• So grateful for this forum

    Asked by jchelle on Tuesday, June 9, 2015

    So grateful for this forum

    My father was diagnosed with Prostate Cancer last week. They say it is in the early stage but I don't what stage exactly. The doctor who diagnosed him recommended radiation therapy but so far what I've read on here I've been leaning more towards surgery in the event that not all cancer cells are removed which then radiation therapy can be used (of course not my decision, up to my father). My father said the doctor wasn't too helpful and told him to "Google the cancer." Yes, the search engine is a powerful tool but suggesting my father do that at a very sensitive time is a bit appalling to me. At this moment his PSA is 9 and his biopsy returned 5 of 10 positive with three Gleason scores of 3+4=7 and two of 3+3=6. Involves 5%, 60%, 80%, 10% and 60% of the core (still trying to understand all this info so forgive me if I don't exactly make sense). My father would like to get a second opinion but I don't know where to start and who to look for. My brother suggested sending his biopsy

    8 Answers from the Community

    8 answers
    • jchelle's Avatar
      jchelle

      results to the “Request a second opinion” by Dr. Epstein at Johns Hopkins. Fellow member Brendan has already recommended his surgeon here in the Bay Area. If there is anyone else in Northern California that can push me in the right direction or make any suggestions I would highly appreciate it!! I’m so extremely grateful for this forum and all the love I’ve received ever since I signed up on behalf of my father. I’m optimistic and am sure everything will work out. Thank you all so much and I hope each and everyone of you is doing well. *Hugs*

      over 4 years ago
    • GregP_WN's Avatar
      GregP_WN

      First, welcome. Second, sorry for your Fathers Dx. My Father had prostate cancer for about 14 years or so. He was diagnosed with not much fanfare about it. The doctor at that time said don't worry too much about it, you'll die of something else long before you die from prostate cancer! True story!! Dad was 71 at the time of dx. and nothing was done for him except hormone shots. He passed away at 85 from complications from the prostate cancer. But, to be fair, he never took the drugs he was supposed to be taking, never had any treatments, no surgery, just a monthly shot. So, if he would have done something, he may have beat it. We wish you and your dad the best. We have some great Prostate cancer members that I'm sure will offer their experiences for you.

      over 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I would definitely seek another doctor. Quickly. A doctor telling a patient tongo google their cancer is appalling. First of all, we are mostly NOT trained physicians so we have no clue if the information on google is even accurate. Second, it is up to our doctor to take the time to explain all of the options and the consequences of each.

      Best of luck! I am glad your dad has you advocating for him!

      over 4 years ago
    • cam32505's Avatar
      cam32505

      Call a major cancer center near your home for recommendations. Then, google the doctor they give you before going for an appt. I met many men having radiation for this type of cancer, shared the same waiting room. One was a recurrance after many years, and he told me the same thing about the cancer not killing him. So, that's the good news is that it's treatable and seems to be slow growing.

      over 4 years ago
    • msesq's Avatar
      msesq

      You have to tread lightly here. It's your Dads cancer not yours and he should be making the decisions he is comfortable with. If he isn't happy with his MD the. By all means help him find another one. My husband had surgery June 2 nd and we got the pathology report today it showed clean margins BUT perineural invasion. The surgeon recommended close monitoring of PSA levels but our children want radiation and chemo to eliminate all cancer. What they are not taking into consideration the side effects of treatment outweigh the chance the cancer will recur. Support his decision as ultimately it's his body.

      over 4 years ago
    • BoiseB's Avatar
      BoiseB

      Here is a helpful site for planning cancer http://www.livestrong.org/we-can-help/ That his Dr. said just "Google cancer" is a moronic statement. One of the first sites that comes up is an article that is a vaguely disguised ad for Cancer Centers of America. You need to do more research than just Google. I believe you have a California State University near you. They may offer research services to members of the community. Otherwise find out if your local library still offers research services. You and your father need a better explanation than "Go Google." My medical center has on staff some wonderful nurse practitioners and physician assistants that are willing to spend some time with the patient explaining things.
      Lastly support your father's desire to get a second opinion. Don't let anyone talk him out of it.

      over 4 years ago
    • jchelle's Avatar
      jchelle

      Yes of course MSESQ I am completely aware that it is his body. Like I stated the decision is up to him not me and I will support him with any decision he chooses. I am simply doing all the research I can to help him during this sensitive time but am at a loss of where to begin. All children only want what is best for their parents which means keeping them around for as long as they can. I've considered the side effects associated with each treatment.

      Thank you all for your words of encouragement and suggestions! BOISEB, I will be looking into research services within my area.

      over 4 years ago
    • kkcomm's Avatar
      kkcomm

      Jshelle you are a great kid! So glad your dad has you there to advocate for him. My husband was 63 when he was diagnosed with prostate cancer that almost exactly the same biopsy results. Urologist explained to us that at 10 years out there was a very slightly higher risk of recurrence with radiation than with surgery. He said he would respect our decision and do the surgery if we wanTed to go that route but referred us to a radiation oncologist for a second opinion. We opted for the radiation and once we made the decision we decided we wouldn't look back and second guess ourselves no matter what. The radiation was very easy on him. He had 8 1/2 weeks of daily radiation with weekends off. The only side effect he had was some mild fatigue towards the end. His PSA remains undetectable five years out. I would get an opinion from another urologist as I don't like the google it response and also a referral to a radiation oncologist before your dad makes the decision. We also had a friend who was diagnosed at 42 just after his dad past away from prostate cancer. He obviously went the surgery route due to his age and the Gleason score of 7 but he had continent issues for 2 years after and permanent erectile issues. Make sure your dad understands these possibilities as you never know what might be the most important to him. My husband was very concerned about the having to wear incontinence but luckily it wasn't an issue. Also watch for depression in both you and your dad. Cancer is a big deal and a life changer. Many of us need help with that. I needed it when I was his caretaker and I need it now that I have cancer. He hasn't needed it for any of this. He is a wonderful positive guy!

      over 4 years ago

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