• radical neck dissection

    Asked by traverse on Wednesday, April 16, 2014

    radical neck dissection

    Looking for someone else who has been thru this surgery

    17 Answers from the Community

    17 answers
    • jennsmoma's Avatar
      jennsmoma

      My husband had this surgery in January. Is there any questions I can try to answer for you?

      over 7 years ago
    • traverse's Avatar
      traverse

      Just looking for support. Its been a struggle. Only 2 wks after treatment was completed. Another node came up cancer. Just had surgery again. The doctor says I cant get anymore rad/chemo. There doesnt seem to be enuff success stories. Im going thru pain even w pain management. How is your husband doing?

      over 7 years ago
    • Myturn's Avatar
      Myturn

      I'm sorry, traverse.

      My surgery was over a year ago and I still have pain and numbness, but it doesn't require heavy meds. You have been through a lot more and it will take more time to heal. What do they say the next step is?

      over 7 years ago
    • GregP_WN's Avatar
      GregP_WN

      I had radical neck dissection of the right side, 29 lymph nodes removed, malignant tonsil removed followed by radiation. How can I help? It's been 5 years since I had this done, I'm doing pretty good with it.

      over 7 years ago
    • traverse's Avatar
      traverse

      Just a waiting game at this point. Getting a ultrasound every two weeks to see if anything comes up. Big sence of fear of the unknown

      over 7 years ago
    • Danfan714's Avatar
      Danfan714

      I am 6 months out from my last neck dissection over 30 nodes removed and several muscles and arteries. I still have residual pain but it is manageable. I know you want to get back out there and do everything, but as I have been reminded on numerous occasions; this is major surgery. It takes quite a while to find out what fully recovered will be for you. Each case is different even though we have the same surgeries.
      Meditation has helped me. Pain management did not help me.
      I am maxed out on chemo and radiation as well. As long as I am here they are closer to a cure. In just the last 2 years major strides have been made. Don't lose faith or hope. We are all in this together. You are most definitely not alone.

      over 7 years ago
    • jennsmoma's Avatar
      jennsmoma

      My husband just finished his chemo and radiations yesterday. As far as the neck dissection he does not have any pain; however, he does not have feeling in his neck. The chemo and radiation has been the hardest on him so far especially due to the throat pain. The unknown is the biggest fear out there. Stay positive....we all need support and are here for each other.

      over 7 years ago
    • CrazyHarry's Avatar
      CrazyHarry

      Just has a central and right neck dissection along with a total thyroidectomy two days ago. Make sure you get a very experienced surgeon. There are lots of sensitive areas. Quite a pain in the neck if I say so myself.

      Numbness in the right shoulder and right side of face that will go away I've been told by the surgeon. Surgical site still draining after 2 days so another day in the hospital.

      Surgery took 5 hours.

      Don't forget to keep up on your pain meds.

      over 7 years ago
    • traverse's Avatar
      traverse

      Has anyone had any successes or experience getting social security benefits.... work seems far from possible at this point

      over 7 years ago
    • Jenvivace's Avatar
      Jenvivace

      Different type of cancer, but I do have partial social security disability. It was very easy to get started, although it is essential to get in touch with them ASAP as it takes a while to actually get after you sign up. My husband got it all going while I was undergoing treatment last year and it took about six months to start getting any money. I am self employed and can work some. I was given a number of hours and amount of money I can't exceed per month but am welcome to earn/work any amount less than that. They also have a trial period you can try working more than that and still get your benefits when you are ready to work again.

      over 7 years ago
    • Danfan714's Avatar
      Danfan714

      I got a service(attorney) it was reasonable fee. I got it within 2 months from when I filled out the paperwork and they paid me from the first day I got sick the year before retroactively. I tried to go back for a while after chemo and radiation and before the operations but it didn't work.

      over 7 years ago
    • traverse's Avatar
      traverse

      Wow danfan thats awesome for you. If you dont mind me asking, what was the main factors that helped you get it so fast? I called a couple lawyers and they keep telling me to call them when I get the denial and appeal process. I know I will prob need them and wanna get the process going faster. I am self employed and my profession involves full use of my right arm. Its been about 7 months diagnosis and 2 months ago I applied. And I am still waiting for a decision, denial. Seems crazy that it seems so hard to reach when I see people getting it for less

      over 7 years ago
    • Danfan714's Avatar
      Danfan714

      The main factors were, that the disease is terminal, that I had tried to go back to work for at least 90 days, and that I was considered disabled by all of my doctors. I could no longer perform the functions of my job
      I am an analyst and Project Manager by trade and not being able to keep my thoughts straight kind of hinder my ability to be effective. I have flashes of it, but I can no longer work in the fast-paced business environment that I did for 34 years.
      Most people I know have run into just what you have with SS. I think I am the exception. There are attorneys that do nothing but SS disability. That's the kind to get. I did my whole thing online and over the phone. With one questionnaire mailed for my signature. Make copies of anything/everything you send. they tend to 'lose' things.
      Good Luck

      over 7 years ago
    • Gee's Avatar
      Gee

      I have gone through neck dissection surgery too. I thought the worst part was having drains removed, not sure if your experience is different. I was treated at a teaching hospital and I don’t think I’ll ever forget the resident panicking and running out of the room looking for the nurse to rescue her. After about three times with some coaching from the nurse and patient, she managed to pull the drain tube out. I am about 6 months out from surgery and completion of radiation; I can’t say what recovery from neck surgery would be, as radiation treatment caused me a lot of grief in that area. I have some tenderness which I account to radiation, and some neuropathy that is probably related to surgery itself. Overall, I’m for the most part my neck is pain free, although I cannot say if it would ever be “normal” again. Hopefully you will have better experience.

      I would probably agree with your lawyers on social security topic. Social security seems very reasonable to me and straight forward to obtain. There is a significant amount of paperwork but there is nothing difficult to complete, so I doubt you would need an attorney to complete the application. I suspect in you case, like mine, disability is apparent and easy to determine or prove. Social Security has some specific rules and procedures for determining eligibility for disability: I don’t think they determine disability until you have been disabled for period of 5 months or more, although there may be some special circumstances where this is different. Be sure to file you application in timely fashion, as it will take some time for social security to process and determine disability.

      I wish you the best in treatment and recovery. Good luck.

      over 7 years ago
    • traverse's Avatar
      traverse

      Yeah gee I have to agree. The drains were a nightmare when removed. My neck doesnt hurt as much as my arm and shoulder due to the fact of recieving a muscle flap. Chemo/rad killed my throat and tongue. Im still stuggling to taste food. Everyday things seem to get a little better. Im so fortunate to have a site like this and people that can relate.

      over 7 years ago
    • dbaker331's Avatar
      dbaker331

      Had radical neck dissection on the right side, removing lymph nodes. Was a blur, it wasn't as much painful, but was still using morphine from the radiation in the neck and still had a feeding tube at the time. Pulling the drains was the worse part, the staples in the neck was an event too. It was a slow recovery for six months rehabing the shoulder and neck, for which I didn't do too well. Its now been 15 years since diagnosed in 1999, and while I still have issues with shoulder weakness and due to the nerve damage from the radiation and vocal chord paralysis, I've been back on a feeding tube after 3 years of Aspiration Pneumonia. While the surgery is tough initially the radiation is the real beast after many years. The side effects are terrible. But, I have a lovely family, lived a really good life, still active and working at a very high level.. Not perfect, but I survived!!! keep fighting!

      over 7 years ago
    • SisJo's Avatar
      SisJo

      My brother is 58 years old. He had radiation therapy for tonsil cancer in 2001. He had a recurrence in May 2014, removal of the tonsil at that time and then selective neck dissection in July 2014. Due to extreme weight loss and difficulty swallowing (because of the hole in his throat from surgery which is slow to heal because of the previous radiation) he had a feeding tube re-inserted in late September 2014 and removed 7 weeks later. He is now hospitalized for the second time in a month with aspiration pneumonia. Is it feasible for him to have the feeding tube reinserted and leave it in until his throat heals in 6 months? dbaker331 it appears you had the same problem and I would appreciate learning about your recovery.

      I need to vent! As an aside, my brother had the feeding tube removed in early November so he could return to work. His employer had "generously" given him an extra month of Family Leave (no pay, only partial health insurance coverage). When he reported for work on November 19, he was informed that he was laid off (after 12 years) and his health insurance would be terminated on November 30. His wife completed the paperwork for COBRA coverage and sent in a check but they will not be able to afford $800/month for long.

      So happy to have found this website. Thanks to everyone for your honesty and contributions.

      almost 7 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more head & neck/throat cancer questions.  Also, don't forget to check out our Head & Neck/Throat Cancer page.