• Radiation for unusual type of sarcoma

    Asked by PattiJ on Friday, March 7, 2014

    Radiation for unusual type of sarcoma

    Hello,

    I just signed up at this site, and this is my first question or post.

    I was recently diagnosed with sclerosing epithelioid fibrosarcoma, removed from the mediasteinal region of my chest in mid-January. This specific diagnosis isn't listed, on this site, and even the cancer center sarcoma specialists haven't seen this particular sub-type of sarcoma. They recommend radiation. Does anyone have experience with radiation in the mediasteinum? Or with sarcoma in the chest anywhere? At first they said it was low-grade, and now they say it's high grade.

    I'm scared, overwhelmed, and still feeling whupped and exhausted from the surgery.I'm trying to stay positive for my family - and for myself, but it's hard. I just wanted to reach out to someone else who has been - or who is - in a similar place. And I'm wondering what's next.

    2 Answers from the Community

    • GregP_WN's Avatar
      GregP_WN

      Welcome to WhatNext, I can't say anything about that type of cancer, but I did get radiation to the chest 27 years ago. Not much to it, very few side effects from that. Someone else will probably have some more information about radiation to the chest.

      about 6 years ago
    • KiscoKid's Avatar
      KiscoKid

      PattiJ, Hi, its the Kisco Kid and this is my first post. I too was recently diagnosed with SEF, a tumor in my left thigh, had it removed in April of 2014 and now I'm getting follow up radiation. Since this is a "rare bird" I'm looking to share advice and support with others in our small group. So far my radiation seems to be going well but I am still learning daily about this challenge, it seems like the side effects can be very different depending upon the focus of the radiation. In my case one margin wasn't totally clean so it was a group/tumor board decision to go for the radiation. Regards, Kisco Kid.

      almost 6 years ago

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