• recovery

    Asked by Carolina90 on Friday, December 30, 2016

    recovery

    OK I have just got done with 35 treatments of radiation or 7 weeks 5 days a week. my throat is in so much pain I cant even swallow my spit. I am on a feeding tube an want to know what I can do to speed it up to get back to the old me and get this tube out of me, get taste back, and mouth and throat soreness to go away? I am a very independent person. I am strong and can push through things just if there is any little things I an do to speed the process up I would like to know. Because the feeding tube with the liquid just don't feel me up and I miss my good old southern cooking.

    10 Answers from the Community

    10 answers
    • BoiseB's Avatar
      BoiseB

      Recovery is different for each and every person, cancer and treatment. You have a lot of pluses going for you, you are young and you say you are strong. I was more that twice your age when my 1st cancer was diagnosed However there are some things that are universal.
      One is take care of your teeth. Talk to your oncologist about a mouth wash and throat spray I even used a special tooth paste because of the mouth sores.. Also who is in charge of what liquid goes down the tube. A dietitian who specialized in cancer monitored my weight and blood work and adjusted the formula and speed of the pump. There was a time when the pump had to be slowed down because I was being over fed. I saw the nutritionist weekly and she had several different formulas for me.
      We all have our own styles of recovery, I call my style the Cha Cha It is two steps forward one step backward and Cha Cha Cha for a few days. I push my self to the limit then a little further then I crash. But I try to never go back to where I was I also expect and plan the days I will crash. I prioritize what I will do. I I make sure the most important things are done then I crash.
      My PCP has said to me have patience that is why you are called patients

      over 4 years ago
    • GregP_WN's Avatar
      GregP_WN

      I only had 25 radiation treatments this last time (I had 30 in 1989) and it took me about a month to just get rid of the pain and start to get better little by little. It's been 8 years now and some things will never go back to "normal". My saliva glands were killed so I have dry mouth constantly, that caused my teeth to decline rapidly, I lost all of them, I have swallowing problems now, probably will from now on. I can swallow without too much pain, but what I can swallow is limited. It must be moist and small. But, with these side effects hanging around, I still am grateful to be able to sit here and discuss it, instead of someone else talking about remembering me. I hope you get better quick!

      over 4 years ago
    • meyati's Avatar
      meyati

      Hi, I'm a nose-lip cancer patient--Don't roll your eyes- the surgery caused the roof of my mouth to swell up-my lips swelled almost shut. All I could eat was popsicle slivers for awhile. I had experimental radiation because my cancer was considered rare and incurable.

      All I can say is try to keep swallowing to keep your muscles from freezing up- don't over do it, and use biotene in your mouth to help fight dry mouth and dry throat. Also ask your doctor and insurance about swallowing therapy.

      When you get eating- I recommend soupy mashed tators and gravy. Good luck--

      over 4 years ago
    • DoreenLouise's Avatar
      DoreenLouise

      Are you able to cook your own southern home made food, blend it to a liquid consistency and insert the food into the feeding tube? If so, you would be getting the nutrients of your home made food.

      over 4 years ago
    • patchez0's Avatar
      patchez0

      I like Greg still have problems after 4 years....but it's slowly getting better. I never had a feeding tube I kept refusing....but I did force myself to eat eat eat....I also had a trach so eating was very difficult...but I managed. DoreenLouise had a very good suggestion...geez I could of done that too but never thought of it...but one thing Carolina90 where you are after treatment is much better then where you would be without them...so now start recovery and try not to be impatient...you'll get there..slowly...

      over 4 years ago
    • Songwriter's Avatar
      Songwriter

      Keep the feeding tube while you heal....Smoothies may go down the tube....Get pain meds if needed...

      over 4 years ago
    • LaughSmile's Avatar
      LaughSmile

      Carolina,
      I'm 60, cancer free for about 11 years now. Had a feeding tube and same dilemma as you.

      over 4 years ago
    • LaughSmile's Avatar
      LaughSmile

      Carolina,
      I'm 60, cancer free for about 11 years now. Had a feeding tube and same dilemma as you. Throat, Squamous cell.

      I would actually take the kitchen sink dish sprayer set to Luke warm and spray directly in my mouth - rinsing to the back of my throat a few times a day.

      This seemed to help.

      As soon as I could swallow, I took small sponsored of ice cream- eventually as much as a half gallon a day!

      Everyone reacts differently. Radiation recovery is a challenge.

      Hope this helps.

      - Harold

      over 4 years ago
    • Richardc's Avatar
      Richardc

      I had the feeding tube , then gradually introduced smoothies. Slowly added soft foods like pasta with lots of sauce. Plenty of water to wash it down. The day I could actually eat my first cheeseburger was a celebration. Small bites, plenty of liquid. It took a lot of time and patience. For me, it was a gradual progression. Getting past the side effects takes time.

      over 4 years ago
    • Teen's Avatar
      Teen

      My husband had feeding tube for 12 mths stage 4 throat cancer inoperable!! Strongest chemo and radiation given 35hits not one blister or any redness ??? after peg taken out i made home made vegetable soup and custard with apples or bananna all pureed in blender .Have protein milkshakes and everything that will put weight on !! 3 years gone now doing really well . Good luck x

      about 4 years ago

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