• proton beam therapy

    Asked by utpitt75 on Saturday, June 10, 2017

    proton beam therapy

    Has anyone with large b cell mediastinal lymphoma had proton beam therapy? I've just received my 3rd of 6 R-chop chemo and am looking into if I should go somewhere else and have proton therapy instead of regular radiation. I would love to know others experiences.

    5 Answers from the Community

    5 answers
    • grandmafran's Avatar

      I only know that it was recommended to me by a doctor whose mother had it. He spoke highly of it.
      My lymphoma was too widespread at the time to investigate further.
      Good luck! I am 23 years out now. Several recurrences but thank God for Rituxan.

      almost 3 years ago
    • jhale17's Avatar

      I am no expert on this but let talk about some options. R-CHOP has been the gold standard for BLBC NHL with follow up external radiation. I had twenty-four radiation treatment after CHOP in 2000. Your question is about what is the best radiation to use.

      Proton beam is used for pen-point targeting of a small area virus regular radiation targeting a larger general area. I know that prostate and brain cancer use proton beam when the cancer is seen as localized and isolated spot and there is no need to expose surrounding areas.

      You are dealing with a blood cancer that may not be localized at the cellular level and cannot be seen in a CT or PET scan. If that were the case then it may be appropriate to expose a larger area. Therefore, not requiring the Proton Beam.

      I suggest you ask the doctor which one is best for your situation and why.

      almost 3 years ago
    • aracooper's Avatar

      How are you responding to the RCHOP? Is it working? Are you suggesting stopping RCHOP?
      I too had Stage IV Diffuse Large B Cell Lymphoma in 2010. I was treated solely with RCHOP and fortunately I continue to be cancer free. If RCHOP is working and your oncologist recommends you continue this course of treatment you may want to consider it.

      almost 3 years ago
    • utpitt75's Avatar

      I have had my 3rd r-chop and after 6 they will give me radiation. I wanted to get you opinions so i could ask the dr about it. My lymphoma began the mediastinal and thats where the radiation would be so it is isolated. I'm trying to study about the damage it could cause to my heart because before this i was an avid runner and biker and am only 42. I am by no means stopping my chemo. I have my first scan since beginning treatment in a week so we will know how well it is working then. But they have already explained i will have to have radiation but the closest proton radiation is 5 hours away which isn't a problem is it works better and cause less damage to my heart and or lungs.

      almost 3 years ago
    • wizzard7's Avatar

      I had mediastinal non-hodgkin's lymphoma with a tumor the size of a softball and unable to swallow food. This was 1995 and I had 8 months of CHOP actually lifetime doses and NO radiation. I have been cancer free, I have chemo brain and type II Diabetes but glad to be alive. Thing is I had no radiation and I watched my wife go through breast cancer with 30 days of radiation and it was hard for her to deal with it. Get a second opinion on Rad

      over 2 years ago

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