• Stage 1 and Mets

    Asked by busymom0413 on Friday, November 30, 2012

    Stage 1 and Mets

    Can you get mets after bilateral mastectomy and no lymph node involvement. Did not need chemo or rads. I take arimidex. I cannot seem to get this out of my mind. I have had several medical issues since surgery and will need another surgery not related to breast cancer, so I am constantly aware of my cancer.I know anything is possible but is it likely? I really want to think about something else for a change.

    8 Answers from the Community

    8 answers
    • nancyjac's Avatar

      Stage 1 by definition means no mets. It is possible that a few stray malignant cells could have escaped through the blood stream, but if you had clean margins after your mastectomy it is not likely. Anyone can get a second primary cancer. I had my first 18 years ago and my second last year. Constantly thinking about the possibility isn't going to make it happen or not happen, so why not put your thinking towards a more practical and productive subject?

      almost 4 years ago
    • karen1956's Avatar

      Enjoy life the best you can....the odds are in your favor to live a long life cancer free....but there are no guarantees, just like there were no guarantees before we had breast cancer the first time...You are doing everything you can, so take a deep breath and enjoy each day that you are NED (no evidence of disease)....

      almost 4 years ago
    • SusanK's Avatar

      I know it's hard to not feel that little stab of fear occasionally. I think about my cancer at least once a day and I wonder when it will come back. But then, I let it go, I get busy doing something and don't have another thought like it...until a day later. It's fleeting; I don't dwell on it. I think because you have some other health issues going on, the "dark thoughts" are pretty hard to shake. Can you take stock of the positives in your fight and use them to counter the negatives? Stage I...no chemo...no radiation. Focus on those good things when you have a doubt. Please try to stay strong and get well.

      almost 4 years ago
    • gwendolyn's Avatar

      Try to take comfort that your doctor will monitor you closely in the future. Each NED check-up should help to ease your mind. Try to find some (new?) hobby or activity that will distract you mentally. I find that physical activity does wonders for my mental health but your near-term options may be limited by your upcoming surgery.

      almost 4 years ago
    • Kelli's Avatar

      I was stage 1, had the bilaterals and also did not require chemo or radiation.l My clear margins were a good 6 inches for each breast, yet I still do think about a reoccurrance like SusanK. She is right on the money. You just have to push those thoughts out of your mind. I too have other chronic health issues and an still raising teenagers. Try focusing on just today, you can't do anything about tomorrow, live in the moment.

      almost 4 years ago
    • leepenn's Avatar

      I know what you mean - it gets better. I don't want to say that you get used to it.. .but you sort of do. My feeling is that recurrence is very unlikely. Your cancer was estrogen receptor positive? And no chemo? That means risk of recurrence must have been very low. Otherwise, they would have recommended chemo and/or rads. Does that help?

      If you have questions about risk of recurrence, you should definitely talk to your medical care people. They should be able to answer your questions... and hopefully help you find peace around this.

      It sucks - no doubt.

      If you're struggling to keep the cancer fear at bay, consider seeing someone - a therapist with experience working with people who have had or have cancer or other serious diagnoses.

      My other thought is - what do you LOVE to do? I love to ride bikes, and so I ride bikes a lot... and it helps.... Maybe getting out and doing what you love might help you refocus your energies.

      almost 4 years ago
    • Nomadicme's Avatar

      Stage 1 5 year survival rate is 88%. Stage IIb ( what I am) 74%. I'm not sure if risk of dying of something other than cancer is folded into those rates. There are two anniversaries that are important for cancer pts, 5 year and 10 year survival rates. If you make it to 5 years disease free, you're likely to not get mets. If you make it to 10 years you will probably die of something else. Of course, anything is possible.
      Having a BMI below 25 is associated with longer survival in breast cancer patients. Going to support meetings is also associated with higher survival (why? No one knows). I do know of a woman that had a bilateral Mx 25 years ago, and was so afraid of dying of cancer her husband couldn't handle it and divorced her. She was also incapable of holding a job, for the same reason. Bottom line, she's still alive 25 yrs later, but she's been afraid of dying all that time and has barely lived. Don't let your diagnosis destroy your life.

      almost 4 years ago
    • busymom0413's Avatar

      Thanks everyone for your responses. I do keep very busy as I still have 2 teenagers at home and 2 grandchildren. I think once I have my other surgery and then finish my reconstruction it will be on my mind less. My husband was diagnosed with cancer 2 months after me so it is always on someone's mind in my house. Thanks again

      almost 4 years ago

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