• radiation help

    Asked by bjsatpeace on Thursday, November 14, 2013

    radiation help

    I am having trouble finding a way to get to my future radiation treatments my surgey is the tuesday before thanksgiving but live a 2 hour car ride to nearest treatment center what can I do?

    16 Answers from the Community

    16 answers
    • meyati's Avatar
      meyati

      it can be pretty hard. I live in a place that's a paper tiger. The local ACS and clinics list resources that they don't have. Like transportation-yes vans- yes Okay you call the local ACS- they confirm that you are a cancer patient-that you really aren't an investigator from NYC. Then they call you back- the number they give is for the city bus system so you can ride a bus. Home care-Easy it is the senior meals on wheels. They say that they have temporary homes and lodging for cancer patients. That's Hotel 6. At first I complained-but ACS headquarters don't care- it would make them look like what they really are. I complained here, and I was stared at and told that I was greatly mistaken. I needed counseling-I live 6 blocks from the cancer center. When I had my first appointment with the oncologist, I had a bad feeling, and I wanted a neutral person to go in with me-perhaps somebody that would say, "You misunderstood. He meant so and so." my family would surround me- be biased, etc. The Nurse navigator was paid by the clinic. A person owes their allegiance to whoever pays them.

      I was picked for an ACS survey----the questions about care do not apply to situations like bjsatpeace has or what I wanted or actually went through. Yes I had surgery and radiation-and that's been about it. The survey asked about my connection with the survivor counseling-related to somebody with my type of cancer on the scale of 1-5- some were 1-10. Nowhere did it ask me if I had a rare cancer- where the cancer is-it's on my face.
      They asked about my emotional at that moment. They didn't have any place to say that my mother passed 3 weeks ago. She didn't want me and my brother to know-she has always been twisted and mean. My daughter is staying with the executor of the will-and she over heard him on the phone. She confirmed what happened-she had to promise that she wouldn't tell me or my brother. She immediately called her son, who told me and my son. My son called the executor and it was confirmed. I tried to contact my brother. I can't get hold of my brother-I am now scared that he was caught in the Philippines. I need to go to the AF chaplain, as he has a small book keeping business at Yomotan AFB, Okinawa, some other bases, USMC Camp Butler, etc. Then I was sick all summer from strep (May-Oct), and in Oct. I finally got a doctor that's working with my thyroid. There isn't anywhere to use that to qualify why my health is bad or right now I feel empty and drained. So I'm trying to fill out the survey as best as I can.

      over 6 years ago
    • Roadrunner's Avatar
      Roadrunner

      Greg nailed it of where to go for help. When I was in radiation there were MANY "Road To Recovery" drivers. Also, in our community both hospitals have "motel" rooms owned by the hospitals that are in or close to the facility. I know the cost of them is very low. The ACS in our area also offers help with paying for a place to stay. Right now I cannot think or find what it is called. If you are in a rural area does the aging council provide rides to your care center? Check with them as they may let you ride also. Do you have a veteran in your close family? The veterans in our rural communities have a van that bring veteran's family's to our city for care. Check with the local churches as they may provide transportation. Good luck.

      over 6 years ago
    • Gabba's Avatar
      Gabba

      Call Road to Recovery...you will find them through the American Vancer Society!

      over 6 years ago

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