• reoccurences

    Asked by rjtom on Wednesday, February 18, 2015

    reoccurences

    Hello, I was first diagnosed with ovarian cancer in 2010, had a complete hysterectomy and part of my omentum removed. I was on taxil, avastin and cisplation for 6 months and went into remission for 2 years. My ca125 rose to 1600 and more chemo, this time carboplatin. After 6 months of treatment my ca125 went from 11 to 800 and they are talking about trying doxil this time though there are no active tumors. Has this happened to anyone else? I'm getting very nervouse and anxious that the treatments aren't working. I was originally diagnosed as level IIIC ovarian cancer. I am only 46 and I want to beat this. Am I destined to a life of being in and out of chemo every couple of years?

    9 Answers from the Community

    9 answers
    • cam32505's Avatar
      cam32505

      Your original stage was IIIC, but is it stage IV now? If so, you will probably require treatment most of the rest of your life. I have a friend who is stage IV. She is always undergoing some type of treatment. Right now, she is on a break because she needs to let her blood levels rise. You may get lucky and go into remission several times, with each lasting less time. But, there are always new and better things in the pipeline. You can volunteer for a clinical trial if you want to give something new a try. Ask your gyn onc about it.

      over 6 years ago
    • hannakat's Avatar
      hannakat (Best Answer!)

      Hi, Well that's almost the story of me! But I was in remission for a longer time, it did come back and metastisized to the plural lining of my lung.. I did go on doxil and 4 other ones as well, but what I want to tell you is that I am 10 years out now, and living a pretty normal life...with cancer. Everytime it flares up, it seems there is something new to do. It is as if I have a "Chronic" disease that I just live with...like diabetes, etc., but a heck of a lot easier. I am looking forward to my next 10 years knowing that this disease can and will be controlled. Be grateful for the chemo, it is as if it is an elixer that will keep you going.

      over 6 years ago
    • CAS1's Avatar
      CAS1

      First you need to ask these questions of your ONc..call them today..there is no need to worry just ask..

      But like Hanna kat described they most likely found cancer cells in the lining so as a preventative they gave her chemo to kill those cells and like you they are most likely trying to be preventative.
      Chemo kills cells..but chemo kills very few tumors once they have established themselves.

      Also Chemo boosts the immune system..yes it does..so I suspect the goal is to kill any potential cells and that seems very reasonable.

      Some people with cancer take preventative chemo once twice per year for many many years and not a problem for quality of life.

      over 6 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      rjtom,I too was diagnosed IIIC in Sept. 2013 and have been in remission for eleven months now. The reality of later stage Ovarian cancer is that it often does reoccur, that is why I have chosen to keep my chest port for at least another year or two. The good news is you are 46. I belong to several ovarian cancer groups online and weekly am reading positive information on the inroads they are making to combat ovarian cancer, it is really a new frontier in the battle with many types of cancer thanks to genetic research. Many stage III and IV women are today in stage II and III clinical trials, offering great hope. Your generation I am sure will reap the benefits. Remember one day at a time. The tomorrows look sunny. Wishing you always, better days.

      over 6 years ago
    • kkelly111's Avatar
      kkelly111

      I was diagnosed in May 2012 with stage 3c. Went through 18 months of chemo then after 6 months of being off, cancer came back ( 20% of us are what's called platinum sensitive or resistant). I started Doxil and my cancer is still there but I have not had to have chemo for 16 months, I know my chemo days will be back again but for now YIPPEE! They put me on 40 instead of 50 for Doxil, helps with side effects. You are young and strong, you can KICK cancers butt. Good luck and stay positive!

      over 6 years ago
    • glam's Avatar
      glam

      Dear rjtom....I am a colon cancer stage IV B survivor and had a year of chemo after main surgeries....when I finish protocol 1 and 2 of chemo my doctor put me in a third protocol which he called a maintenance protocol just to ensure treatment effectiveness and to kill any possible cell that was still there and ultimately to postpone any recurrence if it was to happen....discuss with your doctor what is the main purpose of the treatment he is going to start with you... You have the right to fully understand your treatment... I used to think the following way...if I couldn't explain and defend my treatment to friends and family then it meant I hadn't asked all necessary questions yet.....wish you all the best.....God bless you and continue blessing all of us

      over 6 years ago
    • kalindria's Avatar
      kalindria

      Like glam, I went through chemo and surgery for my fallopian tube cancer and then underwent maintenance chemo for 7 months. My doctor wanted me to continue the maintenance for a full year but I was unable to truly enjoy my life and a second and third opinions said it wasn't necessary so I stopped after a serious discussion with my oncologist. Since I'm stage IV, my oncologist seems pretty sure the cancer will return so I will remain vigilant but I'm not going to allow it to take over my life any more than it already has.

      Get a second opinion if you have doubts. Get a third opinion if you can. I felt so much better after I did.

      over 6 years ago
    • barryboomer's Avatar
      barryboomer

      Cass....Chemo does NOT Boost the immune system.....it actually does the opposite.

      over 6 years ago
    • Bb31565's Avatar
      Bb31565

      I am a 3B OC patient...with recurrences. I have been told you are always staged at the first diagnosis so I will always be a 3B. I took tax/carb combo twice and now doing the Doxil ( you don't lose your hair with this one) which with Doxil your CA 125 will rise before it goes down and it takes a few treatments before you see it come down. It is red so I call it koolaid! Don't panic if you pee a bit pink after treatment. Also, I sit with ice on hands and feet because the biggest side effect is the blistering of them...I had problems with this using tax/carb so as a preventative suggestion from onc who suggested the ice constricts the small blood vessels to the extremities and will help. I do it and it does help since I've had no issues thus far. I am up for a clinical trial in the next couple of months. This is living with a chronic disease and like diabetes ( which I have too) I prefer the diabetes at least I have control over that beast but not this cancer!!!! Good Luck

      over 6 years ago

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