• stage 4 cancer moved from my appendix to my uterus, my peritineum of the stomach, & small intenstines should I try HI

    Asked by Pattie on Wednesday, April 3, 2013

    stage 4 cancer moved from my appendix to my uterus, my peritineum of the stomach, & small intenstines should I try HI

    HIPEC a surgery with chemo being poured into me during the surgery, is the treatment even for stage 4? How long does it take to recouperate from? How sick do you get from the chemo? I have to go out of town and is there a Hope Lodge in Buffalo NY? I don't have a support person or people it will just be me unless something changes in the next weeks?

    5 Answers from the Community

    5 answers
    • fastdog's Avatar

      Yes, by all means, have HIPEC. You won't get sick from that kind of chemo as it is poured into you rather than an infusion. I was told that a tiny bit might "escape" and find its way to making me a bit nauseous, but it didn't. I had HIPEC in June of 2012. I was 67 years old and stage IV and did fine. It is a major surgery, mine took 12 hours, but my recovery was uneventful. I was in the hospital 8 days. It's a pretty long recovery, in that you will be tired for quite a while. They took out my gall bladder, spleen, omentum, and I had already had a complete hysterectomy the December prior to HIPEC, when they thought it was ovarian cancer. I hope you can find a support person to help, at least to drive you home. You won't be driving for a few weeks. I was told to have someone stay with me all the time I was in the hospital, but I told my husband to go home and come back when it was time to pick me up, and I was fine. He took a week off to look after me, but I would have been ok alone. Mostly, he got me ice water. Lots and lots of ice water. I'll be glad to answer any questions I can if you'd like to e-mail me, and there is a great support group, in addition to WhatNext, on Facebook, PMP survivors. It's a rare cancer, but there are a goodly number of us who have it. I don't know about a Hope Lodge in Buffalo, I would assume the hospital or surgeon's staff can advise you about that. I am in New Hampshire. Keep us informed, this is a great source of support on What Next.

      over 3 years ago
    • AlizaMLS's Avatar

      Dear Pattie,

      Hi. My name is Aliza and I'm a Breast Cancer patient and also a retired Medical Librarian who practices, as it were here on this site and elsewhere. As such, I offer advice (usually non medical in keeping with the librarians' code of eithics [dispensing medical advice is the same as practicing medicine without a license and essentially, it's frowned upon and illegal.]), but I offer referrals to doctors, hospitals/institutions, agencies, etc. and I do research when required/requested.

      Since fastdog gave you such a good answer from her own experience (I am able to speak from my own experience as well as those of my family and friends with Cancer [we number too many], I researched the second part of your question and yes, there is a Hope Lodge in Buffalo, NY.
      Since this site will blot out the phone number I will email you offsite with the information, but I hope that puts you at ease.

      If there is anything else I can do to make things easier for you, please don't hesitate to ask me.

      Warm wishes,

      over 3 years ago
    • abrub's Avatar

      Meet with Dr. Kane at Roswell Park. He will be able to advise you. And yes, HIPEC or IP chemo (as done at Memorial Sloan Kettering in NYC) is the way to go. I had the IP for stage 4 appendix cancer, with tumors and seeding on my ovary, omentum, peritoneum, colon and small intestines. My surgeon resected my colon in 2 places, my small intestines in one place, and left me with a perfectly normally functioning bowel system (no bag.) (I sing his praises every morning as I sit on the "throne" and perform "normally".)

      I was just chatting with one of Dr. Kane's patients who was stage 4 and is about 4 years out from surgery, doing just fine!

      over 3 years ago
    • jenpwrs' Avatar

      Hi Pattie. Please read over my journey. I've had the surgery and HIPEC twice. My cancer was as advanced as yours is now. My first surgery was ten years ago. HIPEC chemo didn't make me sick. I was hospitalized during this treatment as I was recovering from the surgery. The surgery is very difficult, but you will recover from that. Please feel free to contact me.

      over 3 years ago
    • maralyn's Avatar

      i just had the HIPEC 5 weeks ago, and i am healing up great, no problems that didn't go away with a few pain pills and a good nap!!! they didn't remove any body parts, just cleaned up what cancer they could and did the heated chemo,,, was home in 10 days, and no complications at all!!! i highly recommend it!!! i pray you find the support and answers you need!!!

      over 3 years ago

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