• Six month follow-up for inacative treatment coming up-always worry about the blood test-will it be back? Anyone else?

    Asked by Indyeastside on Wednesday, October 19, 2011

    Six month follow-up for inacative treatment coming up-always worry about the blood test-will it be back? Anyone else?

    11 Answers from the Community

    11 answers
    • mspinkladybug's Avatar

      what you mean we are not supose to worry when we have a test done? XXX I am 3 years out 2 years out of chemo and i have check ups every 6 mo and i feak out a week before i have to go in when they draw my blood i am shaking inside and trying to stay calm...... It is all natural we NEVER face another test with out some sort of fear
      I fly in to my cancer center so the night before my test after driving my family nuts for a week we go out to a nice dinner and try try very hard to relax no alachole is allowed for me as it can mess up a test .
      as I tell non cancer people in a way i am lucky the dr know I have a bomb inside of me and so they look for it to make sure it has not gone off again.... your dr just assume there is no bomb in you your may of exploded and no one knows////
      and knowing this i still freak but i take a few minutes to take a deep breath and asl my heart if the monster is back.. my heart knew when the bomb exploded inot the monster..... nd i find some kind of peace until my onc says all is clear ! good luck

      about 6 years ago
    • GregP_WN's Avatar

      I have done this for 24 years now, at times I feel no worries at all, I expect, believe, and hope for the best. I have put my mind in the state of, there is absolutely nothing that I can do about the outcome of the test, if it's good, then great, if it's not, then I will deal with it at that time. Worrying about it before only makes you less healthy overall. Easy to say that, hard to do it!! It takes an extremely strong mind to be able to think only happy, positive thoughts.
      Best wishes to you and think positive!!

      about 6 years ago
    • MAGNUM1's Avatar

      I am a 7 year prostate cancer survivor.

      My cancer went into remission for about 2 years, after the radical prostatectomy. I always was anxious, about what the results would be, of the next blood test.

      Cancer returned, and I then underwent 8 weeks of daily radiation treatments. The blood tests were every 3 months,
      for the first year, after radiation. I preferred being checked at the 3 month time period. I have a very aggressive cancer, and I wanted to "stay on top of it." The anxiety about the upcoming
      blood work, has never gone away.

      I experience great RELIEF, after being advised of the latest blood work results.

      Currently, my cancer is NOT in remission. I have requested that my tests be given every 3 months again. The doctor refuses to
      do this, saying that PROCEDURE calls for it every 6 months,
      after the first year that radiation was completed. With my aggressive form of cancer, I do NOT understand why exceptions can't be made to the standard procedure, and I be tested more often?

      So, after a 7 year battle with prostate cancer, my apprehension about the tests, has actually increased. Because I have had all available medical treatments; my only hope to stop it, is a CURE.

      I have gone on LIVING life, over these years, and enjoy EACH day for what it has to offer.

      I want to make it clear, that I am not preoccupied about the
      next test results, or let it affect my daily living. That is not the case. But I think that subconsciously, I have that anxiety, UNTIL I have the test, then RELIEF takes over for several months.
      The anxiety occurs about the time the test is scheduled, and I am anxious to find out the results, so I can resume my RELIEF PERIOD!

      *** So, you are not alone, about having anxiety. I just limit mine, so that it doesn't impact my daily living.

      about 6 years ago
    • jasperjoan's Avatar

      I have just gone through annual GYN exam and I find that when I visit any dr. my mind takes me back to the radiation treatment that was emotionally very painful for me. No one else I have talked with was treated the way I was by their radiation center.
      I've been told they made changes because of me and my outspokenness. So, I try to focus on that as being the reason for my breast cancer....I speak up, and apparently, someone needed to do that so that the center would follow HIPPA laws and focus on the whole patient, NOT just training the future radiaiton techs (which I said I did not want involved in my treatment, but they were).
      My GYN is the most wonderful dr......she treats all her patients as if we are the only one she has. She hugs us, affirms us.
      I am 4.5 yrs out from my lumpectomy....my cancer was discovered when it was small and very treatable....I know I am one of the lucky ones.....I try to keep focused on that good prognosis and put the other behind me, but for some reason the dr. visits uproot all the baggage that came with my cancer.
      I am new to this site and hoping that as I journey with each of you, I will finally be able to put this into perspective...my head know I need to move on....my heart is still bruised!

      about 6 years ago
    • toml's Avatar

      I had the surgery on the 15th of Aug. 1st. psa (30day) was <0.13. I ask for a bone scan, and I had that, but he said it was clear except for spots of contamination. He really couldn't explain that. I am now asking for a 2nd opinion, either another bone scan or a PET. I am just concerned and can accept this as such. Now my best friend has stage 4 abdominal cancer along with Colon cancer. I'm just confused and not accepting things right now, I guess.

      about 6 years ago
    • toml's Avatar

      I don't know why this thing seems to cut my answers short. I had written that my psa (30 day) was <0.13, but I also requested a body scan (bone). The dr said it was clear of cancer, but has areas of contamination. His explanation was not clear. I am requesting a 2nd. opinion for another body scan or PET. I just am very uncomfortable about this cancer stuff. My best friend has just been dignosed with sage 4 abdomnial cancer,plus his colon is ate up with cancer as well. As of last night they hadn't told him yet. I'm scared and confused.

      about 6 years ago
    • Afterglow's Avatar

      I've only been out of treatment for a few months, but my wife and I both experienced the anxiety of waiting for test results both during treatment as well as since treatment has ended. We call it our semi-annual anxiety week, the period between when I have blood drawn for the PSA test and when we see the Dr. We understand that this is only a natural reaction (fear of the unknown?) and don't obsess over it, but accept that it will probably always be with us.

      about 6 years ago
    • toml's Avatar

      I don't have to wait long, my daughter is the 1 who does the blood work, so she know right away.

      about 6 years ago
    • Merianne41's Avatar

      Hi, that is a really good question. Each cancer patient is different and their beliefs are different. My attitude is that cancer is a disease just like getting on a rollercoaster but you never seem to get off. My case is not necessarily the one that will happen to you. My mom went cancer free for 36 years after a mastectomy when she was forty. I had breast cancer in 93 with a lumpectomy. Again in 2002I was diagnosed with breast cancer and had a double mastectomy, nine rounds of chemo, six weeks of radiation. The third time was again 9 years later with a tumor on my pelvic bone. I am now on aromatase inhibitor (Femara) and getting Zometa to strengthen my bones every three weeks. So far it has cut the tumor activity in half which means it is not growing. In stead of worrying, try to think about what you are able to do now. You will worry every time there is a blood count and a doctor's visit. It's just the nature of the disease. but you can look at is as being healthy to take care of yourself after cancer. If I had not lived through my first time, I would have never saw my daughter when she was 2 growing up, the second time seeing my kids through graduation, and now again, working to be here to see marriages and grandkids. Take each day at a time. Dont' worry about tomorrow. Give your cares to God. Hope this helps.

      about 6 years ago
    • RHB020911's Avatar

      I worry about my husbands blood test for two weeks before and after until we get the results. I think it is just human nature to worry, or it is for me anyway. I dont tell my husband I am worried but he probably knows and is worried himself.

      about 5 years ago
    • Fredfred's Avatar
      Fredfred (Best Answer!)

      I just had surgery 8 months ago.
      I worried some about the blood test but there is not much that I can do about the outcome.
      I just try to hope for the best and breathe a sigh of relief when it comes back with good results.
      If it ever comes back bad, I will work with the doctors to take the next steps.
      I think that is what needs to be done, take one day at a time, take one step at a time.
      Enjoy what you have, while you have it.

      about 5 years ago

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