• Required: Question Title

    Asked by Christiana3 on Tuesday, April 16, 2013

    Required: Question Title

    I have stage 4 colon cancer and have been on a three cocktail chemo every two weeks for a year and a half. Needless to say this is taking a huge toll on me healthwise. Are there any other patients out there that have this long and aggressive type of regimen. I am currently on avastin, irinotecan and 5fu. I would appreciate any input you can give me thank you so much!

    5 Answers from the Community

    5 answers
    • GregP_WN's Avatar

      If you click on this link it will take you to the latest questions asked about colorectal-colon-cancer. You can look through those to find others that have mentioned the cocktail. Another option is to click on the experiences page at www.whatnext.com/experiences and enter that cocktail or parts of it in the search bar. https://www.whatnext.com/search/questions?search%5Bfilters%5D%5Bcondition_path%5D=77

      over 3 years ago
    • Peroll's Avatar

      Christina, I too have had that chemo regimine and know how hard it can be. In my 8 1/2 year journey I have had probably two plus years of chemo and know how it can build up. Your page does not indicate where your cancer matasticized to, but that really does not matter. After mine went to my lungs I was on chemo for about 9 months straight before I started to look for an alternative to never ending chemo. I learned that you often have to push your Drs to think outside the noraml treatments and get them to look at alternatives. I did thins by doing some research and laering someting about a number of alternatives. I then started discussing them with my onclolgist and progressed to appointments with other Drs who would do the other treatments. I selected surgery wihich fit my case, but there a a number of other treatments like cyberknife and radio frequency ablation to name two. I recommned that you do some research on alternative treatments (be careful to look only at reputable sites) and then discuss them with your oncologist. If he (she) is not willing to discuss the alternatives then it might be time for a 2nd opinion and I alway recommend getting a 2nd opinion from a Dr associated with a research hospital ior clinic as they will have knowledge and access to the latest treatments and trials in case you need them. Try and find Dr that specalizes in ciolon cancer. Hopefully you will gfind alternatives to just being on chemo forever. Good Luck and let me know if I can be of more help

      over 3 years ago
    • RobbieFlores' Avatar

      I also agree 100% with Peroli and get a second opinion. Also you didn't say if surgery was an option? Every one's cancer is a little different but they mostly include some sort of surgery.Good luck and I hope you're able to resolve these issues.

      over 3 years ago
    • Christiana3's Avatar

      Thank you for the advice, I did want to follow up and say I do not need surgery. The tumor on my colon shrunk and went away, I do have two small nodes on my lungs that are shrinking also. The only surgery I have had is a colonostomy which I still have. I will definately get a second opinion or ask about alternatives. I have a four doctor team and they are associated with University of Michigan so I know I am getting good care. You did answer my question and I am so pleased that you all have the perserverance and strength to fight this. I hope to follow your examples. The very best wishes on your journey!

      over 3 years ago
    • Lavonne's Avatar

      Christiana I have fighting this cancer monster for 3 yrs with my sister in law. she has been on the same avastin, irinotecan and 5fu as well as all the chemo available for metasized colon cancer. She has even done a clinical trial at MDA in Houston because she has gone thru all the chemo available. She had just started Stivarga about 2 months ago and it metasized to her brain and she had to have emergency surgery. Do all the chemo available because you sure don't want it to start growing again and metasize to other areas. We use to wish she could skip chemo so we could do other stuff but after running out of chemo options we wish so bad she had not run out of options. It was a year without chemo until Stivarga was approved and that really allowed the cancer to act up. Good Luck on your journey but as others have said never hate to get a 2nd opinion from other Doctors and do LOTS of research thru the internet on your own.

      over 3 years ago

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