• Question on CT Scans for long term Stave IV survivors

    Asked by Jayne on Friday, December 4, 2020

    Question on CT Scans for long term Stave IV survivors

    Hi everyone, to any the long term survivors on this site, what is the follow up plan for your CT scan schedule post NED? I thought I was having my last one in November but this new Oncologist believes in doing a full 10 years of follow up of scans from the date of my last occurrence. He says this is reasonable given the Stage of the cancer. Just curious what others are hearing. If I think back on the number of scans I've had since 2005, it's frightening but I guess having one more won't matter much.

    7 Answers from the Community

    7 answers
    • SurvivorSusan's Avatar

      My last treatment for stage IV colon cancer was 2010. My oncologist went to scans every two years after 2015. Then I had a new and entirely different type of cancer appear in 2019 (esophageal cancer - squamous cell type) and recurred in 2020. So I'm back to getting frequent scans but I had been told that I'd go to scans every 5 years after the 10 year clear mark.

      3 months ago
    • alivenwell's Avatar

      I was diagnosed in 2012 and NED in 2014. I had at least 3 CT Scans during that timeframe. I suppose another CT Scan would be a good idea after ten years. I did colonoscopies and one CEA Marker test. If a friend did not push me to get the first colonoscopy, I would not have known cancer was in there. CT Scans pick up cancer tumors that are the size of a grain of rice.
      Good luck!

      3 months ago
    • LiveWithCancer's Avatar

      I have a friend who was diagnosed stage IV small cell lung cancer. She crossed her 10 year anniversary and shortly thereafter, her cancer took off and she passed away a few months ago. She isn't my only friend whose lung cancer took off after the 10 year anniversary ... and it took their lives when it did. Good for your oncologist for wanting to keep an eye on your NED status!

      3 months ago

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