• Stage III Carcinoid Cancer of Small Intestine

    Asked by iambammie on Thursday, May 16, 2013

    Stage III Carcinoid Cancer of Small Intestine

    I'd like to hear about any reoccurring tumors or metastasis off this kind of cancer. I'm told it is slow growing and "the best" cancer to have. My biopsy showed lymph node involvement, which worries me a little.

    4 Answers from the Community

    4 answers
    • Tracy's Avatar

      I had stage 4 thyroid cancer in high school that was fully involved in my lymph nodes by the time they found it. I was not expected to live past 18 and I am now 53 so I think we got it :-). I had it come back 30 years later and it was much easier to treat. Its not the same kind of cancer but I am answering to show you that you can live with a kind of cancer that has spread and is known to come back. Cancer does change your life but it can be lived with. Please take care and take comfort in my story - Tracy

      over 3 years ago
    • iambammie's Avatar

      Thank you, Tracy. Your response does help and I am happy to know you have beaten the odds for many years.

      over 3 years ago
    • Sur2210's Avatar

      Yes it is the better cancer to have,so I was told, also. However, this is my second time around with this disease. My first diagnosis was in 2001 in the small intestine with lymph nodes removed and just after my ninth year of remission it returned in my liver in 2010, again with lymph nodes removed. My liver was resected 60 % and has grown back fully. I was told by a physician that I should have been on the standostatin shot after the first time, but showed no evidence of carcinoid sydrome. I had the diarrhea all along but continue to get worse around 2008 with nausea, flushing in my face, and pain in my stomach. I could not hold my bowels after eating and always stay close to a bathroom. I now take Questran to bulk up my BM's and you just have to watch your fats, Carbs, sweets meaning sugars, and be on a gluten free diet. My body talks to me when I eat the wrong foods and then I know I can't eat it again. My diet consist of almost a vegetarian/vegan's diet, no dairy products, but I need protein, so red meat a steak every week and eggs every day for me. The Questran also lower your cholesterol too. I have lost some much weight, and now consulting a nutritionist.Please don't worry because that's not good for your health, stress brings on the diarrhea. It is a slow growing cancer and it like to attach itself to organs. The shot in suppose to lessing the growth or kill off the cell that multiply. My doctors tell me that I am always going to have this disease and the good thing about it is...if it come back you just fight each time. I hope I answer your questions, but please do not worry because having cancer now days is not a death sentence.

      over 3 years ago
    • Grammyma's Avatar

      I had a carcinoid tumor and some lymph nodes and about 13 inches of small intestine removed in 2004. I was put on Sandostatin immediately and am still on it. Before they found the tumor, it had mestastizied to my liver. I had some removed surgically and then some by radio frequency ablation. After 8 years of stability, a tumor developed on my liver. I had chemoembolization on the right lobe, and will be undergoing a second round on the left lobe on ll/5/14. Carcinoid is not curable, but can be controled. It is indeed slow-growing and I'm still here to talk about it.

      almost 2 years ago

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