• Rectal tumor removal

    Asked by GolfGirl on Friday, May 3, 2013

    Rectal tumor removal

    I meet with my Rectal Surgeon next week. If anyone has any advise; questions to ask or a shared experience I would love to hear from you. The last time I spoke with the surgeon he told me he would remove the mass & I would have an ileostomy with the hopes it would be temporary, no guarantees. I finished initial chemo & radiation with an excellent response. I'm starting to experience anxiety about the next step. Part of me wants to put off the surgery as long as possible, but the other part is anxious to be rid of the daily pain. Thank you.

    4 Answers from the Community

    4 answers
    • CrazyHarry's Avatar

      It's been one week since my rectal tumor was removed. I have been through a course of neo-adjuvant chemo radiation that greatly shrunk the tumor. I was extremely lucky to have an extremely talented surgeon here in Arizona at the Mayo Clinic who was able to do the whole thing laparoscopically. I was up walkin around the evening of the surgery. I found out she is the only one in the state to perform this operation.

      I have a 2 inch scar in my tummy and a couple really small scars.

      I do have a temporary ileostomy which has been a little difficult but with a different pouching system it should be fine.

      I did have some bladder urethra damage from the radiation. Lots of pain and discomfort. Which has been made worse by the fact that I can't pee and have a foley.

      Don't delay get that tumor out today. :)

      I'd be happy to talk directly with you if you need support.

      over 3 years ago
    • joyce1979's Avatar

      Go ahead and move to the next step. After rectal cancer surgery, I had an ileostomy which was later reversed. I think it depends on where the ileostomy is as to whether it can be reversed. I was just glad to have the tumor out and thankful for the ileostomy and then the healing. and the reversal. All these things follow in their time and the sooner you have surgery, the sooner you will be on the road to recovery.

      over 3 years ago
    • NeverGiveUp's Avatar

      Hello GolfGirl,

      I'm so elated for you that your rectal tumor is reduced to nothing but scar tissue! I had rectal (stage 3) and anal (stage 1-2). I was also told that I would need chemo/radiation/surgery. After the chemo/radiation both tumors were reduced to nothing (like you); only scar tissue.

      In my case (and perhaps your's as well), I did not require any surgery. There was nothing cancerous to remove. I get a regular sigmoidoscopy (first every 3 months, then every 6 months, now yearly). I remain cancer-free (coming up on 3 years now).

      Additionally, I am not only cancer-free, but have not gotten ill with anything (not a cold, sore throat, cough ... nothing!) since my diagnosis. I attribute this to taking 3600 IU of Vitamin-D, a positive attitude, reducing stress, eating healthy, exercise, confidence in my body, a loving support system and belief in a Higher Power.

      I share my experience and hope perhaps you may not need surgery either!

      Positive thoughts and prayers,

      over 3 years ago
    • LauraJo's Avatar

      I was Stage IIIA & did the 6 weeks neoadjuvant chemo & radiation, which disappeared the tumor, but still needed surgery. I had a laprascopic resection with a j-pouch, & a temporary ileostomy for 6 months. I went into surgery not knowing if I would end up with a permanant colostomy or not, but thanks to my excellent surgeon, he put me back together as good as new. The surgery is not too, too bad, given that is it still major surgery....I was up walking around (very carefully) that night, and got out of the hospital early, and was back to work in a few weeks. The idea of the ileostomy/colostomy freaks everyone out at first, but it is totally manageable. I swam, worked out, went to the beach...if you have ever changed a diaper, you have the skills to work with a bag. It just requires some planning. Talk to the ostomy nurse at the hospital - they will give you samples, and lots of direction. If you need more info, I would be happy to send you my e-mail. Most important thing right now, get that surgery done! And as a bonus, you will have nice weather while you are recuperating.

      over 3 years ago

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