• Recurrence treatment decision inquiry

    Asked by TogetherWeCan on Friday, September 25, 2020

    Recurrence treatment decision inquiry

    Hi everyone, a family member recommended this network and I have joined in hopes to share my experience and obtain thoughts from others going through the same. I have a diagnosis of Endometrial Serous Carcinoma stage IV. I heard news that my cancer has come back after going through the first line of treatment options which included surgery, chemo (Taxol and Carboplatin) and radiation. I have been presented with second line of treatment options. One option is another chemo called Doxil and the second option is a combination of Pembrolizumab (immunotherapy) and Lenvatinib (targeted medication). I am told the combination of drugs is a newly approved treatment while Doxil has been a common standard for a while. The doctors say either option is a good one and I need to make a decision. Has anyone had this experience? I would love to hear your opinion if you've had to make this decision. Sending positivity to all.

    7 Answers from the Community

    7 answers
    • po18guy's Avatar
      po18guy

      It sounds like expediting a second opinion would be very appropriate. As to coping, plain old fashioned faith prepared me for cancer, carried me through it and has sustained me afterward. As to diet, I ate what I could keep down. My thinking is that there is enough insanity going on in your body as it is. Introducing other radical (or even substantial) changes may only burden you or possibly overwhelm you.

      2 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I didn't do more than just the medications given by the cancer clinic. Didn't change how I ate. I was as active as I could possibly be - got a lot of exercise - walking and playing agility with my dogs - which was actually just maintaining the activity level I had when I was diagnosed with cancer.

      I knew people who supplemented treatments with drinking wheatgrass. One of them had Small Cell Lung Cancer. Between her traditional chemo treatments, wheatgrass and God, she was NED for about 10 years. Another one who drank the wheatgrass religiously celebrated 10 years of life after diagnosis before his cancer became uncontrollable.

      On the other hand, I just did what the doctors prescribed, maintained a fairly good exercise routine, had a lot of faith (not so much for healing, but faith that God has this no matter how it goes). I was diagnosed in October 2012, began Opdivo treatments through clinical trial in July 2013. Quit all treatments in April 2019. My last scan showed stability in all tumors (as have the scans for the last few years). So ... did the wheatgrass actually help my friends or not? Who knows?

      I personally agree wholeheartedly with po18guy. Why take the chance of negating some of the work the treatment is doing by adding more to it? It has been tested as it is, but not with other options added in. A healthy diet is always recommended (though I do not eat particularly healthy), decent exercise is always recommended, a good attitude at least helps make the experience easier to go through, controlling stress is recommended because stress can even cause cancer...

      I'm so sorry that your doctors have differing opinions. If I were you, and with what little I know, I would choose the combo. If it didn't work, the doxil would be waiting in the wings.

      (Sorry this is getting long, but I had one other experience that might be of interest. I had one tumor start to grow some years back. It was in a lymph node in my neck. (That is when I went off of clinical trial, but not off of Opdivo.) My doctor wanted me to wait around for a new clinical trial that was coming - for combo treatment and do doxil while I waited for the trial to open. My first oncologist had unencouraging things to say about doxil so I was not in any hurry to do it, even briefly. I chose instead to have that tumor radiated, against my medical oncologist's advice. When telling the radiation oncologist about how my medical oncologist wanted me to wait for the combo treatment trial, he (the RO) told me that he'd heard great things about combo treatments and that I could consider it rather than the radiation. He said I could have the radiation later if the treatment didn't work. I wanted the tumor gone so I went forward with radiation.)

      Best of luck!!!

      2 months ago
    • TogetherWeCan's Avatar
      TogetherWeCan

      Thank you for sharing your experiences. I took a little time off to think things through and I decided to go through the combination treatment. I remain faithful that this will work. I am aware of the side effects but I hope that I don't experience them. I really appreciate your feedback to me. It helped in this difficult times.

      about 1 month ago

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