• Sex post full hysterectomy and loss of healthy tissue and organs

    Asked by sissys on Friday, May 24, 2013

    Sex post full hysterectomy and loss of healthy tissue and organs

    I have stage one, grade one endometrial cancer and the OBGYN feels it is confined to my edometrial lining. I am not being offered an oncologist. I am told I need a full hysterectomy, uterus, cervix, ovaries, tubes and lymph node dissection and probably will not need radiation or chemo.

    I do not want healthy tissue and organs taken from my body just to be examined when they can not be replaced.

    I currently enjoy full vaginal, cervical and uteran XXX. I have no dryness issues, even though I'm 57. I am told no intercourse for 12 weeks post op, but what will sex, specifically XXX, be like after my surgery? How will I feel sexual desire with my uterus gone? Currently when I just think of having intercourse, even if he's still 3,000 miles away, I get a pleasure sensation in my uterus which sets the stage for desire, and becomes more intense knowing he's flying home and will be here soon. Ladies, you know what I'm talking about.

    Can I just have my uterus removed?


    4 Answers from the Community

    4 answers
    • JeanB's Avatar

      Everyone is different of course, so always keep that in mind. However, I had the surgery on April 3rd, and from my own experience nothing has changed in that department. I' ve always considered the brain to me the biggest sexual organ there is, anyway. Hope this helps. Prayers to you.

      over 3 years ago
    • AlizaMLS's Avatar

      Dear sissys,

      Hi, I'm Aliza, a Breast Cancer patient and the site's unofficial resident Medical Librarian. Med Librarians usually answers questions-of a non med nature (responding to med questions is to practice medicine sans license which is against our Code of Ethics and is also a bit illegal...;), so we tend to shy away). I provide referrals instead to doctors, hospitals, institutions, agencies, books, websites, media, etc. as well as research when requested or required. I went on this site in my professional capacity because I felt I could offer something different than some of the other folks. I am however permitted to speak from my own experience (as a Cancer patient) and those of my friends and family with Cancer (we number too many!)

      I completely understand your reluctance to have healthy organs removed from your body. Therefore, I strongly urge you to get a second opinion before you do anything else and particularly before you have any surgery (don't even schedule it before this). It's ok to tell your current doc you're going to seek a 2nd opinion. This is a routine procedure. She/he should have enough ego to handle this.

      I cannot answer for you the relevance of removing all of the female reproductive organs via hysterectomy (except to say that it would minimize your chance of contracting a future cancer in any of them). But another surgeon perhaps could, and I see no reason why you can't (unless your insurance is holding you back) speak with an oncologist as well. You are entitled to have all of your questions answered before you have surgery. Do not be intimidated by the medical establishment (I understand how they can appear-I used to be married to a physician [it's all smoke and mirrors...;)]).

      Take a pad, pen and relative or friend when you go to appointments so that you can have a list of questions and write down the answers (the friend might catch things you miss).

      I hope you take my suggestion. You deserve to know why this doc wants to do a total hysterectomy or whether there's a less radical alternative. Whatever the case, this site is excellent for you to receive support!!

      Warm wishes,

      over 3 years ago
    • GypsyJule's Avatar

      I suggest getting a second opinion from a Gynological Oncologist. Getting the right treatment is the most important thing, and an oncologist is going to give you treatment options that are best for your diagnosis. As for sex, I agree with JeanB - the brain has it! (My TAH was April 2012)

      over 3 years ago
    • abrub's Avatar

      Ask for a gyn onc and discuss your concerns. I've had my uterus, ovaries, cervix removed and while I've lost some desire, my husband and I have a satisfying sex life. (And desire has crept back with the use of a natural lubricant: coconut oil.) Coconut oil has actually improved things for both of us. DH had been having minor issues which have all resolved with the use of coconut oil. And it's a lot more comfortable for me. (It can also enhance the beach fantasy, if you use the scented coconut oil!)

      over 3 years ago

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