• Spread to porta hepatic nodes

    Asked by Teelee3 on Tuesday, October 15, 2019

    Spread to porta hepatic nodes

    I had a recent CT that showed two 1.5cm lymph nodes in the porta hepatis and one 1.1 cm node in the retroperitoneum that are suspicious for recurrence. I’m wondering if anyone has had successful treatment for Mets in these areas? From what I’m reading they may not be easy to deal with.

    7 Answers from the Community

    7 answers
    • GregP_WN's Avatar
      GregP_WN

      I had nodes involved with all three of my diagnoses, but they were upper abdomen and above the shoulders. Mine was treated successfully, but it was a different type of cancer.

      2 months ago
    • Teelee3's Avatar
      Teelee3

      Interesting. Do you remember the sizes of your involved nodes Greg?

      2 months ago
    • Skyemberr's Avatar
      Skyemberr

      That is not an unusual spot to have colorectal cancer appear. The only good thing about it is that there are quite a few established treatment paths for that area. Your oncologist will probably have a few ideas about how to approach them if they are mets. What kind of Chemo have you done?

      about 1 month ago
    • Teelee3's Avatar
      Teelee3

      Hi Skyemberr,

      When I was first diagnosed in 2015 as stage 2a, I did Xeloda along with radiation, then more xeloda after surgery. In 2017 I had my first liver met, but had so many complications from surgery that I couldn’t do chemo. I had surgery for another liver met in 2018 and then did a full series of folfox. I’ve been NED for 19 months. My CEA had risen in July and then 3 weeks later went up again. I was battling a UTI at the time, but didn’t know it, so they sent me for a scan that showed these enlarged nodes. Interestingly I had a blood work up this week and my CEA actually went down a little, so we’re really wondering what’s going on. I have a PET October 30th...maybe they’re just reactive nodes? Who knows with this darn disease!!

      about 1 month ago
    • Skyemberr's Avatar
      Skyemberr

      It could be just inflammation there. I think the PET is going to tell you everything. The darned CEA is so unreliable. I had a fully obstructing tumor and it never got over 8. Now I have Mets and it reads much higher than it did when I was super ill back at the beginning.

      I asked about chemo because if you end up with a recurrence they will probably scratch the xeloda off of the list along with the folfox, so you may be able to predict what path the doc may take. FOLFIRI isn't too bad, but there are a few people who have a genetic mutation that makes them unable to process it. If you have that problem the doctor will be able to test for it. First clue is that you would have a very toxic reaction to FOLFIRI. My doc just turned it down to the lowest possible dosage and I am still able to do it. I do not have liver mets though and I do not know if that would change it up. Maybe the doc would also be looking at radiation? I don't know much about liver mets.

      Hopefully you have no mets at all and you will be logging back in here in a couple of weeks to tell us that it was just some inflammation or scarring and that you are still NED! I will be sending prayers your way for an easy couple of weeks with good news coming at the end.

      Keep us posted.

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      @Teelee, I don't remember the CM size of them, but for my first diagnosis, there were 3. One was golf ball sized and two were like large marbles. For my second it was very small, maybe the size of a kernel of corn. My last one started out corn kernel sized but by the time I got the biopsy, diagnosis, referral to an oncologist, etc. two months had gone by and I had developed another golf ball sized node in my neck.

      about 1 month ago
    • Teelee3's Avatar
      Teelee3

      Unfortunately my PET showed that these lymph nodes are in fact Mets. After almost five years of hearing the words curative intent, it was incredibly hard to hear that I am now inoperable and incurable. What a roller coaster ride we are all on.

      12 days ago

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