directly to the insurance company with the codes and descriptions needed to satisfy them.

      over 7 years ago
    • sbmontgomery's Avatar

      I was given 6 weeks of the drug. I paid $75.00 with the insurance. When I got the insurance statement it listed the drug as costing $12,500.00 for the six week supply.

      over 7 years ago
    • opalc's Avatar

      My mom has brain cancer for 10 years she had 4 surgerys and now has a hole in her brain the size of a 50 cent piece and has been on and off of temodar for years and she is low income on social security she went to our local cancer center and she filled out some paperwork and now medicare pays it in full no co pays or anything so I would ask your dr about it her pharmacist actually told her about it I hopes this helps in some way

      over 7 years ago
    • jbuchikos23's Avatar

      RX Crossroads Pharmacy. The ACT Program.[phone number redacted] It is income based. My husband's initial dosage of 180 mg for 28 days was $13,000.00. During my phone interview I was asked financial questions and if paying for the temodar would impose a financial hardship on my family. YES!! Every month that wonderful company sends my husband his medication within a few days with a simple phone call. And you only have to renew your application yearly.

      over 7 years ago
    • Kjay's Avatar

      I pay $85 per prescription, which is the max pharmacy co-pay on my plan. I know that without insurance the 5 monthly pills would be around $2,000. Merck has a generous patient support program for those without insurance coverage.

      over 7 years ago
    • Kjay's Avatar

      Sorry, meant to mention that the site goodrx.com is very helpful when comparison shopping for prescriptions, also!

      over 7 years ago

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