• Return of period???

    Asked by pattiep on Monday, June 27, 2016

    Return of period???

    Hi- I was just about in menopause when diagnosed at age 48. Spotting mostly for 6 months, 1 period then No period for 4 months leading up to chemo. No sign of a period after that. I never had hot flashes like my family but I had these weird hot and cold sweats/ flashes I thought were because it was chemopause. Especially my head.
    3 years since chemo has ended and Saturday night I started a bad headache, crampy stomach. Woke up with spotting in underwear. Nothing rest of day except headache and pressure on lower abdomen. Late this morning toilet paper definitely pink and more than yesterday.
    Called oncologist. Took hours before office told me to call gynecologist. Waiting to hear back from them to schedule vaginal ultrasound.
    I am totally freaked out and convinced this can only be a negative event. I'm terrified by how negative it might be! Had this happened to anyone else???

    11 Answers from the Community

    11 answers
    • geekling's Avatar
      geekling

      I totally freaked out when, about eight to ten months after treatment, I used a toilet and bright red blood poured out of my rectum.

      I was hysterical for a moment until I calmed down and regained my faith.

      As it turned out, the radiated area had deswelled enough to allow blood to flow from a radiation 'scar' (read that as vaporized tissue).

      I have been bleeding ever since. Using a garlic suppository (weird but it works) usually stops the bleeding for a few days. That is as good as the pricey and messy Proctofoam foam the doctors prescribed (also a temporary fix).

      I dont know how breast cancer treatment might relate to your blood flow but please do as I did and go back to the docs to get answers.

      Did you know that the word 'doctor' is from the Latin word for teacher?

      Best wishes

      about 2 years ago
    • pattiep's Avatar
      pattiep

      @geekling that sounds very scary. I am waiting to hear back from doctor now.
      I'm a teacher and I did not know that about doctor/teacher from Latin!
      Thanks!

      about 2 years ago
    • Phoenix76's Avatar
      Phoenix76

      Yes, I had bleeding (years after menopause) as one of my main symptoms of endometrial cancer.

      That said, it could be something else, and I advise staying away from various self-diagnosis websites, because they can be misleading & upsetting, without providing any real solution.

      I know it's hard to wait for a test, and then to wait for the results of the test. I find it helpful to actually write down "what's the worst that can happen?" and "what are my options?", for each possibility. It helps me to think it through, & to calm down.

      Even in a "worst case", there are always options. I hope that your faith assures you that you won't face it alone. As the great scientist Louis Pasteur said, "Chance favors only the prepared mind".

      about 2 years ago
    • pattiep's Avatar
      pattiep

      Thank you, Phoenix76. My gynecologist called. Her office is scheduling a ca final ultrasound and follow up visit. She told me not to panic but mthst we we will investigate all possibilitities

      about 2 years ago
    • Judytjab's Avatar
      Judytjab

      Pattiep, are you on tamoxifen?

      about 2 years ago
    • Jouska's Avatar
      Jouska

      Post mastectomy and chemo, I started spotting years after menopause. I am on Armidex so thought it might be related to that. Told my onc who referred me to a gynocologist, who referred me immediately to a gyn/onc. This without any exam or anything. Which totally freaked me out. She was very gracious and called me and explained that she could examine me and charge me a co-pay, but given my history would end up referring me anyway - so why put me through that - which I thought was pretty cool of her. Went to gyn/onc who examined me, sent me for the u/s etc and determined I had an enlarged ovary. Just an FYI they do not biopsy ovaries, but remove them. We had several options, wait and see (definitely not my first choice,) remove the ovary, remove both ovaries or a complete hysterectomy. So we agreed to do a total hysterectomy. No reason to keep those pieces parts anyway! And it was a benign tumor on the ovary, so no further treatment required. It is scary and post-menopausal bleeding is nothing to ignore. I am very thankful how it turned out.

      about 2 years ago
    • Jane1212's Avatar
      Jane1212

      PattieP- Spotting after menopause was my only symptom of endometrial cancer but this could be so many other things. Atrophy, benign polys etc. Don't freak (easier said than done, I know). You should probably expect a endometrial biopsy as well as the ultrasound. It's a little uncomfortable but that is all, not terrible at all. My cancer was stage 1, no treatment after surgery and although the hysterectomy was scary and weird and hard, many women go through it so I knew I could too and things are great now. Good luck.

      about 2 years ago
    • pattiep's Avatar
      pattiep

      Thanks for some input. I am not on Tamoxifen. I'm only Her2neu. Finished herceptin 2.5 years ago. Have had a biopsy of uterine wall before around time cancer diagnosis due to thickness of wall. Is that endometrial??? Personally I'd like to sign up for another mastectomy, a hysterectomy and if ovaries are separate get them out too! All this worry!!!

      about 2 years ago
    • Jane1212's Avatar
      Jane1212

      PattieP- I think the thickness refers to the endometrial layer. But there is a lot of stuff that can go on with it that isn't cancer or isn't cancer...yet. So, something to stop the bleeding and I would want a biopsy especially since you have had cancer before. Sounds like you are feeling ok about the possibility of a hysterectomy and that's probably your worse case scenario. There is a lot they can do besides that if it isn't cancer but get ready for 6 weeks off and a return of menopause symptoms for a bit. :-/ BTW, I am 6 months out of surgery and the menopause symptoms are less than before the surgery so that part is temporary.

      about 2 years ago
    • theresarae's Avatar
      theresarae

      I understand that worry. My chemo put me into menopause. A few short months it came back with a vengeance. My Doctor then put me on tamoxifen. Even worse. I couldn't make it out of my bed to the bathroom without it looking like someone had been murdered. Found a great OBGYN. She worked with my Oncologist. I had to stay on the tamoxifen because there was nothing else for pre-menopausal. They tried putting me on hormones to stop the bleeding but this is dangerous because I'm hormone receptor positive. After many biopsies of my uterus, they gave me an ablation. This helped a ton., After 6 months, the periods started again but were just a little spotting. I made it 11 months without bleeding. My cancer had returned in the other breast. Two days before my surgery all XXX broke loose and I was back to bleeding like before. Crazy. Now I get an infusion shot each month called Zylodex. My body now thinks its in menopause. I also take letrozole. The tamoxifen made everything worse for me, and it obviously didn't work for me. The bottom line is none of the bleeding meant that I had cancer there. None of the symptoms down there meant it was cancer. I was totally freaking out and probably made things a little worse.
      Try not to panic until you have proof of something to panic about. Once you get diagnosed with Cancer, every thing that comes up you panic. I know, its scary. I still freak out. Come here to this website anytime. This site has helped me so many times, especially when I'm freaking out. God Bless you and your family.

      about 2 years ago
    • pattiep's Avatar
      pattiep

      My ultrasound is on Tuesday the 5th and my follow up visit is the 8th with the gynecologist. My oncologist and breast surgeon know I'm going. Thanks again for the support. I am trying to keep positive thoughts going.

      about 2 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more mixed tumors, breast cancer questions.  Also, don't forget to check out our Mixed Tumors, Breast Cancer page.