• Reoccurrence of breast cancer, same breast.

    Asked by bgsublett on Monday, July 7, 2014

    Reoccurrence of breast cancer, same breast.

    I was diagnosed 3 years ago with stage 1, grade 2 lobular carcinoma. Oncotype DX showed somewhat low score. Underwent lumpectomy, chemo and radiation. Strong family risk but negative on genetic testing. I took drugs now for 3 years and after having a lot of pain and strange tissue "formations," in the same breast. I went to my Oncologist. The next day I was having a mammogram and ultrasound by the Radiologist. She was sure it was cancer. 20 minutes later I was in the MRI and having a biopsy. Next day it was confirmed the cancer was back but now in the duct. Same stage 1 grade 2. I see the Oncologist and breast surgeon tomorrow. One friend says do the "gama knife." Anyone else out there that has had a reoccurrence? And what did you do? I'm 52. I was pre menopausal the last time.

    10 Answers from the Community

    10 answers
    • lilymadeline's Avatar
      lilymadeline

      I would be more aggressive with treatment this time, maybe have a double mastectomy. Usually it isn't good if cancer comes back so quickly but it is only stage 1, which is good. But it sounds like they are are on top of it, so what are they suggesting? And don't be shy about getting a second opinion as well. So sorry that this has happened to you! Hopefully you can get rid of it once and for all now. Good luck and best wishes!

      about 5 years ago
    • ld_105's Avatar
      ld_105

      I had two in one breast (ILC and IDC) at the same time. A mastectomy was recommended. Both were stage one. Follow up now for right breast. So far clear scans but I am closely monitored and will be for another year. Follow the direction of your surgeon. Mine is top doctor and we had this discussion today. She said, "We caught it early... and you have another breast." No guarantees unfortunately. Wishing you all the best.

      about 5 years ago
    • karen1956's Avatar
      karen1956

      Is this a recurrence? or a new primary? A new primary is treated as a new cancer just like the first one...talk to your oncologist and get a second opinion if you are not comfortable with what he/she tells you..all the best to you

      about 5 years ago
    • cam32505's Avatar
      cam32505

      I didn't have breast cancer, so I can't speak from experience. It seems to me that the best way to get rid of cancer is to get rid of the breast. I know that seems drastic, but sounds better than continually have recurrances. You are grade 2, which is medium aggressivenes, but still aggressive. Once it gets a chance to spread to other organs of the body, much tougher to treat. But, take the advice of your doctor.

      about 5 years ago
    • Dru's Avatar
      Dru

      I had Stage 1, Grade 2 lobular carcinoma in one breast and first had the lumpectomy and radiation. Afterwards I worried about a recurrence and elected to have a bilateral mastectomy w/reconstruction. I feel more at ease now that I have lowered my risk substantially. If you are worried about the surgeries, prepare yourself beforehand so you know what to expect. From my experience, the upside far outweighs the downside. Good luck!

      about 5 years ago
    • dmholt1957's Avatar
      dmholt1957

      I had a mastectomy in March of 2012 on the left breast. I asked my surgeon to take them both but he refused. I went thru chemo and radiation. One year later I was informed during my mammogram there was something suspicious in my right breast but they really didn't think it was anything to worry about, 2 weeks later they told me I had cancer again. I had another mastectomy in April last year. Please be very aggressive this time. I would hate for you to have to face this again. Talk to your doctor and see what their opinion is and go with your gut feeling.
      I am 56 years old and have opted not to have reconstruction at least right now, because of all that I have went thru these past 2 years. My husband told me that it is my decision if I want reconstruction or not. He says my breasts or lack of isn't who and what I am and that he loves me more than he ever has before! I pray that your journey goes well for you! Good luck and God bless.

      about 5 years ago
    • moreorless' Avatar
      moreorless

      I would go with double masdectomy this time your are 52 and very unlike will have more children that you will want to breast feed. If you are as tender as I was after radiation then sorry there is no way I could have let a baby or anyone else bite me there. And it sounds like you have the support you need so fight this disease and maybe you can go back to school and then find a cure a or a preventive for this killer

      about 5 years ago
    • MelanieIIB's Avatar
      MelanieIIB

      I was 53 when diagnosed. It is a very difficult decision to make, whether to have a mastectomy or not if you are given the option. I had fibrocystic breast disease. This makes your breasts lumpy and hard to detect if there is anything suspicious. I had mammograms every year. A mammogram showed two suspicious areas that had to be biopsied. The result was infiltrating lobular carcinoma. The oncological breast surgeon told me I would need a mastectomy. He asked if I wanted bi-lateral mastectomies. I didn't know what to do. He urged me to get the BRCA test to help with my decision. Since it was negative, I decided not to take the other breast and my surgeon was fine with that decision. An MRI before surgery showed another area in the same breast, larger than the other two and the breast surgeon had not even felt it. The MRI stated that the other breast had no suspicious findings. I had the one mastectomy and the final pathology report put me at stage IIB. I had LCIS, DCIS, infiltrating lobular carcinoma and two of the tumors were HER2 negative and the larger one was HER2 positive. The sentinel lymph node was cancerous so the surgeon took all of them.....18. I have mild lymphedema as a result.

      6 months later, a mammogram of the remaining side showed a suspicious area. I had a needle core biopsy, stereotactic biopsy and a surgical biopsy. The pathology report came back as LCIS. Why didn't the MRI or mammogram 6 months ago show anything? Was it there but too little? Did the scans miss it???? I did not want to have to go through all this again and have the possibility of cancer spreading to my lymph nodes on that side, so I had the surgeon do a mastectomy on the remaining breast.

      Before my first mastectomy, since I was going to need radiation, my breast surgeon and the plastic surgeon I consulted told me it was not a good idea to have implants before receiving radiation treatment. I'm glad I did not go through getting an expander. I really don't want implants as 10-15 years later the implants need to be exchanged plus I am not crazy about having a foreign substance in my body. Implants have been great for many women and there is certainly nothing wrong with doing reconstruction that way if that is what you want. Since having my first mastectomy I found out about diep flap reconstruction. I am scheduled for diep flap reconstruction in two weeks.

      My best to you. You are doing right by asking for the experience of others so you can make an informed decision.

      about 5 years ago
    • barryboomer's Avatar
      barryboomer

      AGAIN...here I go again.
      I am a guy and don't have breast cancer but my MOM died of it a LONG time ago.
      You can cut off everything attached to you and kill, kill and kill BUT when the cancer load diminishes your Immune system NEEDS to keep it under control.
      Both Killing and Healing gives the best chance.
      Check my profile and journey for some ideas of the healing.
      We can't just kill it away completely in MOST cases.
      Our Immune system is on Patrol all the time and controls cancer in our bodies all the time. Ours for some reason got overwhelmed and fell down on the job. BUT....if we can get the tumor load way down from treatment MAYBE a revived immune system from Great Nutrition can start to do the job it was designed to do.
      Just a thought.....

      about 5 years ago
    • helentran's Avatar
      helentran

      Hello Bgsublett,
      I am so sorry that you have to go through with this again.

      1. I concured with the question that Karen had for you regarding whether or not this is a recurrence or a new cancer. My reason for asking is that I had a similar situation. I was diagnosed with invasive lobular cancer. Only one lump was seen on the mammogram and ultrasound. Luckily, the doctors had me do a MRI and saw two more lumps: ductal carcenoma in situ and lobular carcenoma in situ. They then proceeded with having a mastectomy so that all three lumps and all three cancers were removed. Had they did not see the additional cancers through the MRI and only do a lumpectomy, the other two lumps would eventually be seen on the mammogram or ultrasound later on.

      This is why I wanted to ask you if this is a recurrence or a new cancer especially since you oncotype result was low. If it is a new cancer, i think the prognosis is better.

      2. May I ask what was the score for your oncotype? Additionally how fast was the tumor dividing prior to it being taken out (the proliferation rate)?

      I have low oncotype also and would like to know if this is something I need to be concerned about.

      Bgsublett, you are in my prayers. Take care

      Thoa

      about 5 years ago

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