• Rituxin maintenance treatments

    Asked by still_fighting on Friday, May 10, 2013

    Rituxin maintenance treatments

    I have been on the Rituxin maintenance treatments for 2 yrs as recommended to keep me in remission...I'm on my last round now but my oncologist and I talked about 'what happens after?' because I am a high risk CLL patient once the 2 yr plan ends and I'm still in remission should I continue with the Rituxin treatments? My oncologist says that there is no information on if continuing the treatments will work and continue to keep me in remission afterwards and she doesn't want to 'wait and see' again so I don't know. Does anyone know or have heard that it is okay to go beyond the 2 year treatment plan with Rituxin without more problems than benefit? Her outlook is "If its working, don't stop it and don't fix it" and I am of agreement there unless it is shown that continuing the treatments will be worse off on me than will benefit me. I would really appreciate any insight on this, thank you.

    1 Answer from the Community

    • Outlier's Avatar


      I realize how each of us have differences in our journey. However, perhaps below information helpful to you, or someone else you know:

      If you were ever considering a second opinion, I recommend Thomas J. Kipps, M.D., PhD. Dr. Kipps is Deputy Director of Research, Moores UCSD Cancer Center; Professor of Medicine, UC San Diego, School of Medicine. He is a leader in the field of CLL.

      In 1991, I was diagnosed with CLL. In 1996, I was deemed to be in remission. In 2012, I saw Dr. Kipps who examined me, went over my labs with me, and explained how the CLL remains in remission.

      Moores UCSD Cancer Center
      3855 Health Sciences Drive # 0820
      La Jolla, CA[phone number redacted]
      Phone:[phone number redacted]
      Fax:[phone number redacted]
      [email redacted]

      over 3 years ago

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