• Ran out of options - no more chemo treatments other than clinical trials

    Asked by ElizaM on Thursday, September 17, 2015

    Ran out of options - no more chemo treatments other than clinical trials

    Does anyone out there have experience with clinical trials? My cancer is spreading to many different locations and my oncologist doesn't see any hope for more treatments and has referred me to hospice, etc., Am considering Hemp oil capsules and will continue with my Chinese herbs. If anyone has positive suggestions I'd love to hear them. Thanks y'all,

    26 Answers from the Community

    26 answers
    • cam32505's Avatar
      cam32505

      I can't imagine there isn't some clinical trial for different types of cancer that they can try for you. If you're determined to continue your fight, you may need to find a new onc who understands your desire to pursue further treatment. Good luck.

      almost 6 years ago
    • ElizaM's Avatar
      ElizaM

      Thanks for your encouragement. I am not sure I want to go for clinical trials so am wondering if anyone out there has had experience with them and what that might look like. I've really had enough of the toxic stuff ruining my health in other aspects but would like to hear from anyone who has had experience in this realm. Thanks again.

      almost 6 years ago
    • CAS1's Avatar
      CAS1

      ElizaM..the reason drug discovery takes so long is because people don't enrolled in clinical trials. More than 11 years ago people with Metastic. Melanoma. Took immunotherapy in clinical trials and are alive today..So you have a choice to make. It's up to you to take control of your treatment and find new Oncologists and clinical trials or not..maybe finding someone to help you sort through information would help you. Good luck.

      almost 6 years ago
    • barryboomer's Avatar
      barryboomer

      It's just possible that NO Natural Things whether it be Pot, Vegan Diet or Supplements or Juicing or Anything HAS much of a chance while you are on Chemo and or Radiation. The are contradictory.....YES Try Cannabis Oil and ALL Raw Plant Foods.......many interesting Supplements that work against cancer. Go into hospice care and DO All the Natural things and Get great Pain Meds if you need it and other goodies that Hospice is so good at. Just my opinion. Of course there are Clinical Trials out there and you COULD look into that.

      almost 6 years ago
    • TXHills' Avatar
      TXHills

      The American Cancer Society has a free Clinical Trials matching service. THey might be able to find a trial you are eligible for. They can help you over the phone. You can just go to their webite and find the information.

      almost 6 years ago
    • ElizaM's Avatar
      ElizaM

      Thanks so much. I am signed up to begin the Cannabis oil within the week and will see my Naturopath next week also. I am not giving up yet and want to review all my options as long as I know what they are - LOL. That's the search I'm trying to do right now, Oncologists or any MD are often wrong about their predictions so I don't take their "prognoses" as gospel truth. Having worked in hospice I know how wrong they can be, but I am glad to be off chemo - so completely destructive. Again - thanks for the encouragement.

      almost 6 years ago
    • geekling's Avatar
      geekling

      Why not both look for a clinical trial and use other available assists? You already have the herbs. Is pine included in your mix?

      I became a raw & living food devotee, which I believe kept me alive during the years I was looking for a diagnosis. Had I known what I was trying to overcome, perhaps, I could have beaten it on my own. Perhaps not but it doesn't hurt to try. Had I known what I was fighting I would have jumped in whole hog instead of being an organic kid who could be talked into cooking and was just playing around part ways.

      Please look into AHCC (you have to take a lot-more than reccommended on the label) which are fermented medicinal mushrooms and which was developed in Asia. There are lots of other mushroom assists too. Chaga mushroom extract, reishi mushrooms and so on and so forth. I still eat whole turmeric. I still make smoothies although I juiced when I was ill.

      The National Institute of health maintains an online data base of clinical trials. You could call the ACS and see what they have to say. You could also phone UCSF and see what, if anything, they might offer compared to Stockton.

      You also might consider having a vitamin/mineral analysis done and make sure you have enough of all the right stuff to vanquish the cancer. Fitday has an interesting way of calculating for you, based on your input of what you have eaten, where you might be a bit low. Try to eat fresh foofs loaded with what you need, rather than to pop a pill. There are lots of exotic ways to fight cancer with little pills & potions so it isn't like you would miss them. See if anyone nearby to you had a Rife nachine you could borrow or share.

      Best wishes & very good luck in your searching

      almost 6 years ago
    • geekling's Avatar
      geekling

      P. S. Run, don't walk to a doc for a cannibis card.Im in a facebook group. Over the last year one died and five are totally in remission! There are now various types of pot and Im a bit confused by it but Rick Simpson really began the big push to legalize pot by keeping several of his friends alive. The stuff most like what he used is called Phoenix Tears. If you getva card, you can grow 39 plants and then have enough to juice it too!!.

      Best wishes.

      almost 6 years ago
    • ElizaM's Avatar
      ElizaM

      I am already on board with Rick Simpson etc. and on my way to getting what I need in that direction. I take Chinese Tirkey Tail mushrooms amongst other helpful herbs, Essiac tea, a nebulizer from the Mederi Insttute in Ashland -I now live in Portland, Oregon - don't know how to change the Stockton address in my profile, obviously. Thanks for the AHCC suggestion,. My issue right now is to get my taste buds and appetite back so I can actually be enthusiastic about eating - otherwise I would be doing as you suggest geeking, Thanks for taking the time to write all that. I hope you are doing well on the protocols you have devised. I am not ready to call it quits yet and will keep pushing for improvements. All the best to you - to all of us. :)

      almost 6 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I ran out of options back in July 2013. I joined a clinical trial. It is awesome. I have been stable since I joined the trial.

      If you don't like something about the trial, get out!!! You are in control. Chances are, you will have access to the latest and greatest treatments.

      Best of luck!!!!!!

      almost 6 years ago
    • SandiA's Avatar
      SandiA

      I am on a clinical trial and I love it. It has been wonderful. I was lucky to find one at UVA where I was being treated so I was able to stay with my doctor. Someone from the trial comes to my doctors office at every visit and checks on me. It has been a real blessing. So far the side effects have not been too bad. I wish you all the best! You are in my prayers! Sandi

      almost 6 years ago
    • ElizaM's Avatar
      ElizaM

      That is so encouraging - to hear about good responses to the clinical trials. I am in the process of finding out the names of the 2 I may qualify for - one is dependent on a protein test of my original surgical tissue so will have to wait on that one. The other has a long waiting list, but I have the diagnosis they are looking for. Once I get the names of the trials I am hoping that someone out there can relate to the and speak specifically to those trials. Thanks again dear ones,

      almost 6 years ago
    • TXHills' Avatar
      TXHills

      Be sure to take your time and read and understand the informed consent paperwork, if you do get accepted. Ask all the questions you need, to understand what costs you might incur, what treatment you will get, side effects you can expect, how much extra testing there might be and who will pay for it, what are the risks and potential benefits, etc. Best to you.

      almost 6 years ago
    • ElizaM's Avatar
      ElizaM

      Indeed - already asked those questions and have the consent form to read through - will certainly take care doing so. Thank you.

      almost 6 years ago
    • kj7lo's Avatar
      kj7lo

      ElizaM, I entered maintenance after 6 months. I had a large mass in my colon, two tumors the size of mangoes on my liver, and some spots in my lungs and lymph nodes. The tumors are all gone except for the two on my liver. They are very small and continue to shrink. My medical oncologist worked along side my naturopathic oncologist. I see you are working with a naturopath. I started supplements and went to an organic sugar free diet after my first of 12 chemo treatments. Today, 7 months after diagnosis, I feel great, look great (as good as I can anyway ;^). I didn't miss a day of work during the whole time. It should be noted that everyone has different success with any protocol. This was my experience. The naturopathic oncologist's protocol made the chemo more effective, and did a whole lot to boost my immune system and helped me feel good during the process. You are in a battle with an enemy that has one big weapon. Keep fighting with all you have. For nutrition information and educational interviews visit thetruthaboutcancer.com.

      almost 6 years ago
    • Cocomojoe's Avatar
      Cocomojoe

      Hello, sorry to hear that your cancer is spreading. I was on a clinical trial for colon cancer. I live in Canada but many trials cross borders so I imagine that it will be the same elsewhere in America. I was St IV when diagnosed putting me on the top of the list for volunteering to be on a trial. The hospital I was receiving treatment at had a department that managed different trials. The coordinator approached me. We answered a few questions and some bloodwork was done. For the particular trial on colon cancer there were parameters required. I did not match. I was so anxious to be on a trial however they suggested I take some Mg and come back in a few days (my Mg was low). Although I couldn't bump it they made a call and I was in. It was a blind trial, randomized so I may or may not have been receiving the experimental drug. I received my treatment and each visit involved extra testing, extra sets or eyes. Not just for the year of treatment but for 3 years after while the trial was still in progress. I am okay now, I did not receive the exper't drug but totally worth being a control subject with the hopes of helping others that may be diagnosed with cancer. Please feel free to ask if there are specifics you need answered. And best of luck.

      almost 6 years ago
    • barryboomer's Avatar
      barryboomer

      There are NO So called Naturopathic Oncologists in Florida that I'm aware of. They haven't licensed any new ones in a long time as it is outlawed....some were grandfathered in. FLORIDA is a backward horrendous state and I'd pack my bags and leave today if it wasn't for my Wife who won't leave. SO.....I do my own research and do the best I can. Lots of info OUT THERE and we just do the best we can that seems the best for US..

      almost 6 years ago
    • ElizaM's Avatar
      ElizaM

      kj7lo - I appreciate so much your post here and the link. Thank you. Your description of where you have tuors is almmost identical to mine, so I feel our protocols could be very similar. Is there anyway you'd feel OK about telling me (us) just what your naturopath has you taking to support your healing? I take L-glutamine, tumeric curcumin, boswellia, neurosol (for nerve pain), Turkey tail mushroom, Glacier Pearls, Vit K, Rhus Tox (for arthritis), and plenty of other things primarily for diabetes. About to begin the Cannibas capsules tonight. When my stomach allows me I take Green First protein powder, and Essiac tea 3 times a day. I spend most of my time figuring out when to take the next potion/remedy and how to stimulate my appetite so I actually get some good nutrition on board which is difficult due to non-functioning taste buds and an "off" stomach. I also use a nebulizer with an herbal mixture. I eat from my own rganic garden when I'm able to eat that is.
      I'm happy to share all I do in case it helps someone else explore the options. I am very open to suggestions from others. Please keep the ideas flowing - I appreciate the time it takes to respond, but that's why we are here - right? :)
      I love this site. Thanks to all who communicate here - it is so very helpful and encouraging,

      almost 6 years ago
    • barryboomer's Avatar
      barryboomer

      http://nutritionfacts.org/topics/cancer/ Great Site....also Large doses of Green Tea Extract and 20 mg. melatonin has some good info.

      almost 6 years ago
    • ElizaM's Avatar
      ElizaM

      Chemo brain here - I take 20 mg Mellatonnin each night too.

      almost 6 years ago
    • ElizaM's Avatar
      ElizaM

      barryboomer - I'm sorry Forida is so backwards in the Naturopathic arena, I am truly fortunate that my Naturopath is right in the center of the cancer hospial here in Portland. I think I'd move anyway to save my life or at least set up a "residence" in another state where they are approved of, get the help I need, and keep it going at my real home, Is that a possibility for you? Doesn't it all make you feel like the pharmaceutical companies are out to kill us and drain us dry financially as opposed to supporting the best possible methods of overcoming this awful disease?!?!?

      almost 6 years ago
    • barryboomer's Avatar
      barryboomer

      I'm stuck here but I'm doing Great.....Don't get me started on Big Pharma or everybody on this tread will get angry at me.....lol THEY Don't have our best interests at heart ONLY what the next quarter profit is and the stock price......THEY have NO clue as to HOW to defeat cancer ONLY our own body knows how.....Just the way it is today.

      almost 6 years ago
    • ElizaM's Avatar
      ElizaM

      I'm with you on this whole pharmaceutical and GMO conglomerate making themselves more and more rich at our expense. I swear they are in cahoots with each other - trying to make us more and more dependent on pharmacology to increase their profits in the name of trying to help find cures, when they are creating the diseases in the first place,

      almost 6 years ago
    • GolfGirl's Avatar
      GolfGirl

      Hi Eliza - just wondering if you ever went on Erbitux? If so how was your experience? It's my next line of treatment & im not particularly looking forward to it.

      almost 6 years ago
    • ElizaM's Avatar
      ElizaM

      I just came off Erbitux - didn't do a thing for me, in fact new tumors appeared over the 6 weeks I was on it, and the one I had before got larger, But that is my experience, It may just work for you, even if it didn't for me. I thought I'd be continuing with it, but with my scan from last week they decided there is nothing more they could offer me on the cheno side of life. None of this is relevant for you - you may have a completely different response. I wish you well. Keep the faith and stay positive - I'm trying on those levels, Good luck.

      almost 6 years ago
    • geekling's Avatar
      geekling

      https://en.m.wikipedia.org/wiki/Monsanto

      Oddly, there are all in some cahoots. Check out the section on history and you will see connections on everything from artificial sweetener to the Manhattan project to Celebrex and more. It is scary.

      almost 6 years ago

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