• stage 4

    Asked by judithj on Monday, March 12, 2018

    stage 4

    Just diagnosed, much scarier than I thought. Chemo might begin this Friday. Stomach in a knot. Have any hopeful thoughts?

    14 Answers from the Community

    14 answers
    • BoiseB's Avatar
      BoiseB

      I am a eight year survivor of Stage IV esophageal cancer, And there are a lot of others here who are Long Term survivors of Stage IV cancer, I won't tell you survival is easy but it is both doable and worth it.
      I will keep you in my prayers

      almost 3 years ago
    • andreacha's Avatar
      andreacha

      judithj - I'm a 12 year survivor and I remember the fear very well. Despite everything you will go through, truly try to stay positive. I'll be joining BoiseB in prayers for you. Once you've had a chance to catch your breath be sure to let us know how you are doing.

      almost 3 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hi @judithj, I am another one with stage 4 cancer - mine is lung cancer. My first oncologist thought I would live 4 months ... that was back in October 2012.

      Researchers are making tremendous strides in recent years in finding treatments and therapies to help extend our lives. There is hope.

      almost 3 years ago
    • geekling's Avatar
      geekling

      I have recently become acquainted with a woman who had breast cancer which was diagnosed at stage 5.

      The doctors couldnt figure out how she was alive. They took her double EE boobs and, although still on a maintenance drug and all upset about only teeny tufts of hair, she is an amazing and very alive pistol.

      Best wishes for you to also break the rules.

      almost 3 years ago
    • Terri's Avatar
      Terri

      I remember well first diagnosed with Stage 4 melanoma. The terror. The absolute terror. I hate to not be that courageous positive cancer person but I was certain I was going to die a horrible death and be a real burden to my family. I still might do that, but that was 8 years ago!! I have had to move on to long term survival.

      almost 3 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Stage IV endometrial cancer. Diagnosed Aug 2012. Currently NED (no evidence of disease). I remember when I got the diagnosis. I drove through the campus of a local hospice thinking this is where I'll go to die. Wondering whether I should renew my magazine subscriptions. Yeah, kinda glad I did. Stage IV is not an automatic death sentence. Yep, it's scary. And yep, there are no guarantees, but there are no guarantees an airplane won't fall on my head as I'm sitting at my desk at work either. And 5 years out, I still have a prescription for Ativan. Don't use it often, but every once in a while the gerbil on the wheel in my head won't go to sleep. No harm, no foul if you need something for anxiety. Good luck to you!

      almost 3 years ago
    • Laurasalzy's Avatar
      Laurasalzy

      Hi Judith, I was diagnosed with a rare T-Cell Non-Hodgkins Lymphoma in 2010, none of my chemo cocktails worked much and I was put in hospice. Eight years later I have no evidence of disease. My Oncologist still monitors my blood and he saved my life so I enjoy seeing him. Don’t EVER give up hope. Stay positive and keep praying because prayers work. Good luck. Chemo isn’t as bad as it was years ago. They have drugs to help the nausea. Food might taste metallic and some smells might bother you. You got this!

      almost 3 years ago
    • Gymmom's Avatar
      Gymmom

      Hi Judith.......I wrote to you last week. I was diagnosed stage 4 nhl back in 2015, and I'm still in remission. I agree with Laurasalzy, "You got this!" Please contact me if you want to.
      [email redacted]

      almost 3 years ago
    • Gymmom's Avatar
      Gymmom

      They redacted my email address, but you can reach me on Facebook too. Donna White, San Lorenzo, CA.

      almost 3 years ago
    • judithj's Avatar
      judithj

      Don't know if my last 'thank you' went through so - thank you for all the thoughtful replies. It means so much to know I'm not alone

      almost 3 years ago
    • carm's Avatar
      carm

      Judithj,
      I'm an oncology nurse and stages are not as important as they used to be...it is the grade that matters now. As you can see from the responses, stage 4 is not the death sentence it used to be. Relax...you got this...and you have many here who will join you on your journey whenever you need them. These are mighty mighty warriors. Best of luck to you!

      almost 3 years ago
    • po18guy's Avatar
      po18guy

      As carm said, lymphoma staging is not critical to outcome and mostly directs therapy. Since it is a cancer of the immune system, flowing in the lymphatic system (part of your circulatory system) and occasionally in your blood, it is a sitting duck for treatment, which flows in the same channels. I have been stage IV-B at least twice, with two relapses, a mutation into two sub-types, the development of a secondary marrow cancer (MDS) and probably 100 tumors total, as well as marrow and small intestine involvement.

      And this was not B-Cell Lymphoma (90-94% of lymphomas), but two rare and aggressive T-Cell Lymphomas (PTCL-NOS and AITL). My prognosis began as poor and dropped immediately to extremely poor. It has since dropped several times below that. There is not even a word to describe how abysmal my prognosis became. But this all began in 2008! Ten years, the end of next month.

      If you do not receive a response to treatment as expected, get yourself to a National Cancer Institute designated comprehensive cancer center ASAP (if you are not already at one). That can make all the difference in the world.

      https://www.cancer.gov/research/nci-role/cancer-centers

      Chin up! Don't panic. Don't give up.

      almost 3 years ago
    • Bug's Avatar
      Bug

      judithj, did you have chemo on Friday? Either way, how are you doing?

      almost 3 years ago
    • Terri's Avatar
      Terri

      Don’t give away all your jewelry and precious possessions. I was so sure my goose was cooked I did exactly that. It’s okay, it’s just stuff, but don’t overreact like I did!

      almost 3 years ago

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