• Jdi's Avatar

    Should we get the stomach tube four weeks after radiation therapy?

    Asked by Jdi on Friday, February 22, 2019

    Should we get the stomach tube four weeks after radiation therapy?

    Swallowing and digesting is next to impossible because of neck scar impingement and gagging up phlegm a couple times a day. Have a TPN intravenous feeding but how long can we keep gagging?

    7 Answers from the Community

    7 answers
    • BarbarainBham's Avatar

      Jdi, you should call your doctor about medical questions. He/she needs to know about you gagging, etc.
      Wishing you the Best.

      27 days ago
    • GregP_WN's Avatar

      I had a radical neck dissection with 29 lymph nodes removed, plus a 3" circle taken out around my right tonsil. I had this exact thing. Couldn't swallow, extreme pain, coughing hurt bad and made it worse. I was told prior to surgery that I would have a feeding tube and I refused. I didn't want one. The last time I had one I gagged on it constantly and I wasn't going through that again. They couldn't promise me that I wouldn't come out of surgery with one, but I was told that only if there were complications that demanded it. I came out with NO tube. That part was good but the swallowing was excruciating. I survived on milkshakes, mashed potatoes and gravy and ensure. It probably took a month to get to a point where it wasn't painful to swallow, and still it was difficult. It will take some time to learn to swallow again, my oncologist wanted me to go to physical therapy to learn to swallow, I refused that too. How long since surgery? My radiation made the problem stay with me for another month.

      26 days ago
    • Dkatsmeow's Avatar

      Talk to your doctor. I had a PEG tube the 1st time around. Food just tasted horrible to me & I couldn;t eat it. I had the PEG tube for about 1 year. That worked out fine. The 2nd time after surgery, I had no choice as the left side of my throat is paralyzed. But you do adjust. Humans are very adaptable. And I tell everyone I am from Venus since I now have what looks like 3 belly buttons! HAHA!!

      26 days ago
    • BoiseB's Avatar

      I had a nasal tube while going through both chemo and radiation. After surgery I had stomach tube for two months after surgery. I did throw up the nasal tube due to nausia during chemo.

      26 days ago
    • BarbarainBham's Avatar

      Jdi, you need to let your doctor know your situation, so he or she can evaluate and decide what to do. He knows things about you, such as your weight and condition, that we don't know. Best wishes.

      24 days ago
    • Danfan714's Avatar
      Danfan714 (Best Answer!)

      If I had it to do over again, I would have had my stomach tube put in prior to my surgery. Most likely during or after my chemo an radiation. I ended up losing over 100 pounds and had the tube in for 3 years. I gained back 40 pounds due largely in part to having the stomach tube. Yea, they are a pain, but well worth it.

      23 days ago
    • BarbarainBham's Avatar

      Jdi, please update us about what the doctor says. Not being able to eat is not a condition a doctor wants you to be in without some intervention. Please call today.

      22 days ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy

    Read and answer more squamous cell carcinoma, oral cavity and oropharyngeal cancer questions.  Also, don't forget to check out our Squamous Cell Carcinoma, Oral Cavity and Oropharyngeal Cancer page.