• Remission or Evasion

    Asked by greensmythe on Thursday, April 4, 2013

    Remission or Evasion

    Today I had my meeting with Dr. Einhorn after the good news of the last appointment that I had 35% shrinkage in my tumors. He told me that I am in remission. He said this was doubly awesome (not his words) because he had compared the most recent CT scan to the first ones taken in November when I was initially diagnosed. He stated that if we had had a CT scan to compare it to from December the shrinkage would have been even more dramatic. I have NSCLC confined to my lungs. I have been told that the cancer is inoperable and no radiation can be used because the tumors are too small.
    Now, here is what I consider confusing news. Einhorn stated that this remission is only temporary and will get me through the year, but signs of my lung cancer will begin to show next year. I find this very confusing. Perhaps he was trying to cover the bases of my asymptomatic entrance into this lung cancer world. I am not sure and was not quick enough to ask. I don't understand.

    6 Answers from the Community

    6 answers
    • BrownCounty's Avatar

      I think I would call his office and ask for a nurse. I'm sure they get a lot of questions after the appointment. Do you only get scanned once a year? Seems like a long time to me. Anyhow, I wish you the best.

      over 3 years ago
    • CAS1's Avatar

      The good news is you have had shrinkage but I am really challenged as to why you have not had radiation and chemo as radiation together can "Kill" the cancer. Chemo alone usually does not but in some 2% of people DX it can. So the Dr. is saying that the tumors may start to grow again next year.
      But this is why I suggested you go to "Lets test now" and find out why you have not had mutation testing and why you have not had radiation. If you have certain mutations you can be kept in remission with targeted drugs..Sometimes for many many years. Its very important for you to make sure you are being treated at a Lung cancer facility and perhaps get a second opinion.

      over 3 years ago
    • SueRae1's Avatar

      I'm with BrownCounty - call the office and speak with some one on your oncology team and get clarification on what the scans show and what the results mean.

      over 3 years ago
    • greensmythe's Avatar

      I have had the mutation testing in the beginning and it was negative. Unfortunately, I have not had much luck with the nurse there- she does not return calls and pretty much blows me off so I really don't see any point in asking her because she will only pass me onto Dr.- who will tell me the same thing.

      over 3 years ago
    • becky68's Avatar

      I can't answer your question,but I have to tell you it really concerns me that you feel your doctor and his/her staff "blows you off". Call and call again until you do get answers. If they have a social service department or patient advocacy program where you get your treatments,get them involved,and if they don't,call your local American Cancer Society and see if they have a patient advocacy program. There is no reason on the face of this Earth that you should not know exactly what your test results or your doctor means.

      over 3 years ago
    • Dleads' Avatar

      I went to Dr. Einhorn and he told me the same thing. He even went as far to say I'd be DEAD by 2015. Are you still in remission? I'm impatiently waiting for my C/T scan results that I get Monday morning. Up to this scan I have been in remission for 13 months.

      almost 2 years ago

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