• VBG's Avatar

    Renal cell carcinoma

    Asked by VBG on Wednesday, April 17, 2019

    Renal cell carcinoma

    RCC Stage3 March 2018; Small mass>1millimeter in brain discovered in March 19, 2019; April 15 admitted to hospital after signs of stroke but swelling from brain mass impact left side.On meds for swelling and appt scheduled to begin targeted radiation brain. Colonoscopy today showed very small “lesions” in stomach that caused low red blood count required blood transfusions in 24 hours. So very overwhelmed emotional and trying to stay hopeful! Still waiting to speak with doctor. I need advice

    4 Answers from the Community

    4 answers
    • JaneA's Avatar

      Take one day at a time. See what your doctor says - get an ASAP appt. with your oncologist and see what they say. After that, it might be good to get a second opinion.

      I'm assuming that they may do a PET scan to see if anything lights up. Best wishes and let us know.

      8 months ago
    • carm's Avatar

      I am an oncology nurse and I can imagine that you feel overwhelmed right now. However, I see brain mets many times and radiotherapy usually makes that issue a non issue. The small lesions in the abdomen can be many things... polyps, cysts, scar tissue...all of which require an adequate amount of blood to stay viable and could be the reason that your counts are low. Just take it day by day. Try to remember that stress is lowers your immune system. If you take it day by day, you will be amazed at the days you put behind you and the unending amount of days that lay at your feet. If you have a goal then you have a direction. Just keep reaching for that goal and let nothing stand in your way. Best of luck to you.

      8 months ago
    • Teachertina's Avatar

      So sorry to hear about your concerns! One thing that helps me is to write down all the questions and concerns I have when I think of them to share with the doctor when I call or see them. Make sure they answer you and listen to you. You have to be your own advocate. Only you can explain how you feel to get them to better understand what you need and that you need it now! Get adequate information so you understand what your options are. Be armed with these things and you will be better prepared for the rest. Keep us posted here and know we are right there with you on this journey. I’ve been doing it now for 13 years and I won’t stop believing that we can help each other get through it!

      8 months ago
    • VBG's Avatar

      Thank you so much for kind words support and advice!!! Much appreciated!!! Will keep you updated! My RBC is up and stable which is good. I’m able to eat soft diet while in hospital. Hope to be home tomorrow. Appt with radiation department in 4 days so the journey begins

      8 months ago

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