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    Asked by emmett11 on Wednesday, February 20, 2013

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    How does one get the doctors to recognize their patient.
    1st Pulminary meeting with doc lasted 2 minutes, would not answer any ?'s, referred me to nurse.
    Diagnosed 12/08 w/ biopsy, 3.7 mm in right lung, still have not been told results or extent. Had CT 01/14, recieved verbal 01/17, was told now small growth in left lung and small growth in brain, set for an MRI in 2 weeks.
    What do I do and who do I talk to and when??????????????????

    7 Answers from the Community

    7 answers
    • nancyjac's Avatar

      Do you have a medical oncologist? That is who should be running the show. Other specialists are consulted as needed but they normally communicate back with your oncologist rather than you. I'm not sure what additional results you are looking for on your biopsy or CT scan other than what you have already been told. The diagnosis and treatment plan development phase is mostly about tests and tumor boards and there isn't much additional info to be gain that physically involves the patient. I know it is frustrating to feel like you are being excluded but that doesn't mean you doctors are no diligently at work confirming and refining your diagnosis and developing your treatment plan.

      over 4 years ago
    • fastdog's Avatar

      I would indeed talk to that nurse. Nurses can be a wealth of information, and maybe this is a nurse practitioner, who sees patients in his or her own right. Perhaps there isn't much that the dr. can tell you at this point, until all the tests have been finished. That said, without knowing your exact situation, I would say that no cancer patient should be treated like a number and sent off with unanswered questions. Both my medical oncologist and surgeon have never failed to treat me kindly and respectfully, and always take the time to answer questions.

      over 4 years ago
    • 4mymom's Avatar

      I'm shocked that your getting an mri instead of a pet scan.Did they tell you the biopsy results?

      over 4 years ago
    • Peroll's Avatar
      Peroll (Best Answer!)

      Emmett, Based on what you have said the biopsied tumor in the right lung is very small at 3.7 mm. That is actually on the very edge of detectable with a CT scan. I am assuming that the CT on 1/14 identified a spot in the left lung and one in the brain. I assume tha thte MRI is intended to look at the sopt in the brain and get better detail. You need to know that CTs and MRIs only see differences in tissue density and can't definitively diagnose cancer, and that a ;large portion of the population has spots that will show up on CTs and MRIs that are not cancer. The PET scan that 4mymom mentioned sees metabolic activity and cancer is normally high in metabolic activity but so is the entire brain so PETs will not work on the brain as the entire brain lighs up. Also there are several other things that can light up a PET scan so only a biopsy can defintivly dianose cancer.

      The Dr only giving you two minutes is kind of disturbing. I would make the appoitment with the nurse and see what if anything she can tell you about your condition. If she can't proviode answers to your questions you need to ask her how you get the Dr to spend more time with you. If he won't then it may be time to look for a new Dr. One trick I have learned is to schedule the last appointment for the day then thay can't tell you that they have other patients waiting and are more likely to give you the time you need to get answers. I am well known to my Drs for asking lots of questions so they expect it from me. That is a good reputation to get.

      If the spots in the left lung and the brain are cancer then you will probably be started off on chemo to try and kill, shrink or at least stop the cancre from growing. If this works and depending on the exact location of the tumors other treatments may be piossible. You should learn as much as you can about the treatment options by asking your Dr and getting referals to other specailists that do the other treatments so they can all look at your case. If you do decide to find a new Dr you might want to look at cancer clinic that has all of the specailsts under one roof and is associated with a research center or research hospital as they tend to have access to the latest treatments and clinical trials kif you need them. Good Luck

      over 4 years ago
    • SueRae1's Avatar

      I am shocked reading this. If it were me, I would be looking for a new doctor and/or treatment center. 2 min is not enough time for any appointment. You should have had all your tests by now, referred to an oncology and a treatment plan. I know that all 4 times I was diagnosed with cancer, I had all my tests and started treatment within 4 weeks of my original CT scan.

      over 4 years ago
    • cdog1's Avatar

      First comes the tests.I don't think they can tell you anything before they have results.Then get a good oncologist.Good luck with your journey.my prayers go out to you!

      over 4 years ago
    • LuvinSis' Avatar

      As everyone said, make surey you have a good medical oncologist. Then when seeing a specialist try to figure out what his/her role is. Perhaps it's only to come in, watch a test, and leave. Or if the appointment is a true "sit down" with you then there should be adequate time for questions. You have the power to decide if you are comfortable with the treating physicians, nurses, etc. If not, speak up and ask : What should I know at this point? What are the next steps? When will I have more definitive information. Often nurses are the key to questions (in oncology and in many other specialities).

      over 4 years ago

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