• Should I expect to have more energy than less as I go through chemo?

    Asked by voros on Monday, May 27, 2013

    Should I expect to have more energy than less as I go through chemo?

    I'm on a six cycle regimen of Taxol and Carboplatin. I've been through one cycle so far and feel pretty good once I get a day or two beyond treatment. I'm wondering if I should expect to be more fatigued or see more side effects as I get further into my treatment? No one seems to have a good answer for me. Thank you!

    14 Answers from the Community

    14 answers
    • GregP_WN's Avatar

      For me, I had less energy as the symptoms and side effects of the chemo built up. But everyone takes it differently. And I didn't have those two drugs. I'm sure some of the others will have some info for you.

      over 3 years ago
    • Ydnar2xer's Avatar

      I was on Taxol, Carboplatin & Herceptin--the TCH for 6 cycles and am continuing Herceptin until September. I always felt FINE after chemo, but on the weeks when I had the Carbo, I experienced flu-like symptoms about 3 days afterwards, which would continue until it was nearly time for another chemo. I didn't know how tired I was until I didn't have to go in every week. But as Greg says, everyone is different. Good luck w/your chemo schedule.

      over 3 years ago
    • NanHope's Avatar

      I had Cisplatin and Taxol (IV and IP) and I would say that it did have a kind of cumulative effect (it seemed to get worse with the more rounds I had - I did 6 rounds). After round 4 they did adjust my doses of chemo but I managed to finish it all.
      Wishing you the best of luck with your chemo - you'll get through it!!

      over 3 years ago
    • tara0769's Avatar

      Everyone is different. My guess is that you should not be in debilitating type of pain; I wish I knew that.
      I was on Carbo/ Taxol/ Avastin ... For me the side effects got worse. After chemo, I found out why. I developed an ulcer and my Dr did not act on my pain complains so for the entire chemo I was also suffering from the ulcer pain ( what a nightmare). My treatment is at UCSF ....although I mentioned my pain every chance I got and no one said anything, I was thinking it was normal chemo pain; now i realize my Dr was too busy (always late, always in a rush) to order addl tests or send me to a GI specialist. Don't let your Dr rush through your appointment.
      Also, she had me taking neutropin same day as my infusion...I never vent in remission, and sometimes I wonder if my body being tired from ulcer + same day chemo/neutropin did not have a negative impact on the outcome.

      over 3 years ago
    • c25862's Avatar

      I took carbo/taxol when I did my first 6 rounds of chemo. The first day I felt fine but then the day after I felt blah and not myself. But it didn't last very long. Everyone is different on the side effect thing and I wish I could tell u how u will feel but I can't. Hope all goes well :) good luck and god bless

      over 3 years ago
    • Suzy52's Avatar

      I have always found that side effects and fatigue have worsened as I got further through treatment . It is inevitable really as toxicity builds up with each successive dose.

      over 3 years ago
    • Kathy's Avatar

      Hi! I had four rounds of taxotere and carboplatin 3 years apart. I had the flu like symptoms throughout both. Each time my first rounds seemed the worst with the side effects - like my body was in shock being attacked! The rest of the rounds seemed a little more manageable because i knew what to expect. When I got better it was time for the next dose. I have felt fortunate both times in that I haven't had to work during treatment. It seems the fatigue kicks in after all is done when I'm getting back to work and wanting to get on with my life. I have always heard it said that everyone is different and apparently that is so!! Good luck and take care.

      over 3 years ago
    • Carol-Charlie's Avatar

      I was told exactly what to expect by my Gynecologic Oncologist Surgeon. I had printed out page for each type of chemo and it told most common reactions, and then possible reactions. I was doing just what you will be. They told me when I needed to call them (for what reaction) and what I could do to help deal with others. I love that man. ANYWAY. I found the chemo was indeed staying and a cumulative effect made me more tired each time. By my last one... I was so tired I slept a tremendous amount of time each day. My doctor said ... hey kid, Yeah 40 something talking to 60+ someone.... Your body is fighting this cancer... It's working very hard to kill it. We're feeding it poison to help it continue the fight.... If you're tired - It's working - Rest when you can.... nap when you can... and know this is working on something. Then after all the six cycles of three each...... I rested and was almost back to myself after a month... and He said.... NOW I want you to do 12 more infusions. Once a month for a year. He, when I asked him, said if I was his mother, he would MAKE ME do them. I did them.... Having had Stage IV Ovarian Cancer... Surgeon removed all he could see. I have been cancer free since that day. No little cells hid well enough - it appears to me -- that they could come back and get me. Next Friday I'll be 70... I was 62 when diagnosed..... I have some numbness in my feet and fingers... my fingernails don't grow like they used to (acrylics are great) I danced at my grandson's wedding last year and will dance at his brother's this year. I've gained two great Grandchildren... and life is so worth that bit of cruddy times spent on chemo. God bless you as you more through this. We'll be here with you every step of the way. If you need us...jump on line.. We give cyber hugs (((voros))) Walk with you in faith. and will pray for you to just put one foot in front of the other.... That's the way we all made it through. You can too.

      over 3 years ago
    • SueRae1's Avatar

      As Greg pointed out the symptoms and side effects of chemo are cumulative so you are likely to have less energy as treat progress. I was on Carboplaitin from July 20012-Dec 20012 (along with Gemzar and Aastian), one of the side effects of this chemo drug is that it really effects your blood marrow - I had issues with too low White blood cells, and started nupergeon injects to help keep them up. Right before Thanksgiving, I had dangerous low red blood cell count, which exhausted me. A whole blood transfusion and a shot of arspet took care of that.

      Each person is unique and your cocktail is different then mine, so you may be ok. You keep in touch with you oncology team and let them know what is happening. They can tweak your regimen so if need be.

      over 3 years ago
    • itsjustme736's Avatar

      Everyone body is different hang in there it will get better. And don't wait for something to happen live your life to the fullish when ever you can. You will be down some days but not every day

      over 3 years ago
    • WendyLew's Avatar

      I just completed my 6 treatments (taxol & carbo) and found that my side effects did increase - tho some - like an experience with dizziness (inner ear vertigo?) only occurred after my 4th treatment. I had a pain in my right big toe joint after first treatment, was a little worse after the second and then a few other toes joined in after the third. Then, it seemed more like a tingling and numbness in my entire foot - which hasn't gone yet completely. I'd say each treatment had some separate and different reactions - stabbing pain in shoulder or knee - and yet some effects were common to each treatment - possibly from steroid?> euphoria for 2 days, red facial flushing on 2nd day lasting 24 hrs, and insomnia for 4 or 5 nights.... then the 3rd - 5th day after each treatment was the most intense part. Pains and aches in joints, muscles, tendons, bones, nerves... I sometimes have sore ribs (hurt when I breathe deeply or sneeze!), and fatigue has progressed thruout the treatment - I would say I feel at my weakest point now - but feel best as far as pain. I feel a little exhausted - as tho I was in the fight for my life and need to recover and build my endurance back up, but the most painful part of the fight was in the ring! and that is behind me! Cancer was defeated and I am elated to be victorious - like Rocky, but not without my share of war wounds. Looking back - I would compare the physical effectst to a 6 round boxing match! indeed - a battle going on inside your body... In one corner is Cancer, in the other - with you - is the superhero 'ChemoMan'!! Whi I am very grateful for. He has been my best buddy who whooped the snot out of the monster of Cancer! I did use pain medications and sleep aids when needed... In addition to prayer and reading & meditating on healing scriptures and sermons, I believed God worked thru my Dr and treatments to bring my total healing. Hope this may help you... feel free to ask me anything and You and Chemo can do it!!

      over 3 years ago
    • kkelly111's Avatar

      When I first started I found myself cleaning like crazy until the wee hours of the night, then the steroids wore off and I slept. The fatigue got worse with every treatment but this will pass,always go in with a smile on your face and remember that this is helping kill that ugly disease. Good luck with your journey.

      over 3 years ago
    • silverado2000's Avatar

      This is the treatment I was on. Last treatment will be 1 year ago on July 7. As with anything new, the first time was nerve-wrecking, I had someone with me for that friday treament. Next 5 treaments were scheduled on Saturday. I would get up, load grandson(2) and myself in car and drive 21/2 hours to drop grandson off at babysitter, then go over for chemo. Taking about 5 hours all together from start of getting to appointment and getting finished to leave. I would then go pick up grandson and drive 2 1/2 hours back home. I was just the regular tired. I would then pick up other grandson from his visit and take him to school of a morning and pick him up in the afternoon. This was our routine.
      Everyone is different and effects are different for each individual. I kept fruits around to snack on if I didn't feel like eating much. I also drank lots of tea, as this helped me with nausea. I really didn't have all the terrible things happening as I had heard or envisioned it would be. Take each day in itself and pay attention to what your body is feeling.

      over 3 years ago
    • voros' Avatar

      Well, I'm about 3 cycles into carbo now. The taxol weeks are easy, but carbo definitely makes me feel like I have the flu and I don't like it at all. I'm still working a bit better than part time, but definitely less during carbo weeks. I've been progressively more tired with each cycle but still doing relatively well. Thanks for the answers everyone!

      over 3 years ago

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