• Remission, NED, Cured?

    Asked by MarS676 on Monday, April 22, 2013

    Remission, NED, Cured?

    I had neoadjuvant chemotherapy and when I had surgery I had a complete pathological response as NED was found. Does this mean I am cured or in remission?

    8 Answers from the Community

    8 answers
    • Peroll's Avatar

      Congrtatiouns, you are at least in remission and may bre cured. Medically they consider a person cured when they are NED for 5 years so technically they would probably not yet considere you cured yet but if you make it 5 years then you were cured now so this is sort of a technicality. You can and should now get on with your life away from cancer, but remember that you do need to keep up with folloow up visits just in case it hjappens to cpme back you wnat to be sure to catch it early so that it can be beaten back again without too much trouble. Good Luck.

      over 4 years ago
    • lchapman2000's Avatar

      Hi...this is GREAT news!!! Congratulations...this means you are in remission. Best of luck to you!!

      over 4 years ago
    • GregP_WN's Avatar

      Good news, keep thinking those happy NED thoughts!

      over 4 years ago
    • karen1956's Avatar

      NED....no evidence of disease!!! I love this term!!! My onc does not use the word "cured"....so I love NED....I consider him my best friend!!!!

      over 4 years ago
    • AlizaMLS's Avatar

      Hi MarS676,

      I'm Aliza, a BC patient, a BC patient and the site's unofficial resident Medical Librarian. I just celebrated my 4th month of being Cancer free. I don't know that I'd refer to it as being "in remission" yet. It feels a bit too soon for that. I'm on adjuvant hormonal therapy (Tamoxifen) and I was exempted from chemo by genetic Oncotype testing. I had a very low scord which meant that recurrence was not likely.

      Congratulations for having NED!! That's terrific nerws and must give you a great sense of relief. As one of our other compatriots mentioned, be sure to go to your checkups when scheduled so in the event there's something brewing they find it early. But don't think like that because you should live your life as if it's not going to come back!

      I wouldn't get so caught up in terminology because ultimately it doesn't matter and just be happy there's NED! Again, as mentioned, 5 years is what's considered "in remission". You'd have to ask your oncologist the time period that's considered "cured". When you find out the answer, please share it with us. It will make for a lively discussion, I think..:)

      Again, do something fabulous for yourself now that you're well (a long as you feel well). Take a vacation - maybe to an exotic locale. Drop in on us occasionally and tell us about your trip. it will give the rest of us hope...;)

      Wishing you well.

      Warmest Wishes,

      over 4 years ago
    • JennyMiller's Avatar

      In October 2012, I asked my Oncologist what I was considered -- in remission? -- cancer free? -- or what. She said "remission" indicates that the disease is still there but inactive whereby, at this time, I had no no evidence of the disease so she pronounced me "CANCER FREE".
      Those words were music to my ears. Now -- if I can just stay that way. My goal is to be on guard but not to be paranoid. I have kept all my follow-up appointments and I will be having Scans on May 3.
      Of course, I am already getting nervous but am trying to maintain that positive attitude that is so
      important. I wish you the best.

      over 4 years ago
    • debco148's Avatar

      You have no evidence of cancer. Once this occurs you will either do adjunct therapies to prevent such as AI or Tamoxifen, but also lifestyle changes ie diet and exercise. The goal now is no recurrance! I am in the same situation right now myself..check up, blood work, etc every 3 months for the rest of this year. No one knows if it will ever come back so if this continues for 5 years they say you are clear. I don't think remission is a word that applies since if you have no active cancer that needs to be kept at bay, so NED is the correct label for now. It is the time to enjoy your life again, free of treatment and disease!

      over 4 years ago
    • Nancebeth's Avatar

      Since there is no cure for breast cancer and it can metastasize years later, I was told I will never be cured but can hope to live with NED (no evidence of disease) for the reats of my life. I have been living with NED for 8 months now.

      over 4 years ago

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