Asked by Hilkei on Wednesday, January 10, 2018


    I joined here awhile ago but hardly participated because I thought I was cured. Ha ha. My Mantle Cell Lymphoma is back.

    I did 8 sessions of R-CHOP, two years of Rituxan, & one year of remission. Now 6 months later will be going into treatment #2. 6 monthly Bendamustine/Rituxan with bi-monthly Rituxan indefinitely.

    My questions:
    - Can anyone else relate?
    - Mantle Cell is rare, and generally in men. Is it odd that I have that diagnosis?
    - Side effects from previous chemo include exhaustion, memory issues, migraines, restless leg syndrome and skyrocketed blood sugars. I'm not depressed, but I see my outlook gets more negative as the days go on, what more will I face?
    - It's been 2+ weeks since the treatment plan, but Insurance hasn't approved the drugs and blames the doctors office. What can I do about that?
    - Some days it is so hard to get out of bed and go to work it is crazy, is this grounds to try for disability? How would I or even should I approach that?


    8 Answers from the Community

    8 answers
    • BuckeyeShelby's Avatar

      Good grief. One boo boo is human. Two different errors on the same claim is just wrong! Hope this will setle the matter.

      over 3 years ago
    • Schlegel's Avatar

      See a lawyer who does Social Security Disability, no charge for consultation. You have to be disabled for six months, not working, to go on SSD, two years for Medicare.

      over 3 years ago
    • BoiseB's Avatar

      I can relate to the token women thing. Seven years ago when I was diagnosed with esophageal cancer it was an uncommon cancer in men rare in women. It didn't even have it's own page on WhatNext. Since then it has become the #5 cancer killer in men still rare in women. Well getting a men's cancer really was not on my feminist agenda, I can also relate to the reoccurrence, my cancer metastasized to (wait for it) my ovaries and uterus. And guess what else I was diagnosed with I had uterine sarcoma tumors right next to the esophageal tumors. Then all the Dr.s were remarking about how odd this was; duh the vast majority of individuals who get esophageal cancer don't have ovaries. So Yes it is odd you have your diagnosis but don't let it bother you.
      As for reoccurrence here is an article I found helpful and hopeful

      over 3 years ago

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