• radiation help

    Asked by bjsatpeace on Thursday, November 14, 2013

    radiation help

    I am having trouble finding a way to get to my future radiation treatments my surgey is the tuesday before thanksgiving but live a 2 hour car ride to nearest treatment center what can I do?

    16 Answers from the Community

    16 answers
    • glam's Avatar
      glam

      Call the facility to see if they have or they know about a special service for patients....there most be other people in your situation so they probably can give you a good tip or point a kind of service that you could use....Also talk with your neighbors to see if nobody is going to have to do this trip for any different reason, or look on internet to see if there are offered transportation services.....I hope you can get it coordinated soon so you don't get stressed because of this logistic thing and you do not deserve any additional stress than the one we already live with this diagnosis.....wishing you all the best and a successful surgery/radiation treatment....with your permission I will keep you in my prayers....God bless you and continue blessing all of us

      over 6 years ago
    • geekling's Avatar
      geekling

      That isn't the sort of ride one can do every day even while healthy.

      A dude I knew in youth was in your circumstance and he rented a small place near to the hospital for the duration of his 2 month treatment.

      Another friend was offered accommodations by the center where she was getting assistance.

      Yet another friend was given daily cab fare for the 45 minute trip and I was lucky to have someone in my life who didn't have a car. We traded for the duration. I got rides to and from the hospital and she got my car for the duration. She tired of the arrangement before treatment was done. She couldn't handle my depression. In truth, it was other than easy to get myself to the hospital which was 1/2 hour or less away (depending on traffic) at the time. The hospital had a van but that was even worse and more time consuming.

      One of the worst days was when I had to stop to refill a prescription. The *&^%$#@ pharmacy gave me generic instead of brand name happy pills. They weren't nearly as strong. That was the night I realized I could double or even triple up my happy pills with no problem. The doctor tried to give me an argument when I asked for a replacement prescription the next day.

      This was just another step in my total disillusionment with cancer centers. It isn't like the painkillers ever really did much except to give me a new way to count time; from pill to pill instead of hour to hour.

      I'm so unhappy to mention that cancer treatments are not walks in the park and, in truth, are entirely intolerable. People get through them because they no longer believe they have other choices. Do whatever you can to make things easier on yourself and pamper yourself as much as possible. You will be grateful to yourself for every nicety you arranged.

      Best wishes for a return to good health.

      over 6 years ago
    • lilymadeline's Avatar
      lilymadeline

      Call your oncologist office and explain the situation, let them know that you urgently need help and a referral to a social worker at the hospital, or their patient services, whatever department they have there to help people while undergoing cancer treatments. Usually they can offer free rides to and from treatment, my hospital gives free taxi vouchers if they can't arrange free medical transportation with a van. There should be something for you, especially if you are in treatment at a cancer center because there is so great a need for transportation, most people cannot drive themselves to and from treatment....and after radiation a two hour drive will probably be far too exhausting. I'm sure that your hospital can help you just have to ask for it. But if they can't now is the time to call friends and relatives to ask for help. Most people really want to help and it makes them feel good to be able to do something! And having a friend drive you to and from radiation is much easier than chemo, because radiation treatments are usually only a few minutes long, isn't that nice? And by the way, I am so sorry that you have to do this Thanksgiving week! Take care and good luck! xoxoxoxoxoxo

      over 6 years ago
    • GregP_WN's Avatar
      GregP_WN

      Also call your local American Cancer Society Office, you can find your nearest office by calling 800 * 227 * 2345 ask for information on the Road to Recovery program. This is a program where local volunteers for the American Cancer Society will pick you up and get you to treatment then bring you home, free of charge. If you live in a moderately populated area, there should be a program available there.

      over 6 years ago
    • PaulineJ's Avatar
      PaulineJ

      I agree with everyone here.Esecially lilymadeline.
      Also,Do you have an insurance company that has a ride company that gives rides to your medical ,etc. appointments?

      over 6 years ago
    • Moka706's Avatar
      Moka706

      Can you look into a shortened form of radiation such as brachytherapy ? Then you might be able to stay near the facility for the time needed. Maybe one week? Best of luck to you.

      over 6 years ago
    • JennyMiller's Avatar
      JennyMiller

      I know from experience that there are usually accommodations available near medical facilities. I discovered a wonderful haven called the Sarah House. It is your home away from home. The bedrooms are individually decorated and cozy. There are 2 floors with a living room and kitchen on each floor. The kitchen is stocked -- and there is usually a pot of homemade soup simmering on the stove and a homemade dessert on the counter -- you just help yourself. Patients or family of patients can stay. One man had been there for months to be near his wife who was recovering from a serious motorcycle accident. The nightly rate is about $20. However there is a Grant in place where Breast Cancer Patients and their families can stay for free for as long or as often as they need. They provided rides to the hospital each morning and back each afternoon.
      Also, quite often, there is a shuttle service available for distant medical appointments. My niece was provided with a daily ride for her medical needs to a facility which was an hour away. It was a program whereby there was no charge. I really feel that you will be able to find a solution. I wish you the best.

      over 6 years ago
    • baridirects' Avatar
      baridirects

      I live about 45 minutes from my hospital, and it can get a bit much having to ride back and forth every day for treatments - I spend more time on the road than I actually do being treated - but I have always kept in mind that this is a temporary situation, and as such, can easily be dealt with. I use that commute time to my advantage, rehearsing my choral music in the car. I can see, though, where facing a two hour commute each way would be much more daunting.

      As Greg mentioned, your local ACS branch should be able to connect you with their Road To Recovery program, but even that's going to be onerous for you. Far better, as others have said, to look into your options for finding temporary housing close to your treatment center for the duration of your treatment. If you choose to, you can always go home on the weekends for a bit of respite, but this way, you won't further exhaust yourself by that long daily ride back and forth, and if you need additional care by your rad onc team, you'll be in the area to seek help quickly. Let me make a suggestion that you contact the social work department at the treatment center where you'll be going - they will be very much aware of what resources are available locally, and will be happy to help you connect with them.

      It's true that the logistics of this journey we are on can get frustrating, but there are answers out there...and this too shall pass.

      Sending you healing energy for your surgery and treatment to come!

      Namaste,
      Christine

      over 6 years ago
    • DorothyV's Avatar
      DorothyV

      Check with your local cancer society. Sometimes they can line up rides for you. Also check online for a local cancer support group. They can offer rides sometimes too. Praying you find a dependable ride. Good luck to you:)

      over 6 years ago
    • Marci's Avatar
      Marci

      If you are covered by insurance, see if the policy has an allowance for temporary housing while undergoing treatment. Some of them pay a daily rate which you can apply towards hotel or other housing duirng treatments. Express to them that you have to drive yourself and a four hour drive each day puts you at risk of incurring an accident due to fatigue. If you have insurance, are there alternatives with other facilities that may be closer? If you live in a very rural area - that may be the closest but at least you can check it out.
      Best wishes on your recovery.

      over 6 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      The easiest thing would be to call the American Cancer Society 800 number and tell them your problem. They can give you options, but the one I recommend is the Hope Lodge, which is FREE lodging for the patient and one other family member in one room for the duration of the radiation treatments in a lodge with other cancer patients. Transportation is provided to appointments. You qualify if you live 50 miles or more from treatment. I think it could be very pleasant to have the company of other patients to chat with. I believe there is a group kitchen and living room for people to use, which could be fun. I think it would be worth changing the location of your treatment just to be there. Good luck!

      over 6 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      The easiest thing would be to call the American Cancer Society 800 number and tell them your problem. They can give you options, but the one I recommend is the Hope Lodge, which is FREE lodging for the patient and one other family member in one room for the duration of the radiation treatments in a lodge with other cancer patients. Transportation is provided to appointments. You qualify if you live 50 miles or more from treatment. I think it could be very pleasant to have the company of other patients to chat with. I believe there is a group kitchen and living room for people to use, which could be fun. I think it would be worth changing the location of your treatment just to be there. Good luck!

      over 6 years ago
    • virginiab's Avatar
      virginiab

      If you are driving in your own car, keep track of mileage, as there is a tax deduction available for medical miles. Also, you can deduct lodging costs of up to $50 a night for medical purposes.

      Finding a facility that does a shorter protocol of radiation and has free housing could be a pretty good solution and might be worth travling a fairly long distance to reach.

      I wish you good hunting. A hospital social worker and the Cancer Society should be able to help you find what you need. That is just the sort of thing they do.

      over 6 years ago
    • meyati's Avatar
      meyati

      it can be pretty hard. I live in a place that's a paper tiger. The local ACS and clinics list resources that they don't have. Like transportation-yes vans- yes Okay you call the local ACS- they confirm that you are a cancer patient-that you really aren't an investigator from NYC. Then they call you back- the number they give is for the city bus system so you can ride a bus. Home care-Easy it is the senior meals on wheels. They say that they have temporary homes and lodging for cancer patients. That's Hotel 6. At first I complained-but ACS headquarters don't care- it would make them look like what they really are. I complained here, and I was stared at and told that I was greatly mistaken. I needed counseling-I live 6 blocks from the cancer center. When I had my first appointment with the oncologist, I had a bad feeling, and I wanted a neutral person to go in with me-perhaps somebody that would say, "You misunderstood. He meant so and so." my family would surround me- be biased, etc. The Nurse navigator was paid by the clinic. A person owes their allegiance to whoever pays them.

      I was picked for an ACS survey----the questions about care do not apply to situations like bjsatpeace has or what I wanted or actually went through. Yes I had surgery and radiation-and that's been about it. The survey asked about my connection with the survivor counseling-related to somebody with my type of cancer on the scale of 1-5- some were 1-10. Nowhere did it ask me if I had a rare cancer- where the cancer is-it's on my face.
      They asked about my emotional at that moment. They didn't have any place to say that my mother passed 3 weeks ago. She didn't want me and my brother to know-she has always been twisted and mean. My daughter is staying with the executor of the will-and she over heard him on the phone. She confirmed what happened-she had to promise that she wouldn't tell me or my brother. She immediately called her son, who told me and my son. My son called the executor and it was confirmed. I tried to contact my brother. I can't get hold of my brother-I am now scared that he was caught in the Philippines. I need to go to the AF chaplain, as he has a small book keeping business at Yomotan AFB, Okinawa, some other bases, USMC Camp Butler, etc. Then I was sick all summer from strep (May-Oct), and in Oct. I finally got a doctor that's working with my thyroid. There isn't anywhere to use that to qualify why my health is bad or right now I feel empty and drained. So I'm trying to fill out the survey as best as I can.

      over 6 years ago
    • Roadrunner's Avatar
      Roadrunner

      Greg nailed it of where to go for help. When I was in radiation there were MANY "Road To Recovery" drivers. Also, in our community both hospitals have "motel" rooms owned by the hospitals that are in or close to the facility. I know the cost of them is very low. The ACS in our area also offers help with paying for a place to stay. Right now I cannot think or find what it is called. If you are in a rural area does the aging council provide rides to your care center? Check with them as they may let you ride also. Do you have a veteran in your close family? The veterans in our rural communities have a van that bring veteran's family's to our city for care. Check with the local churches as they may provide transportation. Good luck.

      over 6 years ago
    • Gabba's Avatar
      Gabba

      Call Road to Recovery...you will find them through the American Vancer Society!

      over 6 years ago

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